Feeling Worse After Feeling Better
Posted 24 October 2012 - 02:47 AM
I've been reading the forum a lot since this summer when I got the suspicion that I have celiac. It's always helped a lot to read about stories similar to mine. Thank you for that!
I've had an eczema type of rash on my hands for 4 years and that is what made me look for answers for the last few years. The rash actually started at the same time as an occasionnal bloating and some pain on the left side of my belly button. Doctors didn't say anything helpful and the mild symptoms didn't bother me much for the first two years. Then my rash got worse and I got into a long depression which I thought was due to me moving abroad and being lonely. In the last year or so additional symtoms arised, like UTIs and tonsil inflammation which both would go away and come back often. I've had trouble getting up in the mornings for 6 years now and I used to sleep 9-10 hours and wake up as a zombie.
So in the summer I read about celiacs and realized that it might be the answer for all my symptoms. I went through testing. Everything came back negative but I was already gluten free when tests were done and my health was improving. I definitely have a reaction to gluten. My UTI comes back every time I accidentaly eat it and I have GI symptoms, too that I didn't use to have before going gluten free or at least I didn't notice them...
I've been gluten free for 4 months and at the beginning everything seemed fine. Eventually. I got rid of lactose, too because it seemed to be bothering me. Exactly a month ago I bought some muffins that were on the gluten free shelf in the supermarket. After eating all 6 of them I realized they were made of wheat flour. I got my UTI symptoms the next they (with blood in my pee) and they lasted for about two weeks. My problem is that since the glutening I don't seem to get back to my improved state. Even though the UTI is gone, I am having GI symtops, mostly bloating and pain on the left side of my stomach and I'm sleeping a lot again and don't have much energy. Before the glutening I've been eating lactose again and now I'm trying to get rid of it at least for a while and I'm also not sure whether grains are good for me.
Anyways, I would appreciate any ideas on my situation or even just supporting words because the last month have been really difficult waiting for all the glutening symptoms to go away. Do you think it's possible that the glutening brought back my lactose intolerance? Does it happen to any of you, too?
Thanks so much for taking the time to answer!
Posted 24 October 2012 - 06:25 PM
Posted 24 October 2012 - 07:00 PM
Some of us become more sensitive to minor amounts of gluten as time gluten-free increases - is it possible you could be getting minute amounts of gluten from cc at home or while dining out - thus keeping the symptoms of the muffin mishap going?
If you improved by removing lactose when first gluten-free, I'd remove it again now - give the gluten-free/lactose free time before removing more items.
There are many up and downs while your digestive system recovers - you are not alone - it is possible that you have become intolerant of something else about the same time as your accidental glutening - should your resurgence of symptoms remain after another month or so it may be time to look at other intolerances.
If you haven't kept a food/symptom log - it would be a very good idea to start one - it is the first step in tracking other possible problems - some other food problem may become obvious as you track your symptoms.
Hang in there - the good news is you improved once - time will get you there again
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
Celiac.com - Celiac Disease Board Moderator
Posted 27 October 2012 - 03:00 AM
I don't eat out but am living with roommates who do eat gluten and although I'm very careful not to get cc'd, there is a chance it's been happening... I'm now 4 days lactose free and I'm seeing some improvement. I'm also thinking about taking probiotics and something that could help with the inflammation issues. I also keep a food log. So I guess it's all about patience now..
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