She is also the person who told me she researched Celiac alot because she thought she might have it. She found that the only way to know if you have it is, when you die, to get autopsied.
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Eggs?
#46
Posted 08 November 2012 - 08:53 AM
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
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#47
Posted 08 November 2012 - 09:16 AM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#48
Posted 09 November 2012 - 09:45 AM
We have our own chooks now and I seem to be fine with them.
Give them a scoop of organic wheat each afternoon (hubs deals with chook food feeding - available to them all the time) and wash my hands after - picking up eggs anyway, so would of course.
I seem to be fine with them - often eat two hard boiled hot before doing a lot of exercise and they really keep me going (with energy, I mean).
Actually I thought that birds were the one animal designed to be able to digest grain - warning, could be talking nonsense here
It annoys me that their organic wheat contains soya - why is soya in almost everything
#49
Posted 09 November 2012 - 09:55 AM
- why is soya in almost everything
!
Good question
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#50
Posted 16 December 2012 - 12:49 PM
I don't have any scientific evidence that there is gluten in eggs. I only have my own experiences and those of my children which are subjective. It isn't easy finding chickens that aren't fed supplemental grain here either, especially in the winter. I live in the northern part of the country. I had eliminated eggs from the grocery store as I felt better when I didn't eat them. Then I found a farmer at a farmer's market who pasture raised her chickens and I started eating her eggs without any issues. When it got cold, I found that they were making me sick. I talked to her about it and she told me that they get wheat in the cold season. Now what I do is freeze a bunch of eggs during the summer when they don't make me sick, and then I have them to eat when the cold season comes along and they start to make me sick. My children also have problems with the eggs that coincide with mine.
Of course, this could all be in my head, and the power of my personality may be affecting my children, but those are my experiences.
I think that I am either a nut case, or much more sensitive than your average super sensitive celiac.
It's no in your head, if tour super sensitive (like me and my son) then you are grtting slightly glutened by the eggs (which sucks because we LOVE eggs. I have been purchasing cage free grain fed chickens and I do feel glutened after eating them but only last a shott while but its a indefinate reaction and its still there ugh! We have a local co-op store I am going to try theres next time and will not be buying eggs from our local supermarket anymore this winter .. I hate bejng so sensitive.. Its also there with some meats!
#52
Posted 16 December 2012 - 02:19 PM
http://www.rawpaleodietforum.com/general-discussion/grain-fed-eggs/
It's possible to be intolerant to eggs no matter what they eat.
Your link is just to someone asking a questions and another person answering. Is not scientific or medical.
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.”
#53
Posted 16 December 2012 - 05:51 PM
Eggs are a wonderful food and should not be given up without a trial -- and if you fail a solid trial then you should trial each egg yolk and egg white.
I'll have them back in my diet just as soon as possible.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#54
Posted 11 January 2013 - 05:53 AM
#55
Posted 11 January 2013 - 07:21 AM
Subjective proof I have it is okay:
No hives
No fatigue
I have energy
IGG tests negative for egg antibodies
I expected to have a problem with eggs; I have eaten them nearly everyday for 5 years, but amazingly all is well between eggs and I!
#56
Posted 21 January 2013 - 06:53 PM
If I thought I was getting glutened from eggs I'd wash them (in the shells of course) and my hands thoroughly after handling them, and probably keep the cartoon in a plastic bag too. Then seen if I still had an issue with them.
June 2012 positive visual of celiac disease from gastroscopy
#57
Posted 22 January 2013 - 10:40 AM
I also have trouble with eggs on their own. Seem to be ok in baked goods, but not as the main ingredient. Even so, I've switched to mostly vegan baking since my man won't eat eggs on principle.
I don't think it's a gluten thing, it's just that a lot of us seem to also have issues with eggs, just like a lot of us have problems with dairy, soy, etc.
While grain-fed chickens aren't going to make gluteny eggs (or gluteny chickens. I hope!), what chickens are fed must have an impact on their nutritional value, etc. Organic, free range eggs are just bigger and better all around...
Oh, and whoever those doctors are who test for celiac then don't reccomend a gluten-free diet? WTF?
All I know is I eat eggs, I feel nauseous and shaky in an hour. Not worth it.
~ Be a light unto yourself. ~ - The Buddha
- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice
- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.
#58
Posted 02 February 2013 - 08:11 PM
I developed an egg white sensitivity years ago (30) when I was pregnant with my second child. Ppl tell me I am crazy and that, as a heart patient, I would be better off being sensitive to the yolk with all the cholesterol. With increasing years, I have learned to trust my own body more, despite the nay-sayers. It is deifinitely the whites for me. In cooked foods it sometimes works out ok for me.
I do not even tell the flu shot folks that I react perhaps every third time to the annual flu shots (that contain egg white) because, well, not having the shot carries more risks for me than the topical reaction/irritation.
Anyway, I did appreciate the info from Scott R and wonder if he is simply reporting on a precursor or coexistent condition like fat intolerance or intolerance to spicy, grilled food in some ways (both of which I have had for many years).
I still thank you all for your informative posts even if controversial.
jan
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