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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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Wolff
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5 posts in this topic

Hi everyone!

I've been gluten free for three years now and doing great except for the occasional accidental glutening. I know I just got glutened again and I really suspect the Wolff

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I've been recommending this to my daughter, who is less sensitive than I am. I thought it was fairly safe. I think that I have reacted to it periodically, but that it was mainly good. I hope that you find out that it was something else. Can you please let me know? I generally stick to the groats because then I can see if there is something in there that doesn't belong. I think that they buy buckwheat from a lot of farmers so there could be a lot of variables.

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I would be getting after your Whole Foods store to resume carrying the Pocono brand. I mean, they have these clerks all the time saying "did you find everything you need?" and not carrying the safe brand of gluten free buckwheat in a supposed "health food store" doesn't do anyone any good. It's bad enough that I can't use so many of their house brand packaged goods of plain ingredients, such as nuts, that would be the usual ingredients in gluten free cooking, because they are processed in a facility with wheat. :angry:

I like buckwheat, but it was only Rice Guy's suggestion to try the Pocono brand that kept me from giving up on it, some of these other brands had oat or "other" cross contamination. I try to find the groats, as d-steph says, so I can eyeball them for alien visitors :P before grinding them in a coffee grinder for flour. (a little of the flour goes a long way in recipes). With crop cycles coming and going, my spouse does not quite get why I keep more than one little box around.... it's only a 50 to 70 mile round trip finding the stuff.

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MMM I love Pocono cream of Buckwheat!!! I had it the first time the other day and I made it like I use to make cream of wheat halof water half milk with some butter. I ate it like grits and than I ate the left overs the next day and put sugar in them. I was ecstatic it almost tasted like cream of wheat (which I havent had in three years),

You can also order it on line through some of these health companies order your other staples at the same time so the shipping costs will be worth it.

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I just tried the Pocono cream of buckwheat! So good. I made it with almond milk, added vanilla bean pure maple syrup and sliced bananas. So good! Paired it with 2 scrambled eggs for a complete breakfast.

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    • 3 months gluten-free still feeling cramps
      Glad to help!   Never stop advocating for your health.  Be patient (that's the really hard part), but it is possible to feel well and recover from celiac disease.  Of course, you'll always have to avoid gluten as if it were rat poisoning, but there are worst things to worry about!    It is nice to have a resource like Celiac.com.  It is anonymous, so you don't have to be embarrassed about asking what you may think are dumb questions.   Hang in there!  
    • Ghirardelli Chocolate Chips
      Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley.    Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with.  To reiterate, our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Sincerely,  Ghirardelli Consumer Services
    • Ghirardelli Chocolate Chips
      They seem to be good about saying things may contain wheat when their products are made on shared equipment, for example their ground chocolate which I no longer use.   This is the reply I got a year ago (March 2015) when asking about their 60% cacao chips. "Dear Consumer, There is no wheat in our 60% chips and no wheat in our chips facility, as such, no wheat is run on the same line as any of our chips. Sincerely, Consumer Affairs Response Team"  
    • 3 months gluten-free still feeling cramps
      Thank you so much for the info, I did replace all my cooking wares and I did just recently stop dairy (about 3 weeks ago). I guess I have to keep it going, thank you once again, this give me more courage to continue my quest in feeling better.
    • Ghirardelli Chocolate Chips
      Hey guys,  I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is what I received back:
      "Thank you for contacting Ghirardelli Chocolate Company.  We appreciate your interest in finding out about the ingredients in our products and your interest in a gluten free product.

      At this time we do not offer any "gluten free" products, but appreciate your interest in seeing whether Ghirardelli offers one.  Our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Please reference the ingredient information, on our packaging for any Ghirardelli product that you are interested in, to determine if it is suitable for you.

      Please know you are a valued consumer and we do appreciate your interest in our products.

      Sincerely,

      Consumer Affairs Response Team"   I asked them to please clarify - are your products testing over 20ppm? Or you don't test them at all? I also asked about the lines that the chocolate chips are made on because the ingredients do not indicated any problems. The customer service rep sent me the exact same message back with one of the lines underlined. I emailed again, and they don't seem to want to disclose any more information.   Has anyone else had any luck talking with them lately? Insights on the chocolate chips?
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