Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Any Almost Symptomless Young Kids Test Positive?
0

7 posts in this topic

I did not test positive for celiac, but i have a rash and it's obvious I can't have gluten.

In the year I have been gluten-free my family has been 80% or more gluten free. I still buy them some non-gluten-free packaged snacks or an occasional loaf of bread.

During this time my 5 year old managed to gain 7lbs between 4-5 years old! This is a kid who barely gains 2-3lbs a year, it finally pushed him up to a more matching percentile! (75th height/50th for weight!). He also has excema, his skin feels like sandpaper!

I would like to get him tested I think. But I don't have a positive test to back me up. And he doesn't have a lot of symptoms.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have a totally symptomless child but her dad is type 1 diabetic and she has low thyroid. It was those facts alone that led her pediatrician to run a random test. Positive. Oh and egg allergy can also cause exema.

0

Share this post


Link to post
Share on other sites

Mine was symptomless as well. His dad has type 1 diabetes and celiac. Only got tested because of him.... Turns out he has had it for about three years they believe.

0

Share this post


Link to post
Share on other sites

I think my daughter's doctor would consider the change in weight gain to be significant enough (especially combined with your positive response to going gluten-free) that he would be willing to test.

Then again, we are lucky enough to have great insurance that lets us do pretty much anything, so we rarely have to work hard to convince doctors to run tests. Sadly, that usually factors into the equation.

0

Share this post


Link to post
Share on other sites

My daughter tested positive to our shock after we had them both tested following my own disgnosis 8 mos ago. No abdominal symptoms or indications of anything wrong, very healthy. She had a normal biopsy, however tested pos on her ttg labs and pos for the endomysial antibody, also vitamin D deficient. She has been strictly gluten free for 3 months, and gained 4 lbs in the 3 months- very telling.

0

Share this post


Link to post
Share on other sites




Eczema isn't normal. I had it when I was a teen. The itching is horrendous, if you can spare him only that, I think it would be worth it.

Diana

0

Share this post


Link to post
Share on other sites

My son's only symptom was a drastic and sudden behavior change. Otherwise he appeared perfectly healthy. Taller than average, fantastic eater, zero GI issues (ever, even as a baby). Mysterious things that improved (besides his behavior) after going gluten free: sleeps better, no dark circles under his eyes, more verbal and outgoing, more patience. His hair got thicker and turned somewhat curly. (not sure if that would have happened anyway - it is weird.)

Now, if he gets gluten accidently, he has symptoms. Stomach ache, rash around his mouth. super-grouchy mood for about a week.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,142
    • Total Posts
      919,559
  • Topics

  • Posts

    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,174
    • Most Online
      1,763

    Newest Member
    Mnoosh
    Joined