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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Celiac Cause Slow Growth In Ebf Baby?
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I've recently been diagnosed with celiac and believe my son will be soon. Doctors first tested him for celiac (blood test) at around 18 months because of failure to thrive. But his weight and height dropped markedly at two months. He didn't have solids until four months and then only a little fruit and rice cereal. Is it possible that my milk, being celiac, could have caused his slow growth? Or his celiac reacting to proteins in my milk?

I just wonder about it because he's textbook celiac in every other way, but I don't understand how his height could have been affected months before he had gluten. Also, his younger brother was and is very, very big and chunk, also breast fed.

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I'm new to this, so I don't know much about celiac yet. I do know that gluten can pass into your breastmilk. My son is on a gluten free diet and because I am breastfeeding I have to be gluten free also. I do think that if your son has celiac disease the gluten in your breastmilk could affect him. My son was always very big but started going down on the charts after starting solids so I don't have experience with that. Just because one of your children has celiac disease doesn't mean the other will so that could explain why his brother is big.

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If he was celiac from birth and you were NOT gluten free at that time (early breastfeeding), then yes, he could have gotten glutened from your breastmilk and that could cause slow growth. If you were gluten free during that time, however, no.

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Thanks, Tarnalberry. I was not diagnosed or gluten-free then so I was on a regular diet. I'm just so thankful that both my boys were born at all now that I know about the risks of untreated celiac and pregnancy. when I was diagnosed earlier this month I did stop gluten based on blood work alone so that my 8mo wouldn't get it, just in case he is celiac or sensitive. When I finally get into a GI she probably won't like that, but I couldn't wean in the midst of all this and couldn't go on feeling like I might be harming a baby.

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My son is 8 months old, we EBF for 7 months, I was on regular diet for first 6 weeks and then on a total elimination diet ( top 8 allergens and some other foods free) due to baby's feeding issues, but still he did not grow at all from 4 to 6 months, we put him on formula at 7 months and he grew 1 inch in 10 days. I don't know if the gluten that passes in breast milk first 6 weeks did the damage or probably cross contination, which I was not too careful about since I had noooo idea about celiac, did the damage. DS is still not diagnosed with celiac but he is DQ2 and DQ8 positive, so I am treating him as celiac and waiting for an appt to see a celiac specialist.

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
      FlowerQueen is correct.  Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.).   I think everyone has trouble in the beginning sticking to a gluten free diet.  That's because gluten is in so many processed foods.  It takes time to learn to read labels, make a safe kitchen, learn to eat out, get your family to support you.  I would advise reading out Newbie 101 section under "Coping" within this forum.  It contains valuable tips for becoming gluten free.  Also, check out the University of Chicago's celiac website to learn about celiac disease.  Knowledge is power!   Everyone has different degrees of damage, but I would say that learning the diet and healing can take months to a year or longer.  The good news is that this is an autoimmune disorder that is treatable -- avoid gluten at all costs!   Take care and welcome to the forum!   
    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
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