Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Myths About Gluten In Everyday Non Edible Objects?
0

60 posts in this topic

There is no scientific evidence to back this but I find it interesting that when I have used products with gluten, they cause problems . Not typical problems found when ingesting gluten, but other issues... For example....

Suntan lotion w G = very red sun burn, gluten-free= nice tan

Hand and body lotion w G= sticky skin, gluten-free lotion= soft, silky skin

Shampoo w G= frizzy hair, GFshampoo =soft, silky hair

G mascara= red, itchy eyes, lash breakage, gluten-free mascara = long, lush eyelashes

G eye shadow = red eyes, loses color, gluten-free eyeshadow = clear eyes, longer lasting

Make up w G = pimples, gluten-free make up, clear skin

G soap = dry flaky skin or sticky residue, gluten-free soap normal skin

G laundry soap = itchy clothes or sheets

Does anyone else see weird reactions similar to these?

Yes!!

0

Share this post


Link to post
Share on other sites


I'm glad to hear someone else has issues with red eyes when wearing mascara or eye shadow with gluten. I was told this couldn't happen, but I knew something was going on. Yes, I agree, it probably won't cause celiac problems, but it definitely causes a reaction in me. I didn't know that about hair products, but I do have frizzy hair, so I will be trying a new shampoo and conditioner. Something else that happened with me, that I've been told isn't possible since it isn't ingested, is, before being diagnosed with a bad gluten sensitivity, I worked in a pizza parlor that the dough was made with High Gluten flour. I'd come to work and within 30 minutes, I'd be tired, stuffy and just not feeling well, even though I felt fine coming in. I told everyone I was allergic to the place. Sadly, I really was. Has anyone else experienced anything similar. I do know that when I eat gluten by mistake, within 2 days I am miserable with cramping, sharp pains (internal porcupines), bloating and heart burn (this usually shows up first-within minutes to an hour). This will go on for several days.

0

Share this post


Link to post
Share on other sites

I do have frizzy hair, so I will be trying a new shampoo and conditioner.

I also have frizzy hair. My leave in conditioner contained wheat so I stopped using it and my hair frizzed out worse then ever. I had a gluten free lotion that was working, and it looked a lot like the leave in conditioner so I tried it and it works well, FWIW.

0

Share this post


Link to post
Share on other sites

I'm glad to hear someone else has issues with red eyes when wearing mascara or eye shadow with gluten. I was told this couldn't happen, but I knew something was going on. Yes, I agree, it probably won't cause celiac problems, but it definitely causes a reaction in me. I didn't know that about hair products, but I do have frizzy hair, so I will be trying a new shampoo and conditioner. Something else that happened with me, that I've been told isn't possible since it isn't ingested, is, before being diagnosed with a bad gluten sensitivity, I worked in a pizza parlor that the dough was made with High Gluten flour. I'd come to work and within 30 minutes, I'd be tired, stuffy and just not feeling well, even though I felt fine coming in. I told everyone I was allergic to the place. Sadly, I really was. Has anyone else experienced anything similar. I do know that when I eat gluten by mistake, within 2 days I am miserable with cramping, sharp pains (internal porcupines), bloating and heart burn (this usually shows up first-within minutes to an hour). This will go on for several days.

Working in a pizza parlor or a bakery or anywhere else where there is a lot of airborn flour will cause a Celiac reaction. Celiac's cannot have these kinds of jobs unless they want to remain sick. You are essentially breathing it in and anything that goes down your nose and throat, or even just sits in your mouth and throat for that matter, is already in your GI tract.

There's no mystery to that.

You can certainly have a reaction with your eyes if you use eye shadow or mascara with a wheat component but it is most likely an topical allergic reaction, not a celiac one. I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes but it isn't because I wear eye shadow.

I can wake up with reddened eyes after having NOT worn eye make-up so it's the allergies that are troublesome. Most concerns about gluten in make-up can come from the use of tocopherols, which is Vitamin E, and it can be derived from wheat germ oil. Most reputable celiac organizations reagrd it a non-issue because they are so highly refined and the amounts used are miniscule.

1

Share this post


Link to post
Share on other sites

"    "DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion. It may take patients a substantial amount of time to erase years of IgA buildup in the skin."    "

 

Sorry haven't read this thread in awhile and I see there's new responses, but if I can get IgA antibodies deposting to/leaving through my skin, and these are what cause DH flare-ups,  why would they not react to topical gluten?

0

Share this post


Link to post
Share on other sites

" I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes"

 

Sorry for double post but this is a completely different topic, but I feel like I should say that you should make sure you're getting enough vitamin A. If you delve a little into vitamin A deficieny-related eye issues, what you have described does seem to fit that critera. I mean, this is obviuosly a symptom a sjorgen's too, and I'm sure you've got other symptoms and been tested, but it still might be worth looking into vit A levels.

0

Share this post


Link to post
Share on other sites

" I have Sjogren's Syndrome and I have problems with my eyes from time to time because they are dry and I have allergies which directly affect my eyes"

 

Sorry for double post but this is a completely different topic, but I feel like I should say that you should make sure you're getting enough vitamin A. If you delve a little into vitamin A deficieny-related eye issues, what you have described does seem to fit that critera. I mean, this is obviuosly a symptom a sjorgen's too, and I'm sure you've got other symptoms and been tested, but it still might be worth looking into vit A levels.

Thanks for the tip but I know I no longer have deficiencies.  I have been tested and do have Sjogren's and have all the classic symptoms.  Once you trigger for it, it isn't going away.  Having dry eye really affects allergies.  It has gotten much better since going gluten-free but during allergy season, all bets are off.    :(

0

Share this post


Link to post
Share on other sites

"    "DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion. It may take patients a substantial amount of time to erase years of IgA buildup in the skin."    "

 

Sorry haven't read this thread in awhile and I see there's new responses, but if I can get IgA antibodies deposting to/leaving through my skin, and these are what cause DH flare-ups,  why would they not react to topical gluten?

Because DH is caused by the internal reaction to gluten and the aggravation to your immune system.  If you are getting reactions topically, then you may just have super sensitive skin, which makes sense for those with the skin version of Celiac.  Or you may be reacting to something else in the products you are using.  I would think that anyone with DH may most certainly have other skin sensitivities.

0

Share this post


Link to post
Share on other sites

Because DH is caused by the internal reaction to gluten and the aggravation to your immune system.  If you are getting reactions topically, then you may just have super sensitive skin, which makes sense for those with the skin version of Celiac.  Or you may be reacting to something else in the products you are using.  I would think that anyone with DH may most certainly have other skin sensitivities.

 

 Doesn't IgA need gluten to react to your own body, dh or villous damage or neuronal damge? I'm under the impression that IgA in the skin wouldn't do anything negative unless it reacted with/got reacted by gluten.

0

Share this post


Link to post
Share on other sites

I just wanted to put my hat in here since this seems to apply heavily to my situation. :)

 

I have to have gluten free shampoo, conditioner, body wash, chap stick, etc. It wasn't all at once, but started in college for me with my severity hitting a new peak. I am extremely sensitive to gluten/wheat. When I speak to newly diagnoised Celiacs I do express caution because of my own issues. I had a shampoo that had wheat germ in it. As things progressed I began to have "shaking episodes" as the neuro guys put it, or awake seizures. I also began to get rashes on my skin on my upper arms as well.

 

My celiac has progressively gotten worse over the 13+ years I have had it.  Now, I also have to say that I cheated severely for a couple years in my high school years, which I think has affected my severity. I get tested almost constantly and travel to many specialists. I am one of the more rare severe celiacs that have to watch everything.

 

Basically, for "new" celiacs I wouldn't worry about it up front. Just keep it in the back of your mind that if you do not adhere to the diet and doctor recommendations there are possible severe consequences. I was dumb enough not to listen and have to live with what I did as well as my loving supportive husband.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,669
    • Total Posts
      914,341
  • Topics

  • Posts

    • Even gluten-free Foods Triggering Reaction After Initial Glutening?
      I was glutened in July.  Badly.  I have NO clue as to what got me.  I suspect two things 1) a gluten free store- brand, product that might have been mis-labeled and 2) a prescription generic medication (contacted the manufacturer to confirm a gluten-free status but got the old liability statement of no guarantees).  Both items were NEVER consumed by my gluten free hubby who acts as my canary.     I probably got glutened again by eating out while on vacation even though I only at at restaurants recommended by other celiacs.  The rest of the time I was at my parent's house and I have a dedicated kitchen there for us.   Who knows?  But I was sick with anxiety, tummy issues, vomiting, the works.  It was strange since anemia was my original symptom and I really did not have tummy issues at the time of my diagnosis.  So, celiac symptoms can evolve at least for me!  Six weeks after my first sign of a glutening, I was tested by my new GI because I was not getting well.  He thought I had SIBO or bile duct issues. I asked for celiac blood testing.    Turns out it was gluten all along!   During my glutening, I became lactose intolerant again, could only eat stewed foods because everything hurt to get through my digestive tract.   I was a basket case for three months.    Did I mention new problems resulting from my glutening?  Hives, itching, vomiting, passing out and tummy aches almost daily.  Anti-histamines helped.    My GP thinks I am her most "allergic" patient.  Except it was more like a histamine intolerance or a mast cell issue not allergies.   Who knows?  The hives eventually resolved as I healed from my glutening.    I refuse to test the two items that were suspect.    No way!    Three months later, I got dairy back.  Six months later I am eating gluten free anything....without any issues.  I also do not take any meds (except for Armour Thyroid) , supplements, eat out and I avoid even processed gluten-free items.  But, I feel great.     I suppose that I will eventually slip up and get glutened again.  But I am working hard not too.  I like feeling well.   So, really look to your diet.  I bet you just keep getting glutened.  Stick to whole foods, follow the FODMAP diet and wait.  Wait.  Wait.    
    • Lower left abdominal, left pelvic & other random pains
      Chiro?  Hubby went to one with a shoulder injury as recommended by our GP. It was a great experience.    I always resisted.  Why?  Just a "gut" feeling.  Good thing.  My bones started fracturing on their own.  I can not imagine anyone manipulating me now.  If you have celiac disease, get a bone scan first.  Just saying.......
    • Gluten or SIBO; Should I gluten challenge to find out?
      Noobette, sure did use gluten-free oats! I even had to test the oats alone before the test as they sometimes give me problems, probably due to fodmap.  As an update, my symptoms became bad enough that we aborted the challenge. My colleague revealed I was eating the gluten! So I skipped the decoy sample to just get this over with. I'm not sure that my symptoms were celiac, but they were bad either way. Headaches, blurpy noisy gut, fatigue, fogginess, bloating, gas, pains. But those are vague, I'll find out for sure in a few more weeks. 
    • Gluten free diet, positive celiac screen...what should I eat now?
      After my blood test (DGP IgA positive), I went crazy eating gluten until my endoscopy.  Because of work issues, I waited for seven weeks.  Seven weeks of saying goodbye to my favorite gluteny foods!  I knew what was coming going gluten free since my hubby has been gluten free for over 14 years.  I was eating a loaf of sourdough a day besides cakes and cookies.  Yum!  But the bad news was that by the time my endoscopy rolled around, I was experiencing tummy issues (just had anemia before).  So, my advice is to take time to say goodbye to gluten, but do not be a glutton (like me!)  
    • Gluten free diet, positive celiac screen...what should I eat now?
      It's okay if you have more than 1 cracker a day; the challenge is saying you must have at least 1 cracker a day so if you want to have more that's absolutely fine. In fact, if you want to gorge on all your favorite gluten goodies from now until the endoscopy then have at it because it looks like you'll be saying goodbye to it all after the endoscopy. You say it's about a month till you see the GI doc..... it will be longer until an endoscopy because the GI will have to order it & it will have to get scheduled.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,684
    • Most Online
      1,763

    Newest Member
    Nikkishine
    Joined