Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

B12 Limit Question


katrina500

Recommended Posts

katrina500 Rookie

Hello, my earlier post explained that I had accidentally had gluten about a week ago. My symptoms are also telling me that my B12 is also low.

My blood tests always come back as normal but just within the normal range. I also drink too much alcohol about three or four nights of the week and I know that, coupled with celiac disease, hinders absorption. My Doctor won't give me B12 injections because of my blood results.

I have B12 supplements which are 1,000 mcg per tablet. Do you think it would be okay if I took 3 or 4 of these a day? It recommends one on the packet. I haven't taken them for about 5 months.

Thank you. ?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

There are sublingual tablets that go as high as 5000. I don't think it would do any harm to take a couple daily for a bit. B12 is a water soluable vitamin so you would simply excrete the excess.

Link to comment
Share on other sites
mamaw Community Regular

Some people can't get enough B-12 via pill or under the tongue. It just doesn't work for some of us....I had been taking B-12 for years to no avail. Wasting money trying to find one that would help me. My blood levels were always within range , after years of problems & a B-12 level of around 450 ( in reference range) I fought to get my B-12 levels to around 1000...I started out with monthly injections for over a year, my level would go up to around 500 or so. I fought again & went to weekly injections. It took me a year before I ever reached 1000... I have just started bi_monthly injections to see if I'm able to keep my levels at 1000, too soon to tell as yet... But the doc now agrees I don't absorb properly so he is willing & wants my level at 1000 & a constant 1000..

another thing is to check your vit D level...And cut down on the booze.....

Most of us at same time has had to fight with our doctor......

Link to comment
Share on other sites
foam Apprentice

Some people can't get enough B-12 via pill or under the tongue. It just doesn't work for some of us....I had been taking B-12 for years to no avail. Wasting money trying to find one that would help me. My blood levels were always within range , after years of problems & a B-12 level of around 450 ( in reference range) I fought to get my B-12 levels to around 1000...I started out with monthly injections for over a year, my level would go up to around 500 or so. I fought again & went to weekly injections. It took me a year before I ever reached 1000... I have just started bi_monthly injections to see if I'm able to keep my levels at 1000, too soon to tell as yet... But the doc now agrees I don't absorb properly so he is willing & wants my level at 1000 & a constant 1000..

another thing is to check your vit D level...And cut down on the booze.....

Most of us at same time has had to fight with our doctor......

I've been having the injections of and on for a few years, 3 or 4 injection per year and my B12 level has gone from effectively nothing (measured ~110) to between 900-1000 which is the level my Doctor and I are happy with. It helped me out a bit in the short term (I feel great for a week or two after the injections) but it was the Vitamin D deficiency which caused most of my problems and it's the Vitamin D that is really leading my recovery. With Vitamin D I've been taking 50,000 IU each two weeks for nearly a year and I'm still quite low in Vitamin D (last test a couple months ago was 74) but I'm hoping to be over 100 on this weeks test), we are aiming to hold around 150 on the Vitamin D for several years while I recover. Most people don't need nearly that much Vit D to recover there Vitamin D level if they are simply lacking in Vitamin D.

My eosinophil level was 38% after being Gluten free a few months and 32% a few weeks after starting on the Vitamin D, who knows what it was like while still eating Gluten... it's been very high for a very long time and has caused me to have a tumour develop in my neck. I wasn't far from dying before I stopped eating gluten it so I guess pretty high. I'm hoping my eosinophil count will be lower than 30% on the latest tet I've had since I haven't had one for about 6 months and my health has been steadily improving and my diet has been damm near perfect the last 6 months, 99% unprocessed foods. This can be a very slow and long process to fix your gut... I'm well into my 2nd year gluten free, maybe 3 years already? and still have a long way to go to be perfectly healthy.

Link to comment
Share on other sites
frieze Community Regular

I've been having the injections of and on for a few years, 3 or 4 injection per year and my B12 level has gone from effectively nothing (measured ~110) to between 900-1000 which is the level my Doctor and I are happy with. It helped me out a bit in the short term (I feel great for a week or two after the injections) but it was the Vitamin D deficiency which caused most of my problems and it's the Vitamin D that is really leading my recovery. With Vitamin D I've been taking 50,000 IU each two weeks for nearly a year and I'm still quite low in Vitamin D (last test a couple months ago was 74) but I'm hoping to be over 100 on this weeks test), we are aiming to hold around 150 on the Vitamin D for several years while I recover. Most people don't need nearly that much Vit D to recover there Vitamin D level if they are simply lacking in Vitamin D.

My eosinophil level was 38% after being Gluten free a few months and 32% a few weeks after starting on the Vitamin D, who knows what it was like while still eating Gluten... it's been very high for a very long time and has caused me to have a tumour develop in my neck. I wasn't far from dying before I stopped eating gluten it so I guess pretty high. I'm hoping my eosinophil count will be lower than 30% on the latest tet I've had since I haven't had one for about 6 months and my health has been steadily improving and my diet has been damm near perfect the last 6 months, 99% unprocessed foods. This can be a very slow and long process to fix your gut... I'm well into my 2nd year gluten free, maybe 3 years already? and still have a long way to go to be perfectly healthy.

If you are taking prescription Vitamin D, you would be better served going to the health food store, or event supermarket, and getting D3. The script version is D2, unless otherwise stated. good luck

Link to comment
Share on other sites
foam Apprentice

Hi no, I'm on 50,000 IU D3 capsules, I live in a fairly dark windy and cold place so the majority of the population are on D3 supplements, the capsules are made locally. Usually 4 capsules brings most peoples level up to 100, just hasn't worked as quickly for me.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,204
    • Most Online (within 30 mins)
      7,748

    SwiftUnseenSofC11
    Newest Member
    SwiftUnseenSofC11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
×
×
  • Create New...