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Has Been A While But Amazing Update........
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11 posts in this topic

So I haven't been on here in a while. I just wanted to check in and let everyone know how I was doing since going Gluten Free. Let me see diagnoised offically by GI doc last aug! I have Celiac but have been Gluten free for About 3 months......

I have lost 50lbs!!!!!

My blood pressure is NORMAL without meds!!!!

My Cholesterol is back in the NORMAL range without meds!!!!

My vitamin D level is NORMAL!!!

My liver labs are almost back in the normal range...... They have come way down from hundreds to 31 and 44!!!!

All lab work looks GREAT!!

My back no longer hurts

I have my strength back and have been released from PT

I HAVE BEEN GIVEN MY LIFE BACK!!!!!!!!!!

It is so amazing.... I am so greatful I can live again.

Roxie

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That's really great news! Thanks for the update and I hope you continue to improve. It is wonderful to get your life back.

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Fantastic news!! Thanks for letting us know:)

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Wow! What wonderful news. Congratulations roxieb! You have had remarkable results in a very short time being gluten free. You GO girl! Just imagine how great you're going to be when you have been gluten-free for an entire year?!!!!

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Yay! That's great news and I'm so happy for you. What a difference this will make in your quality of life.

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:D Congratulations! That is quite the recovery!!!
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What a remarkable recovery and congratulations are in order!!! It's awesome to hear about others who face it and overcome the challenges, then get to enjoy a normal life again. I hope so many others here also get the same results from their life adjustments to celiac.

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Wow, your recovery is amazing! Thanks for the inspiration...

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Amazing, congratulations! I hope my recovery goes as well as yours does! I'm just getting started.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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