Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Myths About Gluten In Everyday Non Edible Objects?
0

60 posts in this topic

There is no scientific evidence to back this but I find it interesting that when I have used products with gluten, they cause problems . Not typical problems found when ingesting gluten, but other issues... For example....

Suntan lotion w G = very red sun burn, gluten-free= nice tan

Hand and body lotion w G= sticky skin, gluten-free lotion= soft, silky skin

Shampoo w G= frizzy hair, GFshampoo =soft, silky hair

G mascara= red, itchy eyes, lash breakage, gluten-free mascara = long, lush eyelashes

G eye shadow = red eyes, loses color, gluten-free eyeshadow = clear eyes, longer lasting

Make up w G = pimples, gluten-free make up, clear skin

G soap = dry flaky skin or sticky residue, gluten-free soap normal skin

G laundry soap = itchy clothes or sheets

Does anyone else see weird reactions similar to these?

Yes!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm glad to hear someone else has issues with red eyes when wearing mascara or eye shadow with gluten. I was told this couldn't happen, but I knew something was going on. Yes, I agree, it probably won't cause celiac problems, but it definitely causes a reaction in me. I didn't know that about hair products, but I do have frizzy hair, so I will be trying a new shampoo and conditioner. Something else that happened with me, that I've been told isn't possible since it isn't ingested, is, before being diagnosed with a bad gluten sensitivity, I worked in a pizza parlor that the dough was made with High Gluten flour. I'd come to work and within 30 minutes, I'd be tired, stuffy and just not feeling well, even though I felt fine coming in. I told everyone I was allergic to the place. Sadly, I really was. Has anyone else experienced anything similar. I do know that when I eat gluten by mistake, within 2 days I am miserable with cramping, sharp pains (internal porcupines), bloating and heart burn (this usually shows up first-within minutes to an hour). This will go on for several days.

0

Share this post


Link to post
Share on other sites

I do have frizzy hair, so I will be trying a new shampoo and conditioner.

I also have frizzy hair. My leave in conditioner contained wheat so I stopped using it and my hair frizzed out worse then ever. I had a gluten free lotion that was working, and it looked a lot like the leave in conditioner so I tried it and it works well, FWIW.

0

Share this post


Link to post
Share on other sites

I'm glad to hear someone else has issues with red eyes when wearing mascara or eye shadow with gluten. I was told this couldn't happen, but I knew something was going on. Yes, I agree, it probably won't cause celiac problems, but it definitely causes a reaction in me. I didn't know that about hair products, but I do have frizzy hair, so I will be trying a new shampoo and conditioner. Something else that happened with me, that I've been told isn't possible since it isn't ingested, is, before being diagnosed with a bad gluten sensitivity, I worked in a pizza parlor that the dough was made with High Gluten flour. I'd come to work and within 30 minutes, I'd be tired, stuffy and just not feeling well, even though I felt fine coming in. I told everyone I was allergic to the place. Sadly, I really was. Has anyone else experienced anything similar. I do know that when I eat gluten by mistake, within 2 days I am miserable with cramping, sharp pains (internal porcupines), bloating and heart burn (this usually shows up first-within minutes to an hour). This will go on for several days.

Working in a pizza parlor or a bakery or anywhere else where there is a lot of airborn flour will cause a Celiac reaction. Celiac's cannot have these kinds of jobs unless they want to remain sick. You are essentially breathing it in and anything that goes down your nose and throat, or even just sits in your mouth and throat for that matter, is already in your GI tract.

There's no mystery to that.

You can certainly have a reaction with your eyes if you use eye shadow or mascara with a wheat component but it is most likely an topical allergic reaction, not a celiac one. I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes but it isn't because I wear eye shadow.

I can wake up with reddened eyes after having NOT worn eye make-up so it's the allergies that are troublesome. Most concerns about gluten in make-up can come from the use of tocopherols, which is Vitamin E, and it can be derived from wheat germ oil. Most reputable celiac organizations reagrd it a non-issue because they are so highly refined and the amounts used are miniscule.

1

Share this post


Link to post
Share on other sites

"    "DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion. It may take patients a substantial amount of time to erase years of IgA buildup in the skin."    "

 

Sorry haven't read this thread in awhile and I see there's new responses, but if I can get IgA antibodies deposting to/leaving through my skin, and these are what cause DH flare-ups,  why would they not react to topical gluten?

0

Share this post


Link to post
Share on other sites




" I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes"

 

Sorry for double post but this is a completely different topic, but I feel like I should say that you should make sure you're getting enough vitamin A. If you delve a little into vitamin A deficieny-related eye issues, what you have described does seem to fit that critera. I mean, this is obviuosly a symptom a sjorgen's too, and I'm sure you've got other symptoms and been tested, but it still might be worth looking into vit A levels.

0

Share this post


Link to post
Share on other sites

" I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes"

 

Sorry for double post but this is a completely different topic, but I feel like I should say that you should make sure you're getting enough vitamin A. If you delve a little into vitamin A deficieny-related eye issues, what you have described does seem to fit that critera. I mean, this is obviuosly a symptom a sjorgen's too, and I'm sure you've got other symptoms and been tested, but it still might be worth looking into vit A levels.

Thanks for the tip but I know I no longer have deficiencies.  I have been tested and do have Sjogren's and have all the classic symptoms.  Once you trigger for it, it isn't going away.  Having dry eye really affects allergies.  It has gotten much better since going gluten-free but during allergy season, all bets are off.    :(

0

Share this post


Link to post
Share on other sites

"    "DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion. It may take patients a substantial amount of time to erase years of IgA buildup in the skin."    "

 

Sorry haven't read this thread in awhile and I see there's new responses, but if I can get IgA antibodies deposting to/leaving through my skin, and these are what cause DH flare-ups,  why would they not react to topical gluten?

Because DH is caused by the internal reaction to gluten and the aggravation to your immune system.  If you are getting reactions topically, then you may just have super sensitive skin, which makes sense for those with the skin version of Celiac.  Or you may be reacting to something else in the products you are using.  I would think that anyone with DH may most certainly have other skin sensitivities.

0

Share this post


Link to post
Share on other sites

Because DH is caused by the internal reaction to gluten and the aggravation to your immune system.  If you are getting reactions topically, then you may just have super sensitive skin, which makes sense for those with the skin version of Celiac.  Or you may be reacting to something else in the products you are using.  I would think that anyone with DH may most certainly have other skin sensitivities.

 

 Doesn't IgA need gluten to react to your own body, dh or villous damage or neuronal damge? I'm under the impression that IgA in the skin wouldn't do anything negative unless it reacted with/got reacted by gluten.

0

Share this post


Link to post
Share on other sites

I just wanted to put my hat in here since this seems to apply heavily to my situation. :)

 

I have to have gluten free shampoo, conditioner, body wash, chap stick, etc. It wasn't all at once, but started in college for me with my severity hitting a new peak. I am extremely sensitive to gluten/wheat. When I speak to newly diagnoised Celiacs I do express caution because of my own issues. I had a shampoo that had wheat germ in it. As things progressed I began to have "shaking episodes" as the neuro guys put it, or awake seizures. I also began to get rashes on my skin on my upper arms as well.

 

My celiac has progressively gotten worse over the 13+ years I have had it.  Now, I also have to say that I cheated severely for a couple years in my high school years, which I think has affected my severity. I get tested almost constantly and travel to many specialists. I am one of the more rare severe celiacs that have to watch everything.

 

Basically, for "new" celiacs I wouldn't worry about it up front. Just keep it in the back of your mind that if you do not adhere to the diet and doctor recommendations there are possible severe consequences. I was dumb enough not to listen and have to live with what I did as well as my loving supportive husband.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  I assume you do.  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined