Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nail In The Quinoa Coffin
0

17 posts in this topic

Argh! Quinoa strikes again!

At least I think so. On saturday, after having cooked for myself for a week, I had some squash and carrot soup, and a small amount of quinoa salad, both of which had been gotten from a good source. I had less than a handful of the salad, which did also have a small amount of feta in it which I avoided as much as possible (so it could be the milk I reacted to instead).

This was at lunch. I was fine all afternoon, all evening (though tipsy after a bottle of wine). Slept a couple hours and woke up feeling nauseous. Took some advil, ginger, drank lots of water. Ended up on the toilet and bam. really hard C followed immediately by awful D. Worst I've had in a while. Pains in my side. I'm just glad I didn't wake my bf with my wimpering. The undigested remains contained a lot of whole quinoa.

The last time I ate a small amount of quinoa I did ok (or at least didn't react until much later. I also remembered to take a digestive enzyme that time. this time I did not). The last time I had a large amount (bowl-full) it nearly killed me! which is why I'm avoiding it.

It's always possible that there was gluten cc, but this didn't feel like my usual gluten reaction. It could have been the small amount of dairy. But being that it was similar (if not as long or intense) as my quinoa incident, I'm pointing the finger.

Anyway, I think that's it for the quinoa. With all the research being done on it, showing that some strains may contain trace gluten, and that its not the easiest thing to digest anyway, I think it's safer to stay away.

Also, do you find you can tell the difference between reactions to different foods? I know that's different for everyone, but can you tell it was this and not that?

Oh Quinoa, you're just too good for me...

0

Share this post


Link to post
Share on other sites


Ads by Google:

I can't eat quinoa :( well heck, I can't eat much of anything so I may not be the best guinea pig to compare yourself to.

Quinoa provides me a similar, not identical reaction to that of my gluten reaction.

And yes, I can tell the difference between gluten and other intolerance reactions. Many include bloating, but gluten has it's own quirks and generally lasts much longer.

Edited to clarify - I do not believe any quinoa I ate was ever contaminated with gluten - I do believe the lectin content of quinoa is the reason for my sensitivity to it.

Edited by GottaSki
0

Share this post


Link to post
Share on other sites

Just throwing this out there but, isn't it entirely possible the wine did it? "slightly tipsy after a bottle of wine" and you wake up nauseous? All the symptoms you describe ----sound like me after too much red wine.

It's not gluten..

But yes, maybe you are intolerant of quinoa.

The truth is, trying to figure out a food intolerance when we eat a variety of foods in one day PLUS a lot of wine, well. that's not really a good

baseline to work from.

Take one day (a day you will be home all day) and just eat quinoa for breakfast --- cooked in water and nothing on it---and see what happens.. That's the ONLY way you'll know.

0

Share this post


Link to post
Share on other sites

I do have different reactions to different foods. That is how a dairy reaction is for me. An egg reaction is usually more delayed and so violent that I have vowed never to eat anything that might even be cc with egg. Other things give me an itchy throat or nose or a rash.

0

Share this post


Link to post
Share on other sites

I am thinking perhaps the quinoa you ate was not rinsed enough. If the saponins on it are not rinsed off adequately they will cause a laxative effect.

And quinoa itself is high fiber. So I wouldn't recommend ever eating a large bowl of it. It has been believed to work as a prebiotic which can tone your colon.

Quinoa is not a true grain...it is classified as a member of the goosefoot family and related to beets, spinach and chard.

I always rinse the quinoa well even if it says it is prerinsed. I doubt anyone on here eats quinoa more frequently than me...it is one of the few things I can tolerate.

I usually eat quinoa flakes as a hot cereal everyday. The flakes do not have to be rinsed and it is quick and easy and supposedly more digestible. I put 1/3 cup quinoa flakes in a bowl add a cup of water and microwave for 2 and I/2 minutes. Then I add brown sugar and maple syrup to it. It will thicken on standing.

I eat the regular quinoa that needs to be rinsed for dinner most nights. But I probably don't eat more than a third of a cup at the most...it is too much fiber at one time.

If you want the health benefits of quinoa you might try the flakes. I always buy Ancient Harvest organic quinoa flakes. They are marked glutenfree. There are also recipes on the back of the box for making quinoa cookies and banana quinoa muffins.

0

Share this post


Link to post
Share on other sites




I just recently bought quinoa to try again. The first time I tried it I was fairly new to gluten free and still quite ill . I did not react well. I am hopeful that since I have had quite a bit of healing occur that I will be able to tolerate quinoa now.

I am ( nearly ) vegetarian again and have eliminated all grains ( except rice) from my diet. Being able to add quinoa to my diet would be ( nutritionally ) beneficial . So I am going to try adding it back.

0

Share this post


Link to post
Share on other sites

I agree with Sensitive Me...maybe you guys could try the quinoa flakes as a morning cereal. Yummy with a bit of maple syrup.

0

Share this post


Link to post
Share on other sites

Thanks guys

My reactions are likely more related to the saponins/lectins/fibre content of quinoa. I did not make the stuff I ate on saturday, so don't know how much it was rinsed. So, if more than a cup kills me (worst pain I'd had in a rather long time), and a 1/4 cup causes horrid D, yeah, best to stay away.

I did consider the wine when I woke up feeling all nauseous, but after sitting on the toilet for 15-20 min, I knew it was something I ate.

I have had bread and other things with quinoa in them, and have done ok, so it could be more of a problem with the whole grain/seed (I can't digest brown rice very well either). Quinoa flakes might be ok.

The quinoa/gluten thing comes out of some recent research that found at least 4 strains have detectable (though very low) amounts. But that aside, quinoa's natural defences are bad enough. I will trial this again when I'm feeling up to it (and have all day to feel miserable), but in the meantime, none for me.

Peg

0

Share this post


Link to post
Share on other sites

I think your body is the best judge of what it can tolerate and if I were you I would probably never want to look at a whole grain/seed of quinoa ever again.

For all the good things I always hear about flax and the nutritionist wanting me to add it into my diet I cannot tolerate the stuff in any form...I have tried quite a few times and even a small amount of the seeds or oil will upset my stomach making me feel nauseous for a few hours.

I am aware of the current research on quinoa strains and until I hear more I am not too concerned yet. Still I am watching for my having any possible reaction to it because I read botanists have developed saponin-free strains of quinoa to avoid the inconvenience of having to rinse it. Actually I am quite angry about it because every time in the past they have messed with something (soy, wheat and corn) I become sick and no longer can have it.

0

Share this post


Link to post
Share on other sites

Eep! Genetically modifying it isn't going to help! People are crazy....

Sorry to hear about your flax problem. That something I should be eating more of.

1

Share this post


Link to post
Share on other sites

I have been coeliac for 33 years now and I think I have had IBS for at least 20 years (but manageable by diet) & my sensitivities to food seem to change regularly - some worsen, some improve - so it gets very confusing. Coeliacs disease is an immune-mediated disease and people with immune mediated diseases often develop other immune-mediated problems so it shouldn't be too surprising to us (though it is depressing :( ) that we develop other food allergies or food sensitivities or even immune mediated diseases as time goes on. I just keep searching for the right combination of foods in my diet & try not to feel too sorry for myself about what I can't eat :rolleyes: - I'm not saying I always succeed on the not-feeling-sorry-for-myself but I pray a lot & try to remember the people in third world countries who have nothing to eat :(

I have given up on trying any grains of any kind (I know quinoa is officially a seed but I react the same way to it as I do to grains) to be honest because they all make me unwell and it's just not worth it.

I have been on a low carb diet for the last 6 months & I have felt better than I have felt for at least 10 years - my irritable bowel has virtually disappeared (unless I eat the things I know I shouldn't like certain fruits or egg), I can eat foods I couldn't eat before, I have improved energy levels (though not wonderful), I no longer suffer from chronic cystitis & I am less depressed. Has anyone else had positive experiences with a low-carb diet ?

Sorry about the long post but this is the first coeliac forum or group I have ever been a member of so I have 33 years to get off my chest :D

0

Share this post


Link to post
Share on other sites

it shouldn't be too surprising to us (though it is depressing :( ) that we develop other food allergies or food sensitivities or even immune mediated diseases as time goes on.

I have given up on trying any grains of any kind (I know quinoa is officially a seed but I react the same way to it as I do to grains) to be honest because they all make me unwell and it's just not worth it. I have been on a low carb diet for the last 6 months & I have felt better than I have felt for at least 10 years - my irritable bowel has virtually disappeared (unless I eat the things I know I shouldn't like certain fruits or egg), I can eat foods I couldn't eat before, I have improved energy levels (though not wonderful), I no longer suffer from chronic cystitis & I am less depressed. Has anyone else had positive experiences with a low-carb diet ?

Sorry about the long post but this is the first coeliac forum or group I have ever been a member of so I have 33 years to get off my chest :D

Hello and welcome!

yes, technically....quinoa is not a grain, that's true.

So glad you are feeling better!

Here is the thing....some of us cannot tolerate OTHER food proteins (for me, it's soy and dairy )

so, everyone has to figure out what works.

Never, ever give up thinking you will not feel well or get better!! You will.

I have given up all grains and dairy myself just 10 days ago to see if I can reduce the inflammation in my body. (yes, I have tried this many times before, but I figure after 2 years post DX maybe it will work THIS time)

Any "itis"-- like cystitis...I had it too--is inflammation. And if we reduce inflammation in the body, we can rid ourselves of all these inflammatory symptoms. You cannot believe how bad I was... :( unable to walk, sit ,stand and even open a jar or dress myself....and where I am now. I just stacked wood this afternoon! Do I still have pain? yes, but I am FUNCTIONING.

Hang in there. Best wishes all.

0

Share this post


Link to post
Share on other sites

I am thinking perhaps the quinoa you ate was not rinsed enough. If the saponins on it are not rinsed off adequately they will cause a laxative effect.

And quinoa itself is high fiber. So I wouldn't recommend ever eating a large bowl of it. It has been believed to work as a prebiotic which can tone your colon.

Quinoa is not a true grain...it is classified as a member of the goosefoot family and related to beets, spinach and chard.

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.

0

Share this post


Link to post
Share on other sites

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.

And I can eat spinach all day long, but cannot eat quinoa, beets or chard :huh:

0

Share this post


Link to post
Share on other sites

We lectin gals are mighty similar :blink:

0

Share this post


Link to post
Share on other sites

Interesting that. I cannot eat quinoa, beets or more than a smidgen of spinach, but chard is my favorite healthy vegetable.

Chard is my fav, too, and I love spinach.....quinoa is okay in small doses.... Beets..make me hurl

And I can eat spinach all day long, but cannot eat quinoa, beets or chard :huh:

we are a strange Threesome!

0

Share this post


Link to post
Share on other sites

Thankyou for your encouragement :) It's good to know I'm not just weird - I'm pretty sure my mum thinks all my food sensitivities are psychological because every time I go there she says "what can't you eat now" & rolls her eyes. So I just take my food everywhere I go now & never eat out at a restaurant.

I am fortunate that I can eat dairy foods because I am allergic to egg, sensitive to soy & I'm vegetarian so that narrows down your protein sources a bit !!

Yes, I have allergic dermatitis, reactive arthritis, some sacroiliac spondylitis so I know what you mean about the "itis"es

I am very glad to be able to talk other people that have had similar experiences (although I'm sorry for you that you have these dietary restrictions & health challenges :( )

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined