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Frankenstorm!
#1
Posted 26 October 2012 - 02:05 PM
They've just declared a state of emergency for VA...I'm wondering if it will end up being necessary. But I know if I don't do anything we'll probably get slammed and loose power for days...right?!?!
We've got water, nonperishables, dog food, candles, etc. and I'm charging any and every electronic device we might want or need for the next few days.
Gah! I was hoping for a quiet-ish weekend but it doesn't look like it will be happening.
The adventure begins...
#2
Posted 26 October 2012 - 02:25 PM
A battery powered radio would be helpful, too.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#3
Posted 26 October 2012 - 02:35 PM
A battery powered radio would be helpful, too.
And there's always the car radio if you can get to it
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#4
Posted 26 October 2012 - 09:29 PM
I have family out there in VA... so hopefully they'll be fine.
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#5
Posted 26 October 2012 - 09:53 PM
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#6
Posted 26 October 2012 - 10:17 PM
Playing Cards - more than one deck comes in handy if you have bored kids
Extra batteries for everything
Last time we lost power we pulled out the old CDs along with a getto-blaster gathering dust in the garage - our teens had a blast listening to our "ancient" discs and playing cards.
Ziplocks half full of water shoved into all parts of the freezer - helps keep the freezer cold and provides back up drinking water.
When the power cuts off - use blue tape to remind everyone not to open the frig unless absolutely necessary and make sure you leave a few light switches or TV on so you know when the power is back on
Battery powered radio was the most important item....a few of our neighbors didn't have one - added a few bottles of wine and we all had a wonderful time!
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#7
Posted 27 October 2012 - 01:26 AM
Ziplocks half full of water shoved into all parts of the freezer
This is a GREAT idea!
I am in northeastern Pa so we will not get hit too hard. Not like the coast . But this time of year we never know when we will lose power .
Gluten free Oct/09
Soy free Nov/10
Completely grain free Feb/13
After a very, very long battle to keep dairy .I am dairy free
i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy .
Celiac :based on DH biopsy and diet response.
Hashimoto's thyroiditis disease . April/11
Diagnosed type 2 Diabetes March/13
#8
Posted 27 October 2012 - 02:59 AM
Be safe, fellow East Coasters!
Gluten-free (Nov. 2008), dairy-free (June 2009), soy-free (Aug. 2009), all-grains-and-grasses-but-rice-free (Nov. 2011); double HLA-DQ7
"'Always remember, Bilbo, when your heart wants lifting, think of pleasant things.' 'Eggs, bacon, a good full pipe, my garden at twilight....'" (The Hobbit, animated movie, 1977)
#9
Posted 27 October 2012 - 04:55 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#10
Posted 27 October 2012 - 07:29 AM
Stock up on snacks too. And toilet paper.
Everyone stay safe and if you can, enjoy this time off from the "real world".
#11
Posted 27 October 2012 - 08:55 AM
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#12
Posted 27 October 2012 - 09:56 AM
Best of luck to anyone in its path...stay safe! Get your supplies in advance and watch out for your neighbors as well.
#13
Posted 27 October 2012 - 10:01 AM
#14
Posted 27 October 2012 - 10:03 AM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#15
Posted 28 October 2012 - 07:16 AM
use in the fridge if the power goes out, and made a bunch of ice cubes.
Then I can put the big blocks of ice in the fridge and leave a few in the
freezer, and put the ice cubes in a cooler with the food I'm making today,
and not have to open the fridge or freezer again. Seems like a good plan.
We were going to buy a generator, but when you buy right before a storm
you can't return them, and if it's no good then we're stuck. We'll be buying
one in a few weeks I think.
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