Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dh?
0

5 posts in this topic

OK...last of the pics, I promise :-)

In the post earlier I sent links of pics I had taken of my most recent outbreak. This hive'ish swelling before turning into little blisters has happend a few different times in the last 2-3 months.

While thinking about it further, I realized some of the little bumps I always blow off may be DH related. Maybe? I have always had these little red breakouts by my hairline, on my shoulders, and on arms. They aren't terribly itchy in comparison to the welts in my previous post, but I literally can't remember a time "not" having red breakouts in these spots (hairline/shoulders/arms).

Maybe I am just fair skinned and sensitive...I don't know. I would just love to have a fix for the tummy issues I've been plagued with for so long, so I am hoping these little bumps prove to be "clues".

Hairline:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3024_zps8cd4e787.jpg.html?o=0&newest=1

Hairline:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3017_zpsa6c8ed16.jpg.html?o=1&newest=1

Shoulder:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3008_zpscf778143.jpg.html?o=2&newest=1

Arm:

http://m1354.photobucket.com/albumview/albums/SLB5757/Mobile%20Uploads/IMG_3006_zpse56b2396.jpg.html?o=3&newest=1

0

Share this post


Link to post
Share on other sites


Ads by Google:

These photos look like my DH when it first started 10 years ago. I initially thought that my skin was sensitive, or that I was getting some kind of bug bites. Over time it got worse and worse and spread over more and more of my body in larger patches that blistered over and over again.

Try to get it figured out ASAP because you might be able to avoid the years of suffering that many of us have dealt with. You skin looks pretty good at this point and you don't want to end up with the scars, dark spots and white spots that years of DH can cause.

Good luck.

0

Share this post


Link to post
Share on other sites

The bumps scar and leave little purple patches that last for months as eventually, 6-mos to a year or so they become white/pale. It's never numerous, but I understand that time may come. I don't even mind the breakouts as much as my tummy pain unfortunately:/ I will try gluten free again...but I feel I have so much stomach damage and other food allergies that its just a lost cause. I stop gluten, then in a week or two when I still have stomach issues I give up. It's hard to deprive yourself of so many foods when food is all you have left as a means if comfort for the pain you are in :/

0

Share this post


Link to post
Share on other sites

I think you really need to give gluten free a really good, 6 month long try. I read your other thread & 2 weeks are not going to do it. Your tummy troubles won't resolve in that time either. You say you have tried gluten free before but always go off in 2 weeks. Well, maybe you weren't really even gluten free. There is a very steep learning curve to the diet & there are cross contamination issues when living in a shared household with gluten eaters. You need to learn how not to get cc'd (cross contaminated). You say you have so many other food allergies ---- those may be correct or not --- they may be because your gut is ravaged from gluten & that's the root of the problem.

I think this may help put you on the right track:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

0

Share this post


Link to post
Share on other sites

I had a doctor tell me that eggs, milk and soy are very similar to gluten and I should eliminate those for a year to let your body heal. Chances are, you can then reintroduce. Not sure how common of a recommendation that is though? She has been one of the few docs I've talked to that seems pretty knowledgeable about this stuff and gave me lots of great info so far.

I'm feeling pretty good as long as I am super strict with the gluten so I continue eating both eggs and dairy but if you are still having GI issues you might want to look into it some more.

By the way, the pics look very much like my DH as well.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,566
  • Topics

  • Posts

    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
    • So far dairy seems to be OK, as are eggs. I like canned chickpeas so will carry on with those. Beans I had ruled out at one point with the doctor's recommendation to go with the low FODMAPs diet but will reintroduce those now I know it probably wasn't that causing the problems.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,647
    • Most Online
      3,093

    Newest Member
    iFitCeliac
    Joined