hi all, its been awhile,just wanted to leave an update on the protein issue,back in april 2012 protein was found in the urine it was 1.3 grams 24hr.tests were done to rule out other conditions that could cause the issue,all can back fine.so its just a kidney malfunction no biopsy was down becasue the protein went down to 853mg 24hr,and gfr is still high in the 90's.creatine /bun is still good, also nothing is getting worse,i see him every 4 months for blood and urine work to keep things in check taking 40mg of micardis for the blood preasure that seems to help the protein levels.anyone here ever have an issue like this.
thanks kryptonite
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4 replies to this topic
#2
GFinDC
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A little farting never hurt anybody... :-).
Posted 16 October 2012 - 01:17 PM
Thanks for the update K! I haven't had kidney issues myself, but it sounds like you are doing better eh? That's good to hear! 
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
#3
megsybeth
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Posted 17 October 2012 - 10:27 AM
Hi Kryptonite,
I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.
Thanks,
Megan
I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.
Thanks,
Megan
#4
Kryptonite!
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Posted 20 October 2012 - 06:12 PM
[quote name='megsybeth' timestamp='1350498446' post='830467']
Hi Kryptonite,
I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.
Thanks,
Megan
yeah doc told me that it could be celiac i also have hypo thyroid also.its a mess lol.you might want to try a kidney doc for those test results.also push for the celiac tests also to confirm. my kid has to be checked also.maybe keep your kid gluten free my kid is gluten free also but is not confirmed yet.
Hi Kryptonite,
I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.
Thanks,
Megan
yeah doc told me that it could be celiac i also have hypo thyroid also.its a mess lol.you might want to try a kidney doc for those test results.also push for the celiac tests also to confirm. my kid has to be checked also.maybe keep your kid gluten free my kid is gluten free also but is not confirmed yet.
#5
Kryptonite!
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Posted 20 October 2012 - 06:13 PM
yeah rgr that thanksThanks for the update K! I haven't had kidney issues myself, but it sounds like you are doing better eh? That's good to hear!
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