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Hi there :)

my name is alexandra, i'm almost 21 and i'm a week out from getting the blood work back for my diagnosis.

my story is quite crazy. to keep it short, i've been reading this forum for about a year and decided to become a member today :) i'm trying my hardest to make the most out of this new life style.

i went to the doctor on and she said that with my symptoms, blood work really wasnt unnecessary; she's pretty sure I have a gluten problem. but I decided that for a peace of mind (and for my husbands peace of mind), I needed to get the blood work done. I've been gluten free off and on for a while, but I realize that I'm just being stubborn and I really do feel better not eating any gluten (went to Applebees last night, ordered gluten free and still got really sick today).

I'm just here for support.. and to support others if I can :)... this new life style definitely takes some getting used to!!

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Eeeek, applebees has a habit of having major CC issues :( not good.

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Welcome DATY!

Glad you have been able to determine your body doesn't like gluten.

Were you gluten-free in the months before your blood tests were drawn? If so, they may be falsely negative - even gluten-lite can reduce the amount of antibodies measured in the celiac panel.

It is also possible that you have Non-Celiac Gluten Intolerance. NCGI has many of the same symptoms of Celiac Disease, but no antibodies are produced in reaction to gluten consumption. The only test for NCGI is the complete elimination of gluten. Take a look at the "Newbie 101" thread and ask questions with anything that you find confusing. The transition is very tough, but it does get easier with time and knowledge.

Good luck to you :)

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Welcome DATY!

Glad you have been able to determine your body doesn't like gluten.

Were you gluten-free in the months before your blood tests were drawn? If so, they may be falsely negative - even gluten-lite can reduce the amount of antibodies measured in the celiac panel.

It is also possible that you have Non-Celiac Gluten Intolerance. NCGI has many of the same symptoms of Celiac Disease, but no antibodies are produced in reaction to gluten consumption. The only test for NCGI is the complete elimination of gluten. Take a look at the "Newbie 101" thread and ask questions with anything that you find confusing. The transition is very tough, but it does get easier with time and knowledge.

Good luck to you :)

thank you for the warm welcome! I'm still getting the hang of this forum..

I wish I had known about applebees infamous CC issues. I woke up feeling very ill and then it dawned on me :(

As for being gluten free before my test, I wasn't very strict... at all! teriyaki stir fry the Monday before my test and Diet coke (Carmel Coloring) the day before.

I also had no idea the many ways I was CC my body - spices, cooking pans, GV brand of food from WM.. :blink: I never even realized! so I'm pretty sure it'll come up positive.

I'm doing some research on the NCGI, thats very intersting! Never heard of it before.

I'm sure I'll be asking many many questions about my new life style, hopefully nobody minds!!

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Caramel color is not a concern. All Coke versions are gluten-free, as are all variations of Pepsi.

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hey alexandra! im in a similar position! im almost 21 and was just diagnosed celiac a couple of months ago! its tought to get into, but its great feeling so much better!

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    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
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