EE (Eosinophilic Esophogitis)
Posted 20 October 2012 - 07:09 AM
Posted 20 October 2012 - 07:54 AM
There are EoE peeps here on the forum. Some are here because gluten is one of their triggers. There is a known connection between EoE and Celiac. (JAMA Nov. 2011)
I don't want to burst your bubble, but allergy testing is not reliable to identify all "triggers" for EoE. An elimination diet is often a first line of defense to find "triggers". Like allergies the reaction is mainly caused by proteins. There are amino acid based formulas that can be helpful for nutritional supplements.
Please remember, I will always give advice on the experience from my daughter's case and the limited research available.
Posted 20 October 2012 - 05:13 PM
Standardized incidence ratio was 35.6 (95% CI, 9.3-79.0) for children, and 13.1 (95% CI, 6.2-22.5) for adults. Overall, age-adjusted and sex-adjusted standardized incidence ratio was 16.0 (95% CI, 8.7-25.5).
The above is what the study found, any idea what it means?? Does that mean 35.6% of celiac children and 13.1% in adults? Or am I getting it all wrong?
There is so clearly a connection between everything I have, it is starting to get me down though. Just another thing to add to the list!
Posted 22 October 2012 - 07:13 AM
It seems the standard care for a child at diagnoses...
modified Flovent inhaler(so the liquid is swallowed not inhaled)
an elimination diet (eliminate all top 8 allergens and peas)to identify "triggers"
complications are dealt with as they develop. pain~ sometimes rest and slurpees work wonders, constipation is a daily battle, headaches, bad breath and scratchy throat.
My daughter has not needed surgical dilation or a feeding tube.
All of her known triggers are kept out of the house. We have noticed there is a seasonal airborne connection/flare.
Posted 22 October 2012 - 04:50 PM
Posted 22 October 2012 - 05:11 PM
My daughter was scoped during the elimination diet. (everything was clear and normal) That's when we started challenging possible allergens and based on her reactions identified her triggers. She was scoped again when she had seasonal airborne issues. (it showed active damage, no where near her initial diagnoses damaged state. She was very close to being put on a feeding tube when she was first diagnosed)
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