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Question About Accidental Gluten-Eating
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Hi, everyone. We decided to take our son (7) gluten-free on October 3. Anyway, until yesterday, we feel pretty good that he's been gluten-free. The new GI we saw was pretty unwilling to classify him as celiac (though acknowledges the existence of non-celiac gluten intolerance) because our son had a negative biopsy in June 2010. After an x-ray, our son was deemed very constipated and was told to take Miralax. While we gave it to him, and were willing to make the nutritionist appointment as recommended by the GI, we also decided, on our own (and after much advice from this forum!) to take him gluten-free. Interestingly, he had NO reaction to the Miralax at all, but feels his stools are more normal now. We've been gradually reducing the Miralax dose (and he started with a whole capful). That adult dose did not incapacitate him as predicted by the GI. Yet, somehow, his stools have become smaller since taking it (and since we've taken him gluten-free).

Anyway, yesterday, he was given Twizzlers at a birthday party. My husband had no clue those have gluten. For some reason, I've known this for several years. I know that less than three weeks is too soon to know anything about whether our son is responding to the diet. He claims to have had no reaction to eating the Twizzlers (I asked him, separately, how he's been feeling, even before mentioning the Twizzlers).

Am I right that three weeks is too soon to know anything? And how much of a setback is this? We're trying to see if our kid starts to grow/gain weight, and realize that, at some point, it might be clear that gluten is not his problem (although, again, he says he feels better, digestively, without it). Are we on Day 1 again because of this?

My husband felt badly, and admits that he would not have messed up if our son was actually diagnosed with celiac. That's why the GI doctor wasn't recommending a gluten-free diet for gluten intolerance. He thinks it's too difficult to follow. It's annoying that he was proven right. My son has otherwise been doing well, even turning down bread from forgetful-but-well-meaning-teachers.

Thank you (and thanks to everyone for the previous advice--it was very helpful!!)

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Everyone has hiccups when starting out, dont beat yourself up. My husband accidently fed me 3 wholemeal bread rolls when I was 3 weeks gluten-free.

I am 7 weeks now and getting the hang of it more.

Worth sticking with it and it is unlikely he is back at day 1. If nothing else, you are learning about the diet.

I always stash snacks in my bag for things like parties and playdates - gluten-free for me nut free for my son

Good luck

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Thank you! We did notice that our son, while having no direct complaints, seemed to be constipated (or, at least stopped up) again yesterday. We are pretty sure he actually has celiac, but were hopeful this wouldn't be too much of a setback. Thanks again for the reassurance!

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I agree - tell your hubs to try not to feel bad - I know mine always did each time he's made a mistake with ingredients - we both cook. It happens - more frequently in the early days, but accidents will happen again. Each accident will not reset your son back to day one - although he may develop a few more symptoms to accidental glutening as his time gluten-free increases.

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We're five and a half years into this and my husband glutened my daughter within the last year with regular Rice Krispies at a hotel . . . "Hey, she eats Rice Krispies at home, she can eat them here" . . . he didn't realize there are two versions.

It happens.

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Thank you, everyone. We will try to mellow out--well, I will (my husband couldn't be any more mellow).

It turns out that the nutritionist decided our son should be treated as having celiac after hearing the family history, the slow growth, the minor symptoms after having the licorice, and our willingness to have started the gluten-free diet on our own. She gave us all the celiac diet materials, talked about vitamins, etc. The GI doc is sticking with non-celiac gluten intolerance, but we're feeling supported by them, which is good!

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Funny how much easier the gluten free diet is to follow for just gluten intolerance, if you are sick enough to start out with :rolleyes:

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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