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Hematuria & Gluten Intolerance?
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Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

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I would not self diagnose. Sounds like something other than celiac. You could be doing more harm to yourself by not having more invasive testing done. Has your GP not recommended that? Just my opinion, but that's what I would do. Celiac is quite serious and even if you do have it and are"treating" it right now, you could have some other issues related to having the celiac for an unknown amount of time.

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Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

Some people do seem to have issues with the urinary tract that is related to Celiac. I am actually trialing gluten free, to see if I can clear up the same problem. I always have trace blood in my urine and abnormal cells. They tell me the cells are probably due to inflammation somewhere. Celiac can cause inflammation. I was thoroughly checked, to make sure that it was nothing else. Urologist has run all kinds of test, but can find no answers. I have been told that some people just have the microscopic blood, and as long as everything else is fine, not to worry about it. I will be curious to see if gluten free helps. I do know that my knees feel great, I can bend them completely. I was able to climb on a chair using my left leg to push off with the other day. My knees haven't been strong enough to do that in a very long time! So I apparently had inflammation in my knees, that I didn't even know I had. I just attributed it to age and weight! HTH

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I have always had blood in urine too

New urologist just gave me new DX of IC

Anyone have some info on that for me?

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Hi,

I'm new here. I've had microscopic amount of blood in my urine all my life - couldn't figure it out. After years of testing and anoying UTIs etc, I was diagnosed with interstacial cystitis.

About 4 years ago I started having a huge amount of stomach issues, plus sinus problems. Also, at the time, I believe I was having a lot of pasta. I was always sick and tired.

About 2 years ago, I started getting these sinus "headaches" that a neuro diagnosed as migraines. But I'm not so sure they are.

My stomach is better except I always tend to be bloated.

My doc tested for celiac bec. my Vit D level was low and I had no energy. It came back negative.

But I'm wondering if I do have a gluten sensitivity.

I went to a chriropractor, which is a little out of my comfort zone and he suggested a food test - which I'm not sure why he wanted to do it. Anyway, the results said I have an issue with dairy, wheat, yeast, eggs.

(1) I don't know if this test is valid and (2) I'm wondering if I do have a gluten sensitivity.

I don't know where to start, I just want these sinus headaches to go away.

Has anyone had similar to above, particularly with sinus issues?

Also, my B12 was extremely high, 2000, and I have no odea why.

I'm scared. I'm 41 and feel like I'm 90.

Thanks.

Jill

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    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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