This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Myths About Gluten In Everyday Non Edible Objects?
Yes, your results can be skewed by the fact that you were not eating enough gluten. This is what I tell everyone who tell me that the have celiac symptoms; Go get a Gene test to see if you carry the DQ2, or DQ8 gene, If you carry either or both, you have the ability to have Celiac disease, if you don't have either than you cannot have celiac disease. In my opinion if you have several of the over 200 possible Celiac symptoms, and also carry one of the genes, assume you have the disease. More importantly check to see if your child has the gene too. You can eliminate a lot of guessing by getting the gene test.
Another thing I tell people new to the Celiac world is to buy the book Recognizing Celiac Disease, by Cleo J. Libonati, RN, BSN. It gives all the signs, symptoms, etc. Look on abebooks.com I've bought several for friends and family.
Hi.....I am also a newbie....just found out I ve been having Asafoetida since going gluten free.....just wanted to know is Asafoetida even in little amount is enough to flare up the gluten sensitivity?
IMHO the best way to handle this is for you to only eat gluten when you're away from home. Brush your teeth very well before kissing her after you've eaten any gluten or any of her allergens.
It's wonderful that you are supporting her so!
Read the Newbie 101 in the Coping section & that will give you a lot of tips. Be sure to follow & read the links contained in that.