6 replies to this topic

[Christine0125]

Did any of your children have a colonoscopy ordered to rule out Crohns? I've come to terms with my daughter getting an endoscopy but I think a colonoscopy would be a bit traumatic especially if it's likely unneccessary. She's 9.

Background: I'm diagnosed celiac (bloodwork and endoscopy). She had recent bloodwork that showed borderline high ttg. She went through a period of about a month with frequent loose stools but that has largely cleared up but she's still having a lot of exhaustion and emotional highs and lows.

[JNBunnie1]

So your daughter is not gluten free, has not been diagnosed with Celiac, and when they
do the Celiac test, they also want to rule out Crohn's, is that correct?

[Christine0125]

Correct. She is not yet gluten free. She's not officially diagnosed but all indications point to celiac (family history, slow growth, recent stomach/emotional issues). We decided to move forward with just the endoscopy. Having her go through the prep-work of the colonoscopy right now would be a bit too emotional for her at this time I believe. If she doesn't have positive results once she goes gluten free we'll consult further for other possible causes.

[megsybeth]

Hi Christine, My son's four and I did both just because he had to be put under. Probably at your daughter's age it's more of a light sedation so I agree with you that I would just do upper.

[maitrimama]

My daughter was older, 15, but based on positive bloodwork and 2 rounds of stool testing they recommended endoscopy and colonoscopy. That was 1 1/2 years ago. The Dx was Celiacs and IBD. She goes back every 3 months and the IBD has been narrowed down to Ulcerative Colitis.

[divamomma]

My daughter only had the endosopy. No mention of a colonoscopy. Prep for a colonoscopy is not fun! I would just to the endoscopy at this point.

[Christine0125]

Her endoscopy went well today and I feel good about choosing to do just that test. We'll go back in 2 weeks for the biopsy results but we have the green light to go gluten free now.