Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Found Out Today Why No celiac disease Biopsy Was Required
0

7 posts in this topic

Here are the my blood test results:

IGA Serum =164

Gliadin AB (Demidated) IGA >100 (abn: h)

Tissue Transglutam AB IGA > 100 (abn: h)

Endomysial AB (IGA) Positive (abn: h)

Endomysial AB Titer 1:80 (abn: h)

Today I was put back on the pills to help control Microscopic Colitus. They figure I have both celiac disease and Micro to control. From what I have been reading on the forum is not uncommon.

Terry

Edited by co09wrx
0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome. I dont know what Mucroscopic colitis is but it doesnt sound fun. At least you dont have to do an endoscopy.

0

Share this post


Link to post
Share on other sites

Bummer about those high lab numbers but on the bright side, that is about as positive a blood test as you can get... at least it's a very clear positive diagnosis. I'm afraid I don't know much about the colitis either... I hope the gluten-free diet helps both conditions and you feel better soon.

Best wishes and welcoe to the board.

0

Share this post


Link to post
Share on other sites

My dd has a 164 TTg and positive ema and they STILL wanted to do the endo. Of course it was positive and left us with all the hospital bills. I wish I had a doctor like yours who would diagnosis without biopsy. I know they might need it for certain things in school/college but for the price of our medical bills, I could have just paid for the college meal plan! Ha!

1

Share this post


Link to post
Share on other sites

I got the impression from both my doc (GI) and daughter's doc (Ped GI) that the scope is recommended to get a baseline for damage and to make sure there are no other issues present. I'm very confident my daughter has celiac but we're moving forward with the scope even though I have serious anxiety about it.

0

Share this post


Link to post
Share on other sites




Having celiac disease doesn't rule you out from having other gastrointestinal issues that a scope might see, (although the 3 month diet to make yourself sicker, I agree, is stupid.) In fact it seems to increase the liklihood of things like crohn's, which I believe needs to be viewed from inside to diagnose properly too?

0

Share this post


Link to post
Share on other sites

Microscopic Colitis just means the large intensine is messed up as well, The general cause is NASID products like Advil, Aspirin and Aleve.

Thanks for your input, sorry you hade to go through the scope, Maybe they figure I have had a long long time to mess my system up, and there is no reason to check at age 64. The diet will fix it over time.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,110
    • Total Posts
      920,417
  • Topics

  • Posts

    • Personally, I would ask for the full Celiac panel and see what that shows.  I mean, the full Monty, not just cherry picking testing.  On the full panel, if the tTg and the EMA come back positive, that is a diagnosis without biopsy.  This is how I was diagnosed and there is absolutely no doubt I have Celiac.  I presented with classic celiac so it was a no brainer with my blood results. If you cannot stick to the diet religiously, without cheating, unless you have a biopsy picture, then I would go on to have a biopsy.  Like your daughter, I was way too sick to have one done at the time.  They would not have agreed to use sedation because I was so anemic and malnourished and that ended that!  Good luck with whatever you decide!
    • This Asian-style barbeque chicken makes a great summer treat. Barbecue chicken is a perennial summer favorite around these parts, and this recipe delivers barbecue chicken with a decidedly Asian flare. View the full article
    • And as for the green stools, you said you eat a lot of kale and spinach?  A generous, daily diet of kale and spinach will be reflected in the bathroom.  You are what you eat.  
    • I just traveled three weeks this summer in Europe (Eastern).  Do not trust that the airlines will remember to load a gluten-free meal for you.  There is a 50-50 chance that they will not (in my experience).  We packed ONLY carry on.  Still found plenty of room to stash some emergency food.  You should be able to find food within an International airport.  Chips and typical junk food clearly labeled, even fruit.  Print or load Celiac travel cards with you in all the languages you will need.  They are free.  Google it.  Found these handy (not only in restaurants) but in the markets when we could not read labels but the staff could read them and Help us to make gluten-free choices.  amazing how you can communicate without knowing the language.  A few words like "thank you" in their language go along way (so does Google Translator).  Never met anyone who was not willing to help.   I carry a collapsible cooler that I pack with food and bags of ice to eat on then plane or right at my arrival or connection.  I take extra zip lock baggies with me.  Sometimes TSA will let you through if the ice is still hard (not melting).  Some will make you toss them then I just ask a restaurant to refill my ziplock baggies after passing Security.   I also carry a doctor's letter on my phone to show I am celiac, but no one has ever asked for me to present it.   Even though I carry a "third" piece of luggage on board, I have not been stopped.  Both that and my day backpack fit under the seat.  I use this cooler as needed through our trips.  If not, it fits in my backpack.  
    • Welcome, Kierra. You're only 15 so you need to make sure your parents are 100% aware of your medical issues so that they can advocate for you. It may or may not be celiac, but the only way to find out is to start with a full celiac blood panel, then an endoscope if necessary. However, for the tests to be accurate, you must consume gluten on a daily basis. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,147
    • Most Online
      1,763

    Newest Member
    Otto'sMom
    Joined