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Nail In The Quinoa Coffin


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#1 Pegleg84

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Posted 05 November 2012 - 12:44 PM

Argh! Quinoa strikes again!

At least I think so. On saturday, after having cooked for myself for a week, I had some squash and carrot soup, and a small amount of quinoa salad, both of which had been gotten from a good source. I had less than a handful of the salad, which did also have a small amount of feta in it which I avoided as much as possible (so it could be the milk I reacted to instead).
This was at lunch. I was fine all afternoon, all evening (though tipsy after a bottle of wine). Slept a couple hours and woke up feeling nauseous. Took some advil, ginger, drank lots of water. Ended up on the toilet and bam. really hard C followed immediately by awful D. Worst I've had in a while. Pains in my side. I'm just glad I didn't wake my bf with my wimpering. The undigested remains contained a lot of whole quinoa.

The last time I ate a small amount of quinoa I did ok (or at least didn't react until much later. I also remembered to take a digestive enzyme that time. this time I did not). The last time I had a large amount (bowl-full) it nearly killed me! which is why I'm avoiding it.

It's always possible that there was gluten cc, but this didn't feel like my usual gluten reaction. It could have been the small amount of dairy. But being that it was similar (if not as long or intense) as my quinoa incident, I'm pointing the finger.

Anyway, I think that's it for the quinoa. With all the research being done on it, showing that some strains may contain trace gluten, and that its not the easiest thing to digest anyway, I think it's safer to stay away.

Also, do you find you can tell the difference between reactions to different foods? I know that's different for everyone, but can you tell it was this and not that?

Oh Quinoa, you're just too good for me...
  • 0

~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


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#2 GottaSki

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Posted 05 November 2012 - 01:05 PM

I can't eat quinoa :( well heck, I can't eat much of anything so I may not be the best guinea pig to compare yourself to.

Quinoa provides me a similar, not identical reaction to that of my gluten reaction.

And yes, I can tell the difference between gluten and other intolerance reactions. Many include bloating, but gluten has it's own quirks and generally lasts much longer.

Edited to clarify - I do not believe any quinoa I ate was ever contaminated with gluten - I do believe the lectin content of quinoa is the reason for my sensitivity to it.

Edited by GottaSki, 05 November 2012 - 01:13 PM.

  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#3 IrishHeart

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Posted 05 November 2012 - 01:07 PM

Just throwing this out there but, isn't it entirely possible the wine did it? "slightly tipsy after a bottle of wine" and you wake up nauseous? All the symptoms you describe ----sound like me after too much red wine.

It's not gluten..
But yes, maybe you are intolerant of quinoa.

The truth is, trying to figure out a food intolerance when we eat a variety of foods in one day PLUS a lot of wine, well. that's not really a good
baseline to work from.

Take one day (a day you will be home all day) and just eat quinoa for breakfast --- cooked in water and nothing on it---and see what happens.. That's the ONLY way you'll know.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#4 Juliebove

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Posted 05 November 2012 - 07:36 PM

I do have different reactions to different foods. That is how a dairy reaction is for me. An egg reaction is usually more delayed and so violent that I have vowed never to eat anything that might even be cc with egg. Other things give me an itchy throat or nose or a rash.
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#5 SensitiveMe

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Posted 05 November 2012 - 09:10 PM

I am thinking perhaps the quinoa you ate was not rinsed enough. If the saponins on it are not rinsed off adequately they will cause a laxative effect.
And quinoa itself is high fiber. So I wouldn't recommend ever eating a large bowl of it. It has been believed to work as a prebiotic which can tone your colon.
Quinoa is not a true grain...it is classified as a member of the goosefoot family and related to beets, spinach and chard.

I always rinse the quinoa well even if it says it is prerinsed. I doubt anyone on here eats quinoa more frequently than me...it is one of the few things I can tolerate.
I usually eat quinoa flakes as a hot cereal everyday. The flakes do not have to be rinsed and it is quick and easy and supposedly more digestible. I put 1/3 cup quinoa flakes in a bowl add a cup of water and microwave for 2 and I/2 minutes. Then I add brown sugar and maple syrup to it. It will thicken on standing.
I eat the regular quinoa that needs to be rinsed for dinner most nights. But I probably don't eat more than a third of a cup at the most...it is too much fiber at one time.

If you want the health benefits of quinoa you might try the flakes. I always buy Ancient Harvest organic quinoa flakes. They are marked glutenfree. There are also recipes on the back of the box for making quinoa cookies and banana quinoa muffins.
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#6 a1956chill

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Posted 06 November 2012 - 12:20 AM

I just recently bought quinoa to try again. The first time I tried it I was fairly new to gluten free and still quite ill . I did not react well. I am hopeful that since I have had quite a bit of healing occur that I will be able to tolerate quinoa now.
I am ( nearly ) vegetarian again and have eliminated all grains ( except rice) from my diet. Being able to add quinoa to my diet would be ( nutritionally ) beneficial . So I am going to try adding it back.
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#7 IrishHeart

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Posted 06 November 2012 - 05:13 AM

I agree with Sensitive Me...maybe you guys could try the quinoa flakes as a morning cereal. Yummy with a bit of maple syrup.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#8 Pegleg84

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Posted 06 November 2012 - 10:09 AM

Thanks guys
My reactions are likely more related to the saponins/lectins/fibre content of quinoa. I did not make the stuff I ate on saturday, so don't know how much it was rinsed. So, if more than a cup kills me (worst pain I'd had in a rather long time), and a 1/4 cup causes horrid D, yeah, best to stay away.
I did consider the wine when I woke up feeling all nauseous, but after sitting on the toilet for 15-20 min, I knew it was something I ate.

I have had bread and other things with quinoa in them, and have done ok, so it could be more of a problem with the whole grain/seed (I can't digest brown rice very well either). Quinoa flakes might be ok.

The quinoa/gluten thing comes out of some recent research that found at least 4 strains have detectable (though very low) amounts. But that aside, quinoa's natural defences are bad enough. I will trial this again when I'm feeling up to it (and have all day to feel miserable), but in the meantime, none for me.

Peg
  • 0

~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#9 SensitiveMe

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Posted 06 November 2012 - 08:02 PM

I think your body is the best judge of what it can tolerate and if I were you I would probably never want to look at a whole grain/seed of quinoa ever again.
For all the good things I always hear about flax and the nutritionist wanting me to add it into my diet I cannot tolerate the stuff in any form...I have tried quite a few times and even a small amount of the seeds or oil will upset my stomach making me feel nauseous for a few hours.

I am aware of the current research on quinoa strains and until I hear more I am not too concerned yet. Still I am watching for my having any possible reaction to it because I read botanists have developed saponin-free strains of quinoa to avoid the inconvenience of having to rinse it. Actually I am quite angry about it because every time in the past they have messed with something (soy, wheat and corn) I become sick and no longer can have it.
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#10 Pegleg84

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Posted 07 November 2012 - 10:27 AM

Eep! Genetically modifying it isn't going to help! People are crazy....
Sorry to hear about your flax problem. That something I should be eating more of.
  • 1

~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#11 Three decades and counting

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Posted 07 November 2012 - 01:12 PM

I have been coeliac for 33 years now and I think I have had IBS for at least 20 years (but manageable by diet) & my sensitivities to food seem to change regularly - some worsen, some improve - so it gets very confusing. Coeliacs disease is an immune-mediated disease and people with immune mediated diseases often develop other immune-mediated problems so it shouldn't be too surprising to us (though it is depressing :( ) that we develop other food allergies or food sensitivities or even immune mediated diseases as time goes on. I just keep searching for the right combination of foods in my diet & try not to feel too sorry for myself about what I can't eat :rolleyes: - I'm not saying I always succeed on the not-feeling-sorry-for-myself but I pray a lot & try to remember the people in third world countries who have nothing to eat :(
I have given up on trying any grains of any kind (I know quinoa is officially a seed but I react the same way to it as I do to grains) to be honest because they all make me unwell and it's just not worth it.
I have been on a low carb diet for the last 6 months & I have felt better than I have felt for at least 10 years - my irritable bowel has virtually disappeared (unless I eat the things I know I shouldn't like certain fruits or egg), I can eat foods I couldn't eat before, I have improved energy levels (though not wonderful), I no longer suffer from chronic cystitis & I am less depressed. Has anyone else had positive experiences with a low-carb diet ?
Sorry about the long post but this is the first coeliac forum or group I have ever been a member of so I have 33 years to get off my chest :D
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#12 IrishHeart

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Posted 07 November 2012 - 03:37 PM

it shouldn't be too surprising to us (though it is depressing :( ) that we develop other food allergies or food sensitivities or even immune mediated diseases as time goes on.
I have given up on trying any grains of any kind (I know quinoa is officially a seed but I react the same way to it as I do to grains) to be honest because they all make me unwell and it's just not worth it. I have been on a low carb diet for the last 6 months & I have felt better than I have felt for at least 10 years - my irritable bowel has virtually disappeared (unless I eat the things I know I shouldn't like certain fruits or egg), I can eat foods I couldn't eat before, I have improved energy levels (though not wonderful), I no longer suffer from chronic cystitis & I am less depressed. Has anyone else had positive experiences with a low-carb diet ?
Sorry about the long post but this is the first coeliac forum or group I have ever been a member of so I have 33 years to get off my chest :D


Hello and welcome!


yes, technically....quinoa is not a grain, that's true.

So glad you are feeling better!

Here is the thing....some of us cannot tolerate OTHER food proteins (for me, it's soy and dairy )
so, everyone has to figure out what works.

Never, ever give up thinking you will not feel well or get better!! You will.

I have given up all grains and dairy myself just 10 days ago to see if I can reduce the inflammation in my body. (yes, I have tried this many times before, but I figure after 2 years post DX maybe it will work THIS time)

Any "itis"-- like cystitis...I had it too--is inflammation. And if we reduce inflammation in the body, we can rid ourselves of all these inflammatory symptoms. You cannot believe how bad I was... :( unable to walk, sit ,stand and even open a jar or dress myself....and where I am now. I just stacked wood this afternoon! Do I still have pain? yes, but I am FUNCTIONING.

Hang in there. Best wishes all.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 mushroom

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Posted 07 November 2012 - 03:51 PM

I am thinking perhaps the quinoa you ate was not rinsed enough. If the saponins on it are not rinsed off adequately they will cause a laxative effect.
And quinoa itself is high fiber. So I wouldn't recommend ever eating a large bowl of it. It has been believed to work as a prebiotic which can tone your colon.
Quinoa is not a true grain...it is classified as a member of the goosefoot family and related to beets, spinach and chard.

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#14 GottaSki

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Posted 07 November 2012 - 04:04 PM

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.


And I can eat spinach all day long, but cannot eat quinoa, beets or chard :huh:
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#15 mushroom

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Posted 07 November 2012 - 04:25 PM

We lectin gals are mighty similar :blink:
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator


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