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I have been a little absent from the forum for a while but I thought I would let people know what has been going on. Maybe this will encourage someone. I was getting desperate there for a while. I lost so much weight that my family members started saying I looked frail. I could not eat any foods in the moderate salicylate content category. I was extremely dairy intolerant. I couldnt drink out of plastics or eat anything moist that had been in many plastics without my throat swelling and losing my voice. Nevertheless I hung in there and ate that bland diet and started forcing myself to drink plenty of water out of a stainless steel container bought that does not contain a plastic lining. Drinking two liters of filtered water a day I found that my salicylate and acid sensitivites were going away. I can now eat many spices and I tolerate it well. I am not as sensitive to plastics as I was and can even use regular toothpaste instead of baking soda now.

Not everything is perfect though. I find that if I go too much on the side of carbs and sugars I still bloat up. I do not eat red meat that often. Honestly I do not miss it as it is much harder to digest and I have become accustomed to not having a heavy abdomen anymore. I still do not tolerate corn syrup at all and my body does tolerates only occasional and small amounts of corn starch before my lips and tongue go numb and start burning. Corn Syrup gives me extreme brain fog still and I even stutter if I get fructose comatosed by something I ate because they changed the ingredients and put high fructose corn syrup in it. I am still considering getting a test done for potential candida as I have noticed that I seem to thrive on a mostly low carb diet with lean meats and veggies.

All in all, I cannot complain. I feel very blessed that the biggest diet restriction is behind me now and it did not take a year for that to happen. Hello flavor! It is good to be able to love food again.

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Thanks for the hope! I was wondering where Razzle Dazzle was.

Diana

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Lol just in time for Halloween: " I'mmm BAaack!"

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    • Hi, Ok good advice and I am sincere when I say how much I appreciate a lot of the responses, advice and encouragement that have been posted here. I'm not sure what a nutrionist is but a dietician (here in the U.K.) is a heavily regulated medical profession and my dietician is based most of her week in a hospital where doctors and MD's as they are known refer patients to her for help. She works every day with celiacs, dh sufferers and people with crohns, ibs etc and seeing my skin, listened to what I was saying (particularly about how my redness and blisters resolved on a gluten free (though not wheat free) diet for several years, and sent a report to my doctor/MD requesting a battery of tests - tests that can indicate dh, celiac and associated complications. I also have a friend with a wheat allergy and two with celiac (all diagnosed) and they are encouraging me to go ahead with getting these particular tests. So that's great but reading the above quote that suggests that situations like sharing an oven used to cook gluten-containing pizza, should not cause a gluten reaction. I thought, my god what's the point of going through these tests if my recent reactions aren't actually to do with gluten. Although my dietician is concerned about possible dh and has been through years of medical school, I also really trust the advice of an advanced member on this site and if they think oven-sharing shouldn't cause any gluten reaction, what hope do I have with an MD? It has taken me years to pluck up the confidence to ask for any medical help because I feared that sort of response along with a focus on psychological issues and hormones etc early on in the thread (even though, I only started feeling depressed since yesterday). Actually, I'm a mental health nurse so it's good to see people are alert to these issues but I am also pretty familiar with depression and I know that many people with physical health problems are fobbed off by doctors with talk of depression, stress, and hormones. I'm sorry that I took the (above) quote to heart and I know that I allowed that to colour my perception of the whole thread, which has been helpful in many ways. Best wishes to you all, even those I didn't agree with! Rhian 
    • I thought maybe doing a trial period to see if he reacts positively to being gluten free and then adding it back to see if symptoms come back would maybe be helpful to the doctor? But I guess that's true, it might skew things regarding any future tests that might be warranted. 
    • If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms.  There will also be a higher risk of false negatives.
    • I did not mean to imply that you should put him on a gluten free diet.    If you suspect a problem with gluten, please get an opinion from a GI who is celiac savvy.  All celiac testing requires a patient to be consuming gluten.  The slightly equivocal TTG?  That warrants a gene test at the very least.   http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf  
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