So I haven't been on here in a while. I just wanted to check in and let everyone know how I was doing since going Gluten Free. Let me see diagnoised offically by GI doc last aug! I have Celiac but have been Gluten free for About 3 months......
I have lost 50lbs!!!!!
My blood pressure is NORMAL without meds!!!!
My Cholesterol is back in the NORMAL range without meds!!!!
My vitamin D level is NORMAL!!!
My liver labs are almost back in the normal range...... They have come way down from hundreds to 31 and 44!!!!
All lab work looks GREAT!!
My back no longer hurts
I have my strength back and have been released from PT
I HAVE BEEN GIVEN MY LIFE BACK!!!!!!!!!!
It is so amazing.... I am so greatful I can live again.
Roxie
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10 replies to this topic
#1
roxieb73
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Posted 06 November 2012 - 02:31 PM
GI confirmed Celiac 08/2012
Double DQ1 subtypes(5,6)
Severe Vit D defiency
Iron Defiency Anemia
Gluten Free and on my way back to good health
Double DQ1 subtypes(5,6)
Severe Vit D defiency
Iron Defiency Anemia
Gluten Free and on my way back to good health
#2
ravenwoodglass
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Posted 06 November 2012 - 02:34 PM
That's really great news! Thanks for the update and I hope you continue to improve. It is wonderful to get your life back.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
jerseyangel
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Posted 06 November 2012 - 02:49 PM
Fantastic news!! Thanks for letting us know:)
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#4
1desperateladysaved
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Posted 06 November 2012 - 04:54 PM
Yaaaaaaah 
#5
squirmingitch
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Posted 06 November 2012 - 07:29 PM
Wow! What wonderful news. Congratulations roxieb! You have had remarkable results in a very short time being gluten free. You GO girl! Just imagine how great you're going to be when you have been gluten-free for an entire year?!!!!
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#6
WitsEnd
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Posted 06 November 2012 - 10:29 PM
Yay! That's great news and I'm so happy for you. What a difference this will make in your quality of life.
#7
nvsmom
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Posted 07 November 2012 - 08:03 AM
Congratulations! That is quite the recovery!!!
Nicole 
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
#8
SMDBill
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Posted 07 November 2012 - 08:54 AM
What a remarkable recovery and congratulations are in order!!! It's awesome to hear about others who face it and overcome the challenges, then get to enjoy a normal life again. I hope so many others here also get the same results from their life adjustments to celiac.
#9
gatita
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Posted 07 November 2012 - 09:26 AM
Wow, your recovery is amazing! Thanks for the inspiration...
Diagnosed with wheat hates me 4/13
#10
AandGsmomma
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Posted 07 November 2012 - 12:14 PM
Wow!! You give me hope!
#11
rorenchan
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Posted 07 November 2012 - 12:18 PM
Amazing, congratulations! I hope my recovery goes as well as yours does! I'm just getting started.
Oct 2, 2012 Celiac Disease Comprehensive Panel: Positive:
(tTG) Ab, IgA: >100
Endomysial Ab IgA: Positive
Enodmysial Ab Titer: 1:160
IgA, Serum: 286
Endoscopy on 10/31: Positive, marsh stage 3
Officially diagnosed celiac by both blood and biopsy.
Gluten free as of October 2012.
(tTG) Ab, IgA: >100
Endomysial Ab IgA: Positive
Enodmysial Ab Titer: 1:160
IgA, Serum: 286
Endoscopy on 10/31: Positive, marsh stage 3
Officially diagnosed celiac by both blood and biopsy.
Gluten free as of October 2012.
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