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Blood Work Tomorrow

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Posted 17 October 2012 - 11:21 AM

Hello Everyone,

I had an appointment with my doctor today. I told her that I had not started the antibiotics for Lyme Disease because I believe I could have Celiac Disease. I told her my symptoms (again) and how they are also symptoms of Celiac Disease. I told her that I had taken the home celiac test and received a very faint positive result. She was not familiar with this test so I showed her the "Dear Doctor" letter supplied with the test. I don't think she was totally on board but she said testing would not hurt so I have my requisition for blood work for the Celiac Panel. She did not feel the need to retest my vitamin and mineral levels because she said they were "fine". She said very casually "Maybe its cancer." :blink: and added Calcium and LDH to my requisition! Let's hope it is Celiac disease she said. The doctor also mentioned that if the blood work does come back positive, they would only give me the diagnosis of celiac disease with a positive Endoscopy result.

So I am off to get blood tests tomorrow.
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Posted 17 October 2012 - 01:19 PM

Glad you got the lab slip and I hope she ordered the full panel as well as a total IGA.
Your doctor sounds like a real jerk. With a bedside manner like that I would be looking for a new one.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)



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Posted 17 October 2012 - 04:22 PM

Maybe its cancer. Seriously? I would never go to that jerk again!
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Posted 17 October 2012 - 06:12 PM

Maybe its cancer. Seriously? I would never go to that jerk again!

That was my thought when I read it.
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Posted 17 October 2012 - 06:46 PM

:( I think doctors forget they are dealing with real, live people. How insensitive! :angry: Maybe she just didn't like the fact that you might be doing a better job of doctoring yourself than she is...

Good luck with the blood tests. :)
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"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012


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