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Hematuria & Gluten Intolerance?
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Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

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I would not self diagnose. Sounds like something other than celiac. You could be doing more harm to yourself by not having more invasive testing done. Has your GP not recommended that? Just my opinion, but that's what I would do. Celiac is quite serious and even if you do have it and are"treating" it right now, you could have some other issues related to having the celiac for an unknown amount of time.

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Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

Some people do seem to have issues with the urinary tract that is related to Celiac. I am actually trialing gluten free, to see if I can clear up the same problem. I always have trace blood in my urine and abnormal cells. They tell me the cells are probably due to inflammation somewhere. Celiac can cause inflammation. I was thoroughly checked, to make sure that it was nothing else. Urologist has run all kinds of test, but can find no answers. I have been told that some people just have the microscopic blood, and as long as everything else is fine, not to worry about it. I will be curious to see if gluten free helps. I do know that my knees feel great, I can bend them completely. I was able to climb on a chair using my left leg to push off with the other day. My knees haven't been strong enough to do that in a very long time! So I apparently had inflammation in my knees, that I didn't even know I had. I just attributed it to age and weight! HTH

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I have always had blood in urine too

New urologist just gave me new DX of IC

Anyone have some info on that for me?

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Hi,

I'm new here. I've had microscopic amount of blood in my urine all my life - couldn't figure it out. After years of testing and anoying UTIs etc, I was diagnosed with interstacial cystitis.

About 4 years ago I started having a huge amount of stomach issues, plus sinus problems. Also, at the time, I believe I was having a lot of pasta. I was always sick and tired.

About 2 years ago, I started getting these sinus "headaches" that a neuro diagnosed as migraines. But I'm not so sure they are.

My stomach is better except I always tend to be bloated.

My doc tested for celiac bec. my Vit D level was low and I had no energy. It came back negative.

But I'm wondering if I do have a gluten sensitivity.

I went to a chriropractor, which is a little out of my comfort zone and he suggested a food test - which I'm not sure why he wanted to do it. Anyway, the results said I have an issue with dairy, wheat, yeast, eggs.

(1) I don't know if this test is valid and (2) I'm wondering if I do have a gluten sensitivity.

I don't know where to start, I just want these sinus headaches to go away.

Has anyone had similar to above, particularly with sinus issues?

Also, my B12 was extremely high, 2000, and I have no odea why.

I'm scared. I'm 41 and feel like I'm 90.

Thanks.

Jill

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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