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How Do I Know If I'm Healing Or Ingesting Gluten?
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8 posts in this topic

I've been gluten free for just over two weeks and overall I feel great. I feel so much happier and more energetic. But my digestive system is definitely working some kinks out. I'm not in a lot of pain but I have more gas and cramping than I ever had before going off gluten. I know changes and discomfort are par for the course but I also want to know that I'm healing.

I think I'm doing pretty well on the diet. I can't do the whole stay at home for months and eat squash and chicken breasts but I'm careful about where I go out and talk to the people there and I think I'm on top of the foods. Is discomfort and gas and well, not quite diarrhea but not quite not diarrhea, if that makes any sense, normal after the diet?

I know a lot of us have lactose intolerance. Like I said my discomfort isn't that bad but am I damaging my gut if I ingest lactose before my body's ready? Should I cut it just in case?

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Quit worrying, you're fine (no seriously, stressing out about it does NOT help at all). It takes time for the body to heal. Most of us take months before we resemble anything normal. If you have no issues with dairy, then don't cut it. Some do, some don't. Just because they do, doesn't mean that you have to.

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If you are be careful with your die,t and keep on working your analytical mind, sooner or later you will figure it out. I am 6 months gluten free and I can sympathasize with the confusion. I am having more of what I think is my body working on repair. I am only guessing what is going on. If the guess doesn't seem to still be flying tomorrow I will make a new guess.

Diana

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HI,

Are you taknig probiotics and using digestive enzymes? The start of the diet can be rough. Things are changing in yuor gut and that can lead to upset/poor digestion. If you don't improve in a month you should consider changing something.

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Thanks, everyone. I don't mean to seem like a worry wart but I'm one of those people who didn't really have GI issues recently befor the diagnosis (I think I've had celiac undiagnosed for thirty years and had stomach pains when younger). So I've gone from pretty much nothing to being very aware of the lower region of my digestive system. Very aware.

I am taking a probiotic. I have my first appointment with a celiac specialist on Monday and have been waiting to invest too much in supplements and probiiotics until she weighs in.

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Megsybeth, I've been lactose intolerant my whole life. I avoided milk and suffered the consequences when I had cheese (plain, processed, block, pizza, tacos, etc.). When I went gluten-free I hoped that the probiotic and changes in my diet would lessen the lactose intolerance, but it seems to have actually enhanced it, unfortunately. I drink Lactaid instead of regular milk but the cheese still gets me. What I did was tried a dietary enzyme for lactose intolerance. They come in different strengths, but I tried the Up & Up from Target because it was pretty strong. I had zero issues after having an egg and cheese omelet, which previously would have caused quite a few issues. Could that be a possibility that could help you enjoy the dairy without harm? I think mine were 12 pills for less than $3 and they have larger quantities available. I just wanted a small one in case they didn't help.

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Hi Megsy

2 weeks is early days. A little gas and (almost) D is nothing to worry about too much. Keep at the diet, and things should settle down. You're healing, and your gut is adjusting to the fact that you aren't feeding it what you used to.

You can, as others have suggested, take probiotics and a good digestive enzyme (make sure both are gluten-free). That will help you digestive system adjust.

I'd wait 6 months until you worry about whether something else (like milk) is bothering you. But to be honest, even if you're perfectly gluten free, we all get a little bloated sometimes.

Happy Healing!

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Hi!

I'm new here, I was just officially diagnosed last week after a positive blood test and biopsy. I've been eating gluten-free for about a month, since right after the biopsy. I can sympathize...people keep asking me if I feel so much better now, but I haven't really noticed any change yet. I'm hoping that I'm not eating anything cross-contaminated, but I have heard that it can take a while for everything to heal up!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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