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Am I Having A Really Delayed Reaction To Dairy?
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I went gluten-free back in January. I also quit dairy at the time, but starting about a month ago, I started eating cheese again because it seems like it's not been affecting me in a noticeable way. However, I have been having a lot more stomach problems since coming to college regardless of my strictly gluten-free lifestyle (I live in an apartment and prepare my own food so no problem there), so it's really hard to say whether the cheese is making it worse.

Last weekend I went home for the first time and ate a LOT of cheese. I mean a lot. I was at friends' houses all weekend and somehow they had every kind of wonderful cheese that I hadn't had in 10 months and I gorged on it. And there seemed to be no effect! I continued to happily eat small bits of cheese this week without much of a second thought. Until tonight I woke up in the middle of the night with a bad upset stomach (or rather, intestines), and now I am left wondering and worrying. (also I wanted to add that I had bad gas for 24 hours prior to this)

Is it possible that my intestines are only now reacting to cheese I ate during the weekend, or the small amounts during the week? I have a fast metabolism, I would be surprised if food from 5-6 days ago was still in my system.

All feedback is greatly appreciated, I have never understood completely how the dairy side of this works, because I know it is sometimes a matter of lactose and sometimes the casein acting like gluten.

Thank you!

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Last weekend I went home for the first time and ate a LOT of cheese. I mean a lot. I was at friends' houses all weekend and somehow they had every kind of wonderful cheese that I hadn't had in 10 months and I gorged on it. And there seemed to be no effect! Thank you!

It may not be all the cheese you ate itself but the fact that you were eating the cheese at freinds homes who were likely not gluten free.

CC happens and gluten reactions can be delayed by up to a week or so.

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But had anyone else put a knife in that cheese that maybe had gluten crumbs on it? Or did you open the fresh package?

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I opened the fresh package, and it was precut.

Also, I'm not EXTREMELY sensitive to gluten, as far as I can tell. I think I am potentially sensitive to other stuff though, I have just never been able to figure out what, exactly.

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You could eliminate all dairy for a month and see if it makes a difference. Total elimination is a good test.

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Or it might be a bug. I thought I had gotten glutened a month or so ago, but it turned out there was a bug going around and all of my non-celiac friends had the exact same symptoms I had.

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Could be the dairy. I quit all dairy. I tested as not intolerant to it any more but the Dr. cautioned me that based on my reaction to it, I should not eat it. So I didn't for a long time. But then I reasoned... My daughter was no longer intolerant and it didn't bother her.

I ate some. I was fine. I ate some more. I was fine.

And then the day came. I would get nachos at Target and before I was even done with my shopping, I would have to run to the bathroom. I didn't want to believe that it was the nachos. I was in denial.

I got tested again. Intolerant to dairy. So no more dairy for me.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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