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Sign Petition To Standardized gluten-free Labeling By Midnight Tonight!

3 posts in this topic

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Getting close -- everyone 13 and up is eligible -- it is very close -- please consider taking a few minutes to add your name to the list.


current total is 23,462 of 25,000 needed - you can make the difference :)


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    • Your future has not been taken away.  You just have to be very careful eating out.  I have a handful of restaurants that I trust to cook my food correctly.  I ask a billion questions too (speak with a manager, ask if food is prepared in it's own dedicated facility and if they have dedicated fryers, ask about the workers and the sanitation practices)  If you don't feel comfortable eating after getting answers, then don't eat.  I've been in several social situations with family, friends and work where I've had to settle for a glass of wine.  I will explain why I can't partake if asked.  Honestly the only time I eat out is when I know that it's safe, I'll take my food on trips away from home, or I'll eat before going out with friends/family. As far as the kissing thing you mentioned.  My husband is understanding.  He'll make sure that his mouth is clean, brushed teeth and if he has a doubt he'll kiss my cheek.  It's really not the end of the world, it might feel like it, but it'll get better...  My daughter is 13.  She hasn't had her first kiss, she knows that she'll have to tell whoever it is about her disease.  If it's someone worth having, they will stick around.  Think about it as a way to weed out the bad ones  ...   
    • I see - it's reassuring to know I'm not the only who who's reacted badly to it! Thank you for your advice, it's much appreciated. It can get pretty frustrating but I understand it just takes time.
    • Going private no problem with getting the tests now, adds financial pain to the physical pain but better than 6 month waiting list on the national health service. Just feels like a lot of pain and aggravation to tell me what I already know deep down. Feels like my whole future has been taken away with this and I have a feeling I haven't even seen the half of it yet. Doctor seems to be very relaxed on the concept of needing to worry about cross reactivity, gluten paranoia when eating out etc. yet it seems to be the case for most on there that that's exactly how it is for so many people. Someone tell me I'm wrong... or is that really what life becomes in the cold harsh reality of things?
    • It took me years to be diagnosed.  I've been misdiagnosed with several different things and knew that there was more to it.  I requested to have an egd to test for Celiac's two years ago, my doctor never called me back so I went low gluten from then on.  I still felt like hell because I didn't realize that "everything" has gluten in it....  My daughter became ill back in March.  I went to several different doctors trying to figure out what was causing her to be ill.  Our family doctor said she had gallstones, wanted to immediately do surgery on her.  I refused since she didn't fit the typical signs of a child with gallstones.  I requested a pediatric surgeon and then a pediatric gi dr.  The surgeon was smart enough to say maybe ask the gi dr to test for celiac disease....  Then it clicked.  I was so angry and mad at myself and my dr for not listening to my body for the past several years. Her blood test was negative, but the biopsy was positive.  She went on the gluten free diet.  I then said I wanted to be formally tested.  Blood test was negative, biopsy was positive and they ran the genetic screening.  I am a DQ2 homozygous, cat 8.  My doctor apologized to me over and over.   I have two sons that were tested for their genes, one is a cat 4 and one is a cat 2.  If they start showing signs of the disease they will be tested by way of egd.  Their pediatric gi said that I probably would've died by 40 if I was left undiagnosed.   So in saying all of that, fight for your test.  Listen to your body, but don't stop living.  Use this as a teaching tool.  Help others that don't understand the disease.  It'll be tough but you can do it...
    • Hi, thanks... Yes, I was diagnosed with glucose intolerance by an endocrinologist. That's when I started cutting back on sugar. Other than some deficits (chromium, testosterone, D + B-12) they found nothing. Except that I also have mild ostopenia, and I often get kidney stones which is strange but they told me not to worry about it and to get more exercise etc. Which is exactly what I've been doing. I can tell you, banning gluten and sugar from my diet is the best thing I've ever done in terms of diet. The pounds came right off. But don't worry, I'm not a walking skeleton yet, lol. Fortunately the weight loss is a result of my diet, I had problems losing weight before the diet and even when exercising. But it all makes sense now. I easily store carbs as fat and have a hard time losing them. I still have the intolerances though... I had a high white blood cell count but they thought nothing of it. It all points to inflammation in my gut somewhere. But hey they're the doctors if they tell me not to worry about it I'll just have to try and figure it out on my own I guess. Meanwhile I'm really happy to see the belly blubber disappear.  Cheers
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