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Hi there :)

my name is alexandra, i'm almost 21 and i'm a week out from getting the blood work back for my diagnosis.

my story is quite crazy. to keep it short, i've been reading this forum for about a year and decided to become a member today :) i'm trying my hardest to make the most out of this new life style.

i went to the doctor on and she said that with my symptoms, blood work really wasnt unnecessary; she's pretty sure I have a gluten problem. but I decided that for a peace of mind (and for my husbands peace of mind), I needed to get the blood work done. I've been gluten free off and on for a while, but I realize that I'm just being stubborn and I really do feel better not eating any gluten (went to Applebees last night, ordered gluten free and still got really sick today).

I'm just here for support.. and to support others if I can :)... this new life style definitely takes some getting used to!!

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Eeeek, applebees has a habit of having major CC issues :( not good.

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Welcome DATY!

Glad you have been able to determine your body doesn't like gluten.

Were you gluten-free in the months before your blood tests were drawn? If so, they may be falsely negative - even gluten-lite can reduce the amount of antibodies measured in the celiac panel.

It is also possible that you have Non-Celiac Gluten Intolerance. NCGI has many of the same symptoms of Celiac Disease, but no antibodies are produced in reaction to gluten consumption. The only test for NCGI is the complete elimination of gluten. Take a look at the "Newbie 101" thread and ask questions with anything that you find confusing. The transition is very tough, but it does get easier with time and knowledge.

Good luck to you :)

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Welcome DATY!

Glad you have been able to determine your body doesn't like gluten.

Were you gluten-free in the months before your blood tests were drawn? If so, they may be falsely negative - even gluten-lite can reduce the amount of antibodies measured in the celiac panel.

It is also possible that you have Non-Celiac Gluten Intolerance. NCGI has many of the same symptoms of Celiac Disease, but no antibodies are produced in reaction to gluten consumption. The only test for NCGI is the complete elimination of gluten. Take a look at the "Newbie 101" thread and ask questions with anything that you find confusing. The transition is very tough, but it does get easier with time and knowledge.

Good luck to you :)

thank you for the warm welcome! I'm still getting the hang of this forum..

I wish I had known about applebees infamous CC issues. I woke up feeling very ill and then it dawned on me :(

As for being gluten free before my test, I wasn't very strict... at all! teriyaki stir fry the Monday before my test and Diet coke (Carmel Coloring) the day before.

I also had no idea the many ways I was CC my body - spices, cooking pans, GV brand of food from WM.. :blink: I never even realized! so I'm pretty sure it'll come up positive.

I'm doing some research on the NCGI, thats very intersting! Never heard of it before.

I'm sure I'll be asking many many questions about my new life style, hopefully nobody minds!!

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Caramel color is not a concern. All Coke versions are gluten-free, as are all variations of Pepsi.

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hey alexandra! im in a similar position! im almost 21 and was just diagnosed celiac a couple of months ago! its tought to get into, but its great feeling so much better!

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
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    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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