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I'm completely new to this whole thing. Celiac and the message boards here. I was diagnosed with celiac just a week ago after having an endoscopy and blood tests. I feel like I should mention I'm a 20 year old female too. I had to wait until this past weekend to go completely gluten free because that's when we have the money to go grocery shopping and I had nothing in the house that was gluten free basically. But anyways, I started being Gluten-Free just Saturday, so only two days ago. I know it's going to take a little time to get better and everything but I've felt terrible these last couple days. I'm more nauseous now than I was when eatin gluten. And I know I'm not eating anything with hidden gluten since everything i have eaten in the last few days all say gluten free right on the packaging. I haven't felt so nauseous before. I'm just wondering if this is totally normal, like if its just my body adjusting to the change or some kind of detox type thing. Because, before I was diagnosed, I of course felt sick but this is worse. I haven't actually vomited but I've never felt this extreme nausea in my life. And it's only been like this since I stopped eating gluten. Like I said, I'm very very new to celiac and am still learning about what I can and can't have so I really am just curious. Thank you to anyone who can help!!!



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Ashley, go to the "Newbie 101" thread and read and heed all that you see there. Then read as much as you can in other threads, especially the ones under "coping with". There is a lot to learn, including the fact that not everything labeled gluten-free actually IS gluten-free. Stick with whole foods for a few months - plain meats, fresh fruits and vegetables. Foods like that have only one ingredient so there isn't much chance of cross-contamination.

Expect to go through gluten withdrawal. You will probably get headaches at first, and be really hungry all the time. Eat lots of small meals or snacks. Have a piece of fruit. Bake a potato. Chew on a piece of chicken. Make sure you get enough protein. If you can tolerate nuts, they make a good snack, but be aware that a lot of canned nuts are made in a facility that processes gluten foods and so can be cross-contaminated. Planters nuts are OK if you read the label.

Reading labels is IMPORTANT! If a label says, "made in a facility that processes wheat", you MAY be OK with it, but then again you may not. Personally, I won't touch any food that says that. And you need to get in the habit of reading the label EVERY time you buy something. Companies change their recipes all the time depending on the availability of ingredients. Something you bought last week might be OK, but this week the ingredients may be different.

You need to check all medications too. Most are made with corn, but some have gluten. Your lipstick may have gluten too.

I know it sounds overwhelming, but take it one small step at a time. If you start with just whole foods, then after reading here and learning about labels and cross-contamination, you will be fine. Expect to have setbacks. We all did/do. But you are on the path to good health, and we are here to help you.

Feel free to ask as many questions as come to mind, and if you need to rant or whine or cry, feel free to do that here too. The wonderful folks here saved my sanity by allowing me to vent. We're all in the same leaky boat, and with each other's help, we will all be, not only fine, but we will thrive. :)


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Hi Ashley,

The start can be kind of rough going, and it may take a while for things to settle down in your GI system. People often report they get more sensitive to gluten after going gluten-free. probably it is that they notice the symptoms more too. You got some good advice from Bartful already. Your gut has lots of bacteria in it and you have just changed their daily diet without asking their permission. Good heavens, the nerve! :) Kidding about the permission, but it is a big change. Those bacteria can die off and make you feel bad, and other strains can take their place. Probiotics and a simple, low sugar diet can help. Not eating lots of processed gluten-free foods is also helpful. Try some Mission corn tortillas or taco shells instead of gluten-free bread. Much cheaper and easier to digest, as long you don't have a problem with corn anyway. your small intestine is around 20 feet long so there is a lot of tissue that needs to heal. That healing process can vary quite a bit time-wise, but the cleaner/simpler you keep your diet the quicker it is likely to happen.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

Newbie Info 101

What Are You Cooking Tonight?

Easy yummy bread in minutes


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I was a tad bit nauseated early on. I think it was because I was eating too many processed gluten-free foods. Try not to eat a large amount of packaged foods if you can; many gluten-free foods are nutrionally very poor and can do a number on your tummy if you eat a bunch.

Withdrawl could be an issue too. I felt pretty poor my first couple of weeks but it did improve greatly after that.

Stress could be a factor too. You've been through a lot and that can throw your body out of whack and irritate pre-existing autoimmune problems like celiac.

Hang in there.


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    • I have the same symptoms.  These symptoms have overlapped other issues that I have and have been left untreated for far too long. Now the pain has gotten worst. My GP believes it's my hiatal hernia.  I have pain below my breastbone, pressure pushing up my chest/throat, dizziness and nausea. 
    • Usually I'm using apps to tell me what celiacs have thought about the restaurants in the area and repeatedly eating at a few different places I haven't gotten sick. Now that I think about it, gluten was a definite possibility. I ,however, just got all negative results from all the following tests so I'm guessing I'm doing ok on that front. -Basic metabolic panel -Liver enzyme panel -CBC -Serum IgA -Tissue transglutaminase(tTG), IgA -Tissue transglutaminase(tTG), IgG -Thyroxine(T4), free direct serum -Thyroid stimulating hormone I thought the same thing about positive antibodies and non-celiac sensitivity reading this; l'm seeing his nurse practioner in two weeks so I'm going to take this and basically argue with what he said and see how that goes haha. I'm gonna guess not real well. I'm going to push being tested for other autoimmune diseases in addition.  
    • I was dx with duoedenitis end of August. No mention of a stomach, esophagus or duoendal ulcer. Just a small hernia. Less then 2cm. But I have a LOT of pain right below the breast bone and I jumped when it was recently touched on exam. I can even feel a small bump in the area. I feel so dizzy and unwell, like some kind of bacteria is invading my brain and am very queasy still.  My heart still feels weird too.  Bloodwork normal, a bit low on protein which is unreal because I get a ton of it but it is always is low if I have not eaten. Mildly elevated myeloycytes and basophils. My GI will probably not see me for a week or two, my primary care put me on sucralfate.  As soon as the food hits my digestive system I feel really weird all over, stomach, chest, throat, head. Just feel like I have this horrible thing infecting my body.  Did anyone feel ulcer pain and have it NOT be an ulcer? I suppose one could have developed since August. 
    • Hi AWOL, Since you weren't able to complete the 2 weeks gluten challenge for the endoscopy the results are not necessarily reliable.   So to be err on the side of caution I think you should assume you have celiac disease.  Your doctor should not assume you don't have it either since the challenge was not completed.  He has no proof that you don't have celiac disease.  He does have evidence that you have negative reactions to eating gluten though.
    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
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