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Possible Dh? (Pics)
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Good afternoon all :)

I am sure this is a stretch, but wondering if anyone could take a few moments and look at my pics to see if they believe I may be in the middle of a DH outbreak. With the swelling involved, I was assuming they were bites, however this has happened multiple times over the past two months and will be very random in nature as to when it appears. I can not pinpoint any specific cause...I only know it is unbearably itchy and inflamed when it occurs. The itch is so intense that I rotate hydracortisone and benadryl with minimal effect on the problem. If I itch the areas/rub the areas the swelling seemed to extend further out in the initial inflammation period. These most recent pics were taken starting Friday, Saturday, Sunday, and today Monday to show the progression. Once inflammation goes down you can see the smaller blisters that are fluid filled. I will get the small blisters on other areas of my body, not just wrist area. This has happened on lower face/chin, above knee/upper leg, and arm. I seem to always have areas sporadically that will be blisters that break open with the clear fluid. They will last quite some time and always leave a scar. The scar starts out a purple-ish red and then over time will fade a bit.

I have been food-allergy tested and am told I have 28 food allergies, but I cannot seem to figure out how one would eliminate that many foods, so I haven't eliminated any foods at this point. My allergist basically gave me an epi-pen, told me to not eat the offending foods, and sent me on my way to figure it all out. This is my second round of testing ( a year later ) which confirmed the allergies. He basically told me to avoid all vegetables (Beans/Peas were high allergen), Wheat, Corn, Rye, Barley, Soy, Potato, Tomato, Carrrots, Celery, Cinnamon, essentially all nuts...etc. Meats & dairy were A-OK but I am lactose intolerant.

Soooo....the pics:

This is right when it started:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2887_zps43d40646.jpg.html?o=9

Itchy/inflamed if even touched:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2914_zpsa5e221ae.jpg.html?o=6

Another pic...after inflamation started to go down:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2918_zps51e64e0f.jpg.html?o=4

After shower (super itchy in shower):

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2958_zps08ceb624.jpg.html?o=3

In daylight, inflammation going down and you can now see the blisters:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2961_zpse70bb7c3.jpg.html?o=1

Today the inflammation is much less, but blisters are noticeable:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2967_zps51c0950d.jpg.html?o=1&newest=1

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_2971_zpsc705ae1a.jpg.html?o=0&newest=1

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I stopped trying to Id DH visually, so in really if no help.

Of you have a reaction to gluten or iodine (meaning it makes your rash worse) its a good hint it's DH.

I'm sure some here will say it looks like DH, others will say no.

DH usually has a 2 week (or so) life, and tends to itch more at particular times of day (later into evening). The sores usually swell and fill at night, drain, repeat for almost a week then start drying up. But as sure as I just said that, someone will disagree with me.

If you think it's DH, try going gluten-free and perhaps low iodine for a few months. If things improve you'll know you're into something. You could also ask a dermatologist for a biopsy.

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Thanks for the response. I would take te breakouts/itching any day over the severe stomach pain that afflicts me daily. My stomach literally revolts 24/7. It's just mentally exhausting. Was hoping that all if the symptoms together would provide a clue. Going just gluten free has never helped me completely as I have other allergies. Unfortunately I guess I am just one if those people who will be "out of luck" and have to live in pain:/ Hard to accept, but after this long I've given up hope.

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Well, quite frankly, all you can do is try.

Pick a group of foods and avoid them, keep a food diary, and see what happens.

I certainly understand what it is to be in constant pain, and don't wish it on anyone.

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Thanks for the reply. I will do my best. I know people here can't really give me answers without knowing history, test results, etc. Was just a random shot in the dark and a silent prayer for an answer/pain relief. :) My kids deserve me at my best...and I am really trying for them. If they were older I wouldn't be as worried.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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