I am scheduled for a colonoscopy and a gastroscopy with duodenal biopsy on November 20. I am completely terrified! They do it under conscious sedation and stupid me, I decided to google it. Bad, bad idea! There are tons of horror stories of people who woke up during the tests and were screaming for the doctors to stop but they wouldn't. I am trying to convince myself these are the rare horror stories but there are just so many of them. I am actually on the verge of cancelling everything and staying sick forever rather than risk the trauma of the tests. Any input for me is appreciated!
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Tell Me A Gastroscopy And Colonoscopy Are Not That Big Of A Deal!
Started by smpalesh, Oct 15 2012 08:39 PM
10 replies to this topic
#2
tom
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Posted 15 October 2012 - 09:51 PM
Guess I've got to agree that googling it was a bad idea, because mine was a breeze & I've seen many many others here say either the same or that their throat was a little sore.
It's a pretty common procedure . ...well both procedures I guess, whether together or separate.
I'll flat out say I think those rare horror stories are even VERY very rare.
Afterwards you'll be saying "I got worked up over THAT?".
You're gonna get better once it's figured out.
It's a pretty common procedure . ...well both procedures I guess, whether together or separate.
I'll flat out say I think those rare horror stories are even VERY very rare.
Afterwards you'll be saying "I got worked up over THAT?".
You're gonna get better once it's figured out.
>>>>>>> tom <<<<<<<
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
#3
Celiac Mindwarp
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Posted 15 October 2012 - 11:29 PM
I had mine conscious with anesthetic throat spray (UK option) and even that was ok! A bit wierd and uncomfortable but fine.
I was very tired after and had a mildly sore throat, which was fine by next morning.
I was terrified before, but it was fine.
Promise yourself a nice treat for when it is all done
I was very tired after and had a mildly sore throat, which was fine by next morning.
I was terrified before, but it was fine.
Promise yourself a nice treat for when it is all done
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#4
ravenwoodglass
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Posted 16 October 2012 - 02:54 AM
Talk to your doctor about this fear. I have had 5 or 6 scopes. I have a twisted colon and they had to stop the colonoscopy the second to the last time I had one done because the doctor could not get me fully sedated. It wasn't a 'horror story' but they were unable to complete it. I went back a short time later and they did the procedure under anesthesia.
Part of the issue with the problem one was that the GI doctor was doing the sedation. If an actual anesthesiologist is there they are much better trained in making sure you have enough sedation. They can also give you some medication to take before you go to help you relax. Since you are nervous about it maybe ask your doctor to use an anesthesiologist.
Most of the time these procedures are easy peasy so try not to worry about it.
Part of the issue with the problem one was that the GI doctor was doing the sedation. If an actual anesthesiologist is there they are much better trained in making sure you have enough sedation. They can also give you some medication to take before you go to help you relax. Since you are nervous about it maybe ask your doctor to use an anesthesiologist.
Most of the time these procedures are easy peasy so try not to worry about it.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
jerseyangel
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Posted 16 October 2012 - 04:01 AM
I've had an endoscopy and colonoscopy at the same time, and had each done separately. Each time, it was fine. Had the sore throat once. Complications happen, but are not the norm.
Take good care and try not to worry:).
Take good care and try not to worry:).
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#6
luvs2eat
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Posted 16 October 2012 - 06:07 AM
I had my first colonoscopy w/ no sedation. I'd seen them done (nurse) and wasn't at all scared. It was only a tad uncomfy but fascinating to watch and be able to ask questions. Had my second one earlier this year and was laughing w/ the staff about staying awake to watch w/ the conscious sedation. They put in the medicine into the IV and I woke up in the recovery room. Ha ha. Absolute piece of cake. I also had an endoscopy years ago and slept thru the entire thing. Don't be scared.
That said... I have a friend who takes huge amounts of pain meds (morphine, etc) for chronic pain. She had a hard time because they couldn't knock her out w/ the conscious sedation. Her doctor told her she should have told him how many narcotics she takes on a daily basis (um... halloooo... she didn't give a complete list of her meds?? Of course she did!). So, IF you take huge meds, make sure your doc knows. Otherwise... you'll do fine!
That said... I have a friend who takes huge amounts of pain meds (morphine, etc) for chronic pain. She had a hard time because they couldn't knock her out w/ the conscious sedation. Her doctor told her she should have told him how many narcotics she takes on a daily basis (um... halloooo... she didn't give a complete list of her meds?? Of course she did!). So, IF you take huge meds, make sure your doc knows. Otherwise... you'll do fine!
luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!
#7
shadowicewolf
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Posted 16 October 2012 - 06:25 AM
Outside of the dizzyness, i don't remember a thing.
ADHD
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#8
smpalesh
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Posted 16 October 2012 - 09:19 AM
I have Ehlers-Danlos syndrome and one of the symptoms is a difficulty with anesthetic. It basically takes WAY more to even have an effect on me. So I am doubtful that it would even work. I still haven't decided what to do.
#9
Celiac Mindwarp
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Posted 16 October 2012 - 10:26 AM
I am sure if you talk it through you could find a way.
Can you call in advance?
As I said, I was totally conscious, no sedation and it was ok (just endoscopy). It felt odd, but the nurse talked me through. I gagged just a little (don't think that happens under sedation) but I could still breathe fine.
Good luck x
Can you call in advance?
As I said, I was totally conscious, no sedation and it was ok (just endoscopy). It felt odd, but the nurse talked me through. I gagged just a little (don't think that happens under sedation) but I could still breathe fine.
Good luck x
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#10
ravenwoodglass
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Posted 16 October 2012 - 10:41 AM
I have ED also...I wonder if that is why I also have to have extra anesthetic.I have Ehlers-Danlos syndrome and one of the symptoms is a difficulty with anesthetic. It basically takes WAY more to even have an effect on me. So I am doubtful that it would even work. I still haven't decided what to do.
Talk to your doctor and explain that you have a resistance to anesthesia. Try not to worry as a trained anesthesiologist will be able to sedate you enough especially if they know in advance that you have resistance.
As others have mentioned there are some folks who have had these procedures done with nothing and had no problems. Don't let fear of the procedure prevent you from having it done if it is needed.
If you are doing this solely for celiac diagnosis purposes talk to your doctor and see if he will diagnose based on your response to the diet and/or positive bloods.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#11
quirkinator
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Posted 16 October 2012 - 12:37 PM
Hi there. I have the same procedure scheduled for this Friday and am also terrified. I'll try to remember your username and check in on you and let you know how my test goes. Sometimes google is a bad thing, as I freaked myself out too. Good luck!!!
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