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Dh?
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OK...last of the pics, I promise :-)

In the post earlier I sent links of pics I had taken of my most recent outbreak. This hive'ish swelling before turning into little blisters has happend a few different times in the last 2-3 months.

While thinking about it further, I realized some of the little bumps I always blow off may be DH related. Maybe? I have always had these little red breakouts by my hairline, on my shoulders, and on arms. They aren't terribly itchy in comparison to the welts in my previous post, but I literally can't remember a time "not" having red breakouts in these spots (hairline/shoulders/arms).

Maybe I am just fair skinned and sensitive...I don't know. I would just love to have a fix for the tummy issues I've been plagued with for so long, so I am hoping these little bumps prove to be "clues".

Hairline:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3024_zps8cd4e787.jpg.html?o=0&newest=1

Hairline:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3017_zpsa6c8ed16.jpg.html?o=1&newest=1

Shoulder:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3008_zpscf778143.jpg.html?o=2&newest=1

Arm:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3006_zpse56b2396.jpg.html?o=3&newest=1

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These photos look like my DH when it first started 10 years ago. I initially thought that my skin was sensitive, or that I was getting some kind of bug bites. Over time it got worse and worse and spread over more and more of my body in larger patches that blistered over and over again.

Try to get it figured out ASAP because you might be able to avoid the years of suffering that many of us have dealt with. You skin looks pretty good at this point and you don't want to end up with the scars, dark spots and white spots that years of DH can cause.

Good luck.

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The bumps scar and leave little purple patches that last for months as eventually, 6-mos to a year or so they become white/pale. It's never numerous, but I understand that time may come. I don't even mind the breakouts as much as my tummy pain unfortunately:/ I will try gluten free again...but I feel I have so much stomach damage and other food allergies that its just a lost cause. I stop gluten, then in a week or two when I still have stomach issues I give up. It's hard to deprive yourself of so many foods when food is all you have left as a means if comfort for the pain you are in :/

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I think you really need to give gluten free a really good, 6 month long try. I read your other thread & 2 weeks are not going to do it. Your tummy troubles won't resolve in that time either. You say you have tried gluten free before but always go off in 2 weeks. Well, maybe you weren't really even gluten free. There is a very steep learning curve to the diet & there are cross contamination issues when living in a shared household with gluten eaters. You need to learn how not to get cc'd (cross contaminated). You say you have so many other food allergies ---- those may be correct or not --- they may be because your gut is ravaged from gluten & that's the root of the problem.

I think this may help put you on the right track:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

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I had a doctor tell me that eggs, milk and soy are very similar to gluten and I should eliminate those for a year to let your body heal. Chances are, you can then reintroduce. Not sure how common of a recommendation that is though? She has been one of the few docs I've talked to that seems pretty knowledgeable about this stuff and gave me lots of great info so far.

I'm feeling pretty good as long as I am super strict with the gluten so I continue eating both eggs and dairy but if you are still having GI issues you might want to look into it some more.

By the way, the pics look very much like my DH as well.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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