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Hematuria & Gluten Intolerance?
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Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

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I would not self diagnose. Sounds like something other than celiac. You could be doing more harm to yourself by not having more invasive testing done. Has your GP not recommended that? Just my opinion, but that's what I would do. Celiac is quite serious and even if you do have it and are"treating" it right now, you could have some other issues related to having the celiac for an unknown amount of time.

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Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

Some people do seem to have issues with the urinary tract that is related to Celiac. I am actually trialing gluten free, to see if I can clear up the same problem. I always have trace blood in my urine and abnormal cells. They tell me the cells are probably due to inflammation somewhere. Celiac can cause inflammation. I was thoroughly checked, to make sure that it was nothing else. Urologist has run all kinds of test, but can find no answers. I have been told that some people just have the microscopic blood, and as long as everything else is fine, not to worry about it. I will be curious to see if gluten free helps. I do know that my knees feel great, I can bend them completely. I was able to climb on a chair using my left leg to push off with the other day. My knees haven't been strong enough to do that in a very long time! So I apparently had inflammation in my knees, that I didn't even know I had. I just attributed it to age and weight! HTH

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I have always had blood in urine too

New urologist just gave me new DX of IC

Anyone have some info on that for me?

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Hi,

I'm new here. I've had microscopic amount of blood in my urine all my life - couldn't figure it out. After years of testing and anoying UTIs etc, I was diagnosed with interstacial cystitis.

About 4 years ago I started having a huge amount of stomach issues, plus sinus problems. Also, at the time, I believe I was having a lot of pasta. I was always sick and tired.

About 2 years ago, I started getting these sinus "headaches" that a neuro diagnosed as migraines. But I'm not so sure they are.

My stomach is better except I always tend to be bloated.

My doc tested for celiac bec. my Vit D level was low and I had no energy. It came back negative.

But I'm wondering if I do have a gluten sensitivity.

I went to a chriropractor, which is a little out of my comfort zone and he suggested a food test - which I'm not sure why he wanted to do it. Anyway, the results said I have an issue with dairy, wheat, yeast, eggs.

(1) I don't know if this test is valid and (2) I'm wondering if I do have a gluten sensitivity.

I don't know where to start, I just want these sinus headaches to go away.

Has anyone had similar to above, particularly with sinus issues?

Also, my B12 was extremely high, 2000, and I have no odea why.

I'm scared. I'm 41 and feel like I'm 90.

Thanks.

Jill

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    • Hi, Ok good advice and I am sincere when I say how much I appreciate a lot of the responses, advice and encouragement that have been posted here. I'm not sure what a nutrionist is but a dietician (here in the U.K.) is a heavily regulated medical profession and my dietician is based most of her week in a hospital where doctors and MD's as they are known refer patients to her for help. She works every day with celiacs, dh sufferers and people with crohns, ibs etc and seeing my skin, listened to what I was saying (particularly about how my redness and blisters resolved on a gluten free (though not wheat free) diet for several years, and sent a report to my doctor/MD requesting a battery of tests - tests that can indicate dh, celiac and associated complications. I also have a friend with a wheat allergy and two with celiac (all diagnosed) and they are encouraging me to go ahead with getting these particular tests. So that's great but reading the above quote that suggests that situations like sharing an oven used to cook gluten-containing pizza, should not cause a gluten reaction. I thought, my god what's the point of going through these tests if my recent reactions aren't actually to do with gluten. Although my dietician is concerned about possible dh and has been through years of medical school, I also really trust the advice of an advanced member on this site and if they think oven-sharing shouldn't cause any gluten reaction, what hope do I have with an MD? It has taken me years to pluck up the confidence to ask for any medical help because I feared that sort of response along with a focus on psychological issues and hormones etc early on in the thread (even though, I only started feeling depressed since yesterday). Actually, I'm a mental health nurse so it's good to see people are alert to these issues but I am also pretty familiar with depression and I know that many people with physical health problems are fobbed off by doctors with talk of depression, stress, and hormones. I'm sorry that I took the (above) quote to heart and I know that I allowed that to colour my perception of the whole thread, which has been helpful in many ways. Best wishes to you all, even those I didn't agree with! Rhian 
    • I thought maybe doing a trial period to see if he reacts positively to being gluten free and then adding it back to see if symptoms come back would maybe be helpful to the doctor? But I guess that's true, it might skew things regarding any future tests that might be warranted. 
    • If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms.  There will also be a higher risk of false negatives.
    • I did not mean to imply that you should put him on a gluten free diet.    If you suspect a problem with gluten, please get an opinion from a GI who is celiac savvy.  All celiac testing requires a patient to be consuming gluten.  The slightly equivocal TTG?  That warrants a gene test at the very least.   http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf  
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