Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

4 Year Old Gluten Intolerance


  • Please log in to reply
8 replies to this topic

#1 Barrettsark

Barrettsark

    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 25 October 2012 - 02:28 PM

Ok everyone I'm new to this Forum. My name is Jessica and i'm a mother of 6 children who all have digestion issues. But my four year old little girl has been complaining about stomach aches for a year now. She is very pale and has no energy. Nothing for her to stay on the coach all day. Often has colored stools. I feel that we have always eaten healthy. So we took her to the doctor a few months back and they did some blood work to see if she had lyme. Than we went back because it was not lyme and they tested for celiac.. One test Endomysial IgA came back at 21 range ( 0-19).
We were sent to gastro and they did a biopsy that came back neg. The gastro doctor says she is not celiac but Gluten intolerance. What does everyone think?? Help Please
  • 0
Live each day as if it was your last!

Celiac.com Sponsor:

#2 shadowicewolf

shadowicewolf

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,758 posts

Posted 25 October 2012 - 02:32 PM

It could very well be. At any rate, she needs to get off of gluten completely. If she improves, then there is your answer.
  • 0

#3 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 25 October 2012 - 02:55 PM

Welcome to the board.

It could be that she has really early celiac, enough to develop the antibodies in the blood but not enough for damage to the small intestine. With a positive EMA test that to me is the most likely scenario. Either way, she does need to eat gluten free; I think you will find it will make a big difference. AND, you have a doctor who says she needs to be gluten free and can provide you with a letter for when she starts school so that she can avoid gluten exposure there.

You say your children all have digestive issues. Do either you or your husband also have digestive issues because celiac is a genetically inherited characteristic and there are gluten intolerance genes as well, so your daughter had to get it from either one of you. Just having the gene does not automatically give you the disease though - there has to be some kind of trigger -- usually physical or emotional trauma -- to set it off.

Just a suggestion, but it might be a good idea to make the whole family gluten free and see if the issues of your other chldren resolve. I know you will find some resistance from the older children giving up their favorite snacks, but you can do the transition gradually. Most fresh food is naturally gluten free, meats, fish, vegetables, dairy, eggs, fruits, nuts, seeds. Add in rice, and gluten free bread (making wraps instead of sandwiches is a good idea, using brown rice wraps or corn tortillas) and some gluten free pasta,and you can cook gluten free dinners for the whole family without their even being aware of it (and you don't have to tell them to start with). :) You can thicken gravies and sauces with cornstarch or buy some Pamela's Baking Mix and then you can make gluten free pancakes, waffles and cookies too. Think about it for a while. :)
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#4 GottaSki

GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,972 posts

Posted 25 October 2012 - 03:31 PM

Welcome Jessica!

Whether your daughter has Celiac Disease or Non-Celiac Gluten Intolerance the treatment is the same - remove ALL gluten and watch her improve.

That being said...if she responds to the removal of gluten and had a positive EMA-IgA - I'd guess that the damage to her small intestine was either spotty or in it's very early stage. Do you have the endoscopy report? It can help to know how many samples were biopsied and if there were any cellular changes found.

Have you considered testing for you, your husband and other children? I agree with Mushroom regarding the suggestion to take the entire family gluten-free - given the digestive symptoms in your other children. Minimally, I strongly recommend making one gluten-free dinner for the entire family. Testing all eight of you may give a more clear picture of Celiac vs NCGI. Should you decide to have anyone else tested, they should continue eating gluten until the tests are complete.

Hang in there - the transition to gluten-free is not easy - but it does become much easier with time :)
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 Barrettsark

Barrettsark

    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 25 October 2012 - 03:34 PM

We have started the Gluten free foods with her and I have noticed a difference with her already. The other night she was giving me a hard time and wanted Pizza, with in an hour she was crying that her stomach hurt and was very off mood wise.

I have always had digestive issues myself diarrhea When I was younger to the point I didn't want to go places to after I had my four year old constipation to the point of bleeding. I had a Colonoscopy last year at only 32 to find I have Internal hemorrhoids. I just went to the doctor yesterday to ask them to test me.

My husband on the other hand is not sure about any of this.. I working on him..
  • 0
Live each day as if it was your last!

#6 shadowicewolf

shadowicewolf

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,758 posts

Posted 25 October 2012 - 04:03 PM

Its best if she doesn't cheat on the diet. Its hard, and she'll go through gluten withdrawl but you must keep to it :(
  • 0

#7 GottaSki

GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,972 posts

Posted 25 October 2012 - 04:08 PM

and learn to make gluten-free pizza! Again, give yourself time for the transition...you'll be able to replicate all her favorites as you learn more.

Have you read the "Newbie 101" thread - loads of good start-up info there and continue to ask questions - it really is the best way to speed up the process.
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#8 Celiac Mindwarp

Celiac Mindwarp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,167 posts

Posted 25 October 2012 - 11:35 PM

Sounds like a family trip for blood tests might be in order. Once you all start enjoying more gluten-free food you will find it harder to go back on gluten for testing.

Good work Mum, keep it up :)
  • 0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#9 Cara in Boston

Cara in Boston

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 617 posts

Posted 26 October 2012 - 04:51 AM

Yes! Please get everyone in the family tested - especially before you make any diet changes.

Also, a negative biopsy simply means DAMAGE WAS NOT FOUND, not necessarily that your child is negative for celiac. With her symptoms and positive blood test, it is likely that she has celiac. A diagnosis of gluten intolerance is ok because the treatment is the same, but many people think it is less serious and an occasional "cheat" is ok. It is not OK to cheat at all. She needs to be 100% gluten free.

If after 6 months her antibody levels are normal again (after being gluten free) you will know you are doing the right thing.

Get everyone else tested right away. If more of you test positive, it will be easier to all start the diet together.

Cara
  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: