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Any Almost Symptomless Young Kids Test Positive?
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7 posts in this topic

I did not test positive for celiac, but i have a rash and it's obvious I can't have gluten.

In the year I have been gluten-free my family has been 80% or more gluten free. I still buy them some non-gluten-free packaged snacks or an occasional loaf of bread.

During this time my 5 year old managed to gain 7lbs between 4-5 years old! This is a kid who barely gains 2-3lbs a year, it finally pushed him up to a more matching percentile! (75th height/50th for weight!). He also has excema, his skin feels like sandpaper!

I would like to get him tested I think. But I don't have a positive test to back me up. And he doesn't have a lot of symptoms.

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I have a totally symptomless child but her dad is type 1 diabetic and she has low thyroid. It was those facts alone that led her pediatrician to run a random test. Positive. Oh and egg allergy can also cause exema.

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Mine was symptomless as well. His dad has type 1 diabetes and celiac. Only got tested because of him.... Turns out he has had it for about three years they believe.

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I think my daughter's doctor would consider the change in weight gain to be significant enough (especially combined with your positive response to going gluten-free) that he would be willing to test.

Then again, we are lucky enough to have great insurance that lets us do pretty much anything, so we rarely have to work hard to convince doctors to run tests. Sadly, that usually factors into the equation.

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My daughter tested positive to our shock after we had them both tested following my own disgnosis 8 mos ago. No abdominal symptoms or indications of anything wrong, very healthy. She had a normal biopsy, however tested pos on her ttg labs and pos for the endomysial antibody, also vitamin D deficient. She has been strictly gluten free for 3 months, and gained 4 lbs in the 3 months- very telling.

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Eczema isn't normal. I had it when I was a teen. The itching is horrendous, if you can spare him only that, I think it would be worth it.

Diana

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My son's only symptom was a drastic and sudden behavior change. Otherwise he appeared perfectly healthy. Taller than average, fantastic eater, zero GI issues (ever, even as a baby). Mysterious things that improved (besides his behavior) after going gluten free: sleeps better, no dark circles under his eyes, more verbal and outgoing, more patience. His hair got thicker and turned somewhat curly. (not sure if that would have happened anyway - it is weird.)

Now, if he gets gluten accidently, he has symptoms. Stomach ache, rash around his mouth. super-grouchy mood for about a week.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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