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Sign Petition To Standardized gluten-free Labeling By Midnight Tonight!
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Ads by Google:

Getting close -- everyone 13 and up is eligible -- it is very close -- please consider taking a few minutes to add your name to the list.

Thanks!

https://petitions.whitehouse.gov/petition/finalize-standards-gluten-free-labeling/SsmdZh3C

current total is 23,462 of 25,000 needed - you can make the difference :)

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    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
    • Many things can damage the small intestine besides celiac disease: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ Happily, I can share that I became a Great-Aunt this week for the first time  to a charming little boy. Sadly, my lovely 19 year old niece was diagnosed yesterday with Crohn's.  She had so many symptoms of celiac disease, I was sure she had it.  Actually, I was hoping that she'd have it, because Crohn's can be much worse.  At least there is a "cure" or known trigger for it -- gluten!   Anyway, your daughter might be suffering from something other than celiac disease.  It is possible.  It could be a food intolerance (e.g. milk).  My niece has suffered for years with periodic episodes of abdominal pain, vomiting, etc.  She doesn't have all the "classic" Crohn's Disease symptoms either, yet a recent pill cam revealed a lot!  Her endoscopy was normal.  Celiac panel normal.  Gallbladder scan normal (non-functioning gallbladder is a family curse).  My heart goes out to her, but at least we know what we are dealing with.  Will she ever get celiac disease?  It could happen. Keep advocating, Mom.  That's what I kept telling my SIL.  I also provided my SIL  a family health history tree that each GI was happy to receive.  Unfortunately, no one has had Crohn's in the family.  But, at least it allowed him to test my nieces gallbladder and for celiac disease (a full panel,  mind you).   It would not hurt to get a second opinion.  
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