Has Been A While But Amazing Update........
Posted 06 November 2012 - 02:31 PM
I have lost 50lbs!!!!!
My blood pressure is NORMAL without meds!!!!
My Cholesterol is back in the NORMAL range without meds!!!!
My vitamin D level is NORMAL!!!
My liver labs are almost back in the normal range...... They have come way down from hundreds to 31 and 44!!!!
All lab work looks GREAT!!
My back no longer hurts
I have my strength back and have been released from PT
I HAVE BEEN GIVEN MY LIFE BACK!!!!!!!!!!
It is so amazing.... I am so greatful I can live again.
Double DQ1 subtypes(5,6)
Severe Vit D defiency
Iron Defiency Anemia
Gluten Free and on my way back to good health
Posted 06 November 2012 - 02:34 PM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 06 November 2012 - 02:49 PM
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Posted 06 November 2012 - 07:29 PM
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.
Sept. 2013 adding back dairy in small quantities & thus trialing iodine
Posted 06 November 2012 - 10:29 PM
Posted 07 November 2012 - 08:54 AM
Posted 07 November 2012 - 09:26 AM
Diagnosed with wheat hates me 4/13
Posted 07 November 2012 - 12:18 PM
(tTG) Ab, IgA: >100
Endomysial Ab IgA: Positive
Enodmysial Ab Titer: 1:160
IgA, Serum: 286
Endoscopy on 10/31: Positive, marsh stage 3
Officially diagnosed celiac by both blood and biopsy.
Gluten free as of October 2012.
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