Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nail In The Quinoa Coffin
0

17 posts in this topic

Argh! Quinoa strikes again!

At least I think so. On saturday, after having cooked for myself for a week, I had some squash and carrot soup, and a small amount of quinoa salad, both of which had been gotten from a good source. I had less than a handful of the salad, which did also have a small amount of feta in it which I avoided as much as possible (so it could be the milk I reacted to instead).

This was at lunch. I was fine all afternoon, all evening (though tipsy after a bottle of wine). Slept a couple hours and woke up feeling nauseous. Took some advil, ginger, drank lots of water. Ended up on the toilet and bam. really hard C followed immediately by awful D. Worst I've had in a while. Pains in my side. I'm just glad I didn't wake my bf with my wimpering. The undigested remains contained a lot of whole quinoa.

The last time I ate a small amount of quinoa I did ok (or at least didn't react until much later. I also remembered to take a digestive enzyme that time. this time I did not). The last time I had a large amount (bowl-full) it nearly killed me! which is why I'm avoiding it.

It's always possible that there was gluten cc, but this didn't feel like my usual gluten reaction. It could have been the small amount of dairy. But being that it was similar (if not as long or intense) as my quinoa incident, I'm pointing the finger.

Anyway, I think that's it for the quinoa. With all the research being done on it, showing that some strains may contain trace gluten, and that its not the easiest thing to digest anyway, I think it's safer to stay away.

Also, do you find you can tell the difference between reactions to different foods? I know that's different for everyone, but can you tell it was this and not that?

Oh Quinoa, you're just too good for me...

0

Share this post


Link to post
Share on other sites


Ads by Google:

I can't eat quinoa :( well heck, I can't eat much of anything so I may not be the best guinea pig to compare yourself to.

Quinoa provides me a similar, not identical reaction to that of my gluten reaction.

And yes, I can tell the difference between gluten and other intolerance reactions. Many include bloating, but gluten has it's own quirks and generally lasts much longer.

Edited to clarify - I do not believe any quinoa I ate was ever contaminated with gluten - I do believe the lectin content of quinoa is the reason for my sensitivity to it.

Edited by GottaSki
0

Share this post


Link to post
Share on other sites

Just throwing this out there but, isn't it entirely possible the wine did it? "slightly tipsy after a bottle of wine" and you wake up nauseous? All the symptoms you describe ----sound like me after too much red wine.

It's not gluten..

But yes, maybe you are intolerant of quinoa.

The truth is, trying to figure out a food intolerance when we eat a variety of foods in one day PLUS a lot of wine, well. that's not really a good

baseline to work from.

Take one day (a day you will be home all day) and just eat quinoa for breakfast --- cooked in water and nothing on it---and see what happens.. That's the ONLY way you'll know.

0

Share this post


Link to post
Share on other sites

I do have different reactions to different foods. That is how a dairy reaction is for me. An egg reaction is usually more delayed and so violent that I have vowed never to eat anything that might even be cc with egg. Other things give me an itchy throat or nose or a rash.

0

Share this post


Link to post
Share on other sites

I am thinking perhaps the quinoa you ate was not rinsed enough. If the saponins on it are not rinsed off adequately they will cause a laxative effect.

And quinoa itself is high fiber. So I wouldn't recommend ever eating a large bowl of it. It has been believed to work as a prebiotic which can tone your colon.

Quinoa is not a true grain...it is classified as a member of the goosefoot family and related to beets, spinach and chard.

I always rinse the quinoa well even if it says it is prerinsed. I doubt anyone on here eats quinoa more frequently than me...it is one of the few things I can tolerate.

I usually eat quinoa flakes as a hot cereal everyday. The flakes do not have to be rinsed and it is quick and easy and supposedly more digestible. I put 1/3 cup quinoa flakes in a bowl add a cup of water and microwave for 2 and I/2 minutes. Then I add brown sugar and maple syrup to it. It will thicken on standing.

I eat the regular quinoa that needs to be rinsed for dinner most nights. But I probably don't eat more than a third of a cup at the most...it is too much fiber at one time.

If you want the health benefits of quinoa you might try the flakes. I always buy Ancient Harvest organic quinoa flakes. They are marked glutenfree. There are also recipes on the back of the box for making quinoa cookies and banana quinoa muffins.

0

Share this post


Link to post
Share on other sites




I just recently bought quinoa to try again. The first time I tried it I was fairly new to gluten free and still quite ill . I did not react well. I am hopeful that since I have had quite a bit of healing occur that I will be able to tolerate quinoa now.

I am ( nearly ) vegetarian again and have eliminated all grains ( except rice) from my diet. Being able to add quinoa to my diet would be ( nutritionally ) beneficial . So I am going to try adding it back.

0

Share this post


Link to post
Share on other sites

I agree with Sensitive Me...maybe you guys could try the quinoa flakes as a morning cereal. Yummy with a bit of maple syrup.

0

Share this post


Link to post
Share on other sites

Thanks guys

My reactions are likely more related to the saponins/lectins/fibre content of quinoa. I did not make the stuff I ate on saturday, so don't know how much it was rinsed. So, if more than a cup kills me (worst pain I'd had in a rather long time), and a 1/4 cup causes horrid D, yeah, best to stay away.

I did consider the wine when I woke up feeling all nauseous, but after sitting on the toilet for 15-20 min, I knew it was something I ate.

I have had bread and other things with quinoa in them, and have done ok, so it could be more of a problem with the whole grain/seed (I can't digest brown rice very well either). Quinoa flakes might be ok.

The quinoa/gluten thing comes out of some recent research that found at least 4 strains have detectable (though very low) amounts. But that aside, quinoa's natural defences are bad enough. I will trial this again when I'm feeling up to it (and have all day to feel miserable), but in the meantime, none for me.

Peg

0

Share this post


Link to post
Share on other sites

I think your body is the best judge of what it can tolerate and if I were you I would probably never want to look at a whole grain/seed of quinoa ever again.

For all the good things I always hear about flax and the nutritionist wanting me to add it into my diet I cannot tolerate the stuff in any form...I have tried quite a few times and even a small amount of the seeds or oil will upset my stomach making me feel nauseous for a few hours.

I am aware of the current research on quinoa strains and until I hear more I am not too concerned yet. Still I am watching for my having any possible reaction to it because I read botanists have developed saponin-free strains of quinoa to avoid the inconvenience of having to rinse it. Actually I am quite angry about it because every time in the past they have messed with something (soy, wheat and corn) I become sick and no longer can have it.

0

Share this post


Link to post
Share on other sites

Eep! Genetically modifying it isn't going to help! People are crazy....

Sorry to hear about your flax problem. That something I should be eating more of.

1

Share this post


Link to post
Share on other sites

I have been coeliac for 33 years now and I think I have had IBS for at least 20 years (but manageable by diet) & my sensitivities to food seem to change regularly - some worsen, some improve - so it gets very confusing. Coeliacs disease is an immune-mediated disease and people with immune mediated diseases often develop other immune-mediated problems so it shouldn't be too surprising to us (though it is depressing :( ) that we develop other food allergies or food sensitivities or even immune mediated diseases as time goes on. I just keep searching for the right combination of foods in my diet & try not to feel too sorry for myself about what I can't eat :rolleyes: - I'm not saying I always succeed on the not-feeling-sorry-for-myself but I pray a lot & try to remember the people in third world countries who have nothing to eat :(

I have given up on trying any grains of any kind (I know quinoa is officially a seed but I react the same way to it as I do to grains) to be honest because they all make me unwell and it's just not worth it.

I have been on a low carb diet for the last 6 months & I have felt better than I have felt for at least 10 years - my irritable bowel has virtually disappeared (unless I eat the things I know I shouldn't like certain fruits or egg), I can eat foods I couldn't eat before, I have improved energy levels (though not wonderful), I no longer suffer from chronic cystitis & I am less depressed. Has anyone else had positive experiences with a low-carb diet ?

Sorry about the long post but this is the first coeliac forum or group I have ever been a member of so I have 33 years to get off my chest :D

0

Share this post


Link to post
Share on other sites

it shouldn't be too surprising to us (though it is depressing :( ) that we develop other food allergies or food sensitivities or even immune mediated diseases as time goes on.

I have given up on trying any grains of any kind (I know quinoa is officially a seed but I react the same way to it as I do to grains) to be honest because they all make me unwell and it's just not worth it. I have been on a low carb diet for the last 6 months & I have felt better than I have felt for at least 10 years - my irritable bowel has virtually disappeared (unless I eat the things I know I shouldn't like certain fruits or egg), I can eat foods I couldn't eat before, I have improved energy levels (though not wonderful), I no longer suffer from chronic cystitis & I am less depressed. Has anyone else had positive experiences with a low-carb diet ?

Sorry about the long post but this is the first coeliac forum or group I have ever been a member of so I have 33 years to get off my chest :D

Hello and welcome!

yes, technically....quinoa is not a grain, that's true.

So glad you are feeling better!

Here is the thing....some of us cannot tolerate OTHER food proteins (for me, it's soy and dairy )

so, everyone has to figure out what works.

Never, ever give up thinking you will not feel well or get better!! You will.

I have given up all grains and dairy myself just 10 days ago to see if I can reduce the inflammation in my body. (yes, I have tried this many times before, but I figure after 2 years post DX maybe it will work THIS time)

Any "itis"-- like cystitis...I had it too--is inflammation. And if we reduce inflammation in the body, we can rid ourselves of all these inflammatory symptoms. You cannot believe how bad I was... :( unable to walk, sit ,stand and even open a jar or dress myself....and where I am now. I just stacked wood this afternoon! Do I still have pain? yes, but I am FUNCTIONING.

Hang in there. Best wishes all.

0

Share this post


Link to post
Share on other sites

I am thinking perhaps the quinoa you ate was not rinsed enough. If the saponins on it are not rinsed off adequately they will cause a laxative effect.

And quinoa itself is high fiber. So I wouldn't recommend ever eating a large bowl of it. It has been believed to work as a prebiotic which can tone your colon.

Quinoa is not a true grain...it is classified as a member of the goosefoot family and related to beets, spinach and chard.

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.

0

Share this post


Link to post
Share on other sites

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.

And I can eat spinach all day long, but cannot eat quinoa, beets or chard :huh:

0

Share this post


Link to post
Share on other sites

We lectin gals are mighty similar :blink:

0

Share this post


Link to post
Share on other sites

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.

Chard is my fav, too, and I love spinach.....quinoa is okay in small doses.... Beets..make me hurl

And I can eat spinach all day long, but cannot eat quinoa, beets or chard :huh:

we are a strange Threesome!

0

Share this post


Link to post
Share on other sites

Thankyou for your encouragement :) It's good to know I'm not just weird - I'm pretty sure my mum thinks all my food sensitivities are psychological because every time I go there she says "what can't you eat now" & rolls her eyes. So I just take my food everywhere I go now & never eat out at a restaurant.

I am fortunate that I can eat dairy foods because I am allergic to egg, sensitive to soy & I'm vegetarian so that narrows down your protein sources a bit !!

Yes, I have allergic dermatitis, reactive arthritis, some sacroiliac spondylitis so I know what you mean about the "itis"es

I am very glad to be able to talk other people that have had similar experiences (although I'm sorry for you that you have these dietary restrictions & health challenges :( )

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,533
  • Topics

  • Posts

    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined