Exhausted And Venting
Posted 02 November 2012 - 11:43 AM
Soooo....for us that are severely deficient it will probably take time to get in the higher range of normal, even if we are on high doses. We do generally have absorption issues .
Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND.
Responsive to iodine withdrawal for DH (see quote, above).
Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!
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Posted 04 November 2012 - 07:25 PM
It's too late for a biopsy. You are already gluten free and unless you have zero gluten issues you will get very sick going back on gluten long enough for a biopsy. A biopsy is looking for intestinal damage, which means you have to intentionally cause destruction to your intestines with gluten to get a positive. You have to eat a lot of it for many weeks to do enough damage to show up on those shoddy tests.
Eat healthy, whole foods, but please eat plenty of carbs to give you energy.
Healing takes time. It took me 6 months to have one symptom free day. Give it more time.
People with autoimmune disease (I'm going to assume you have celiac and the test was a false negative), tend to get dehydrated. I needed to replace my electrolytes for several months, I drank good old Gatorade and it helped a ton. I tried other electrolyte supplements and all of them made me sick.
Hang in there. It will get better.
Had GI symptoms, allergy symptoms and unexplained illness my whole life.
Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!
Posted 05 November 2012 - 10:31 PM
If your ferritin level is low, you might consider asking to receive intravenous iron--simply supplementing with iron may prove futile if you can't absorb it.
Posted 06 November 2012 - 03:51 PM
Negative blood work, positive dietary response
Endocrinologist offered referral to GI if I needed formal diagnosis to follow the diet, otherwise just pass on wheat, barley & rye
and save my money
Posted 07 November 2012 - 12:55 PM
Thank you everyone for your input and encouragement. One of my close friends was just diagnosed with Crohn’s, I feel lucky to have a disease that can be largely controlled through diet. Best wishes to you all and your health!
Posted 08 November 2012 - 08:20 AM
Posted 08 November 2012 - 10:08 AM
Posted 08 November 2012 - 12:16 PM
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