Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hearing Loss And Celiac
1 1

11 posts in this topic

Anyone know if hearing loss is related to celiac? I have celiac disease, and hearing loss that began in my early 20s. First they told me it was noise induced and then they said it could be genetic. (I don't think anyone knows for sure.) But I just found out my 5 year old son has some hearing impairment. I'm devastated. I don't know if he has celiac or not. Should I get him tested based on the hearing loss? His doctor said they don't usually test kids until they're about 7, unless they are showing symptoms.

0

Share this post


Link to post
Share on other sites


Ads by Google:

As to whether you should get your son tested, yes, absolutely. That is because you have it, and

it is genetic- very straightforward. All your blood relatives should be tested, in fact, and I have

never heard any doctor say there is a certain age to wait for. But then, doctors can sometimes

say some very interesting things..... All I know, celiac can be active from birth, therefore, since he

is your son, your doctor should have told you to have him tested as soon as you tested positive,

as it can become active at any time, whether or not he has symptoms.

As to the hearing loss question, I have absolutely no knowledge regarding Celiac and hearing loss,

so perhaps someone else will chime in.

0

Share this post


Link to post
Share on other sites

Both my daughter and I had significant hearing loss. Mine was in my left ear only and started/was noticed at 6 or 7 - slowly but steadily worsened over the years, had surgery to replace a genetically missing inner ear bone that did not repair my problem - was about 75% deaf in my left ear at the time of celiac diagnosis - I could hear sounds, but could not understand language, etc with that ear. At about a year and a half gluten-free suddenly my hearing improved quite a bit. I only have very minor hearing loss in that ear now.

My daughter has significant hearing loss in both ears - she also had significant improvement in one ear since removing gluten. Her other ear remains deaf.

I cannot say your son's hearing will improve, but I do agree that you should not wait to have him tested. If you have Celiac Disease your children should be tested every three to five years regardless of symptoms and more frequently if symptoms arise. I suggest a full celiac panel along with nutrient testing as malabsorption is often the first measurable indicator of Celiac Disease.

0

Share this post


Link to post
Share on other sites

I don't know if it's applicable, but I'm certain my hearing improved once 100% gluten-free as an adult - it had been a slow decline.

The age 7 biz is nonsense, imho.

When I've seen age-related limitations, it's more like questioning how many months old is ok for an endoscopy - far different scale.

0

Share this post


Link to post
Share on other sites

Wow I'm surprised to hear people saying their hearing has improved. My audiologist basically said once it's gone, it's gone, and the damage is done and only gets worse. (Which it has.) Hmmm.... I guess I need to look into this further.

I don't know why they don't want to give my kids the celiac blood test. It's kind of pissing me off at this point.

0

Share this post


Link to post
Share on other sites




I'm 40+ yrs undiagnosed and have experienced hearing problems along with bad brain fog. I'm strict gluten free about 2 yrs and have slowly been getting better. No hearing problems now.

1

Share this post


Link to post
Share on other sites

My neighbor has a daughter that overcame ear problems after going gluten free. She had 3 ear surgeries to no avail. When she went gluten free she confounded the ear doctors. I don't have any guarantees, but it worked for my neighbor.

0

Share this post


Link to post
Share on other sites

... When she went gluten free she confounded the ear doctors.

...

I may never stop being amazed at how often situations of this nature occur. Some Drs even seem to flat out refuse to believe that the gluten-free correlation really is causation.

As long as those particular confounded ear Drs ended up accepting that gluten was the issue, it's hard to really blame them - being products of a system of specialized education. Sheesh even some who DID specialize in GI aren't up-to-speed w/ the totality of what body parts/areas/systems can be affected by celiac.

I don't think any of the body's systems get off scot-free for all celiacs, do they? :unsure:

2

Share this post


Link to post
Share on other sites

I don't think any of the body's systems get off scot-free for all celiacs, do they? :unsure:

nope :unsure:

0

Share this post


Link to post
Share on other sites

I definitely noticed an improvement in my hearing after going gluten free.

I would even say that ear aches were one of my earliest noticeable symptoms back in my early 20s. Repeated visits to various ear, nose, and throat specialists resulted in them telling me that there was nothing wrong with me and that I simply had wax build up in my ears (though clearing it out never helped ease the pain).

When I went gluten free, I noticed within two days that my hearing had improved by 10-20% and may have improved another 10% in the next few months. The first time after going gluten-free that a good song came on my car radio, I cranked it up to full volume as I normally would ... and had to quickly turn it back down again because it was just way too loud. 

For a month or two after going gluten free, I would occasionally hear a phantom noise, like a distant horn blowing, but that eventually went away as my ears healed, or perhaps as I got better at avoiding accidental glutenings. 

The only explanation I can figure from what I read online is that it is just like any other allergic histamine response - affecting the ears along with the sinuses. And overproducing wax is part of that as well as having some sort of swelling though I don't know enough about ears/hearing to know what all of the standard allergic symptoms may be nor how much hearing damage could result from them.

Now I just suffer from being annoyed by all of the background noise that I couldn't hear before. So many hums from heating, plumbing, and refrigeration! 

0

Share this post


Link to post
Share on other sites

I have only been gluten-free for 2 months. I don't know if it is hearing loss or just that I am talking louder.  I have been asked twice to quiet down when speaking, in the last 2 weeks; I have become very aware of how loud I am talking, before people always said they couldn't hear me.  I see the doc tomorrow and was going to address it with her.   I sure hope it clears!

 
Great topic! Thanks!

 

Both my father's child and I have celiac disease, but our child does not.  He was told it could skip a generation.  My child said, "docs will not do the testing unless the child has symptoms", pretty lame I think.  I think if it runs in the family, get them tested every 5 yrs.  Sometimes tests are very wrong.  

What I have found is most docs don't have a clue.  I am 55 and barely alive.  The longer it goes untreated, the more damage is done.  At least how I understand it.  

Push for the test;  I am sure I have had this from the time I was born by how my mother described me, i have a few autistic traits.  I didn't get diagnosed till I had lost 35 + pounds and had such bad malnutrition that i was having muscle spasms that looked like a grand mal seizures.  

It is better to be on the safe side with this painful and very misunderstood disease.  Do whatever it takes to get them tested.  I'd hate to see anyone feel like I do.

 

 

 

 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,725
  • Topics

  • Posts

    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
    • Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
    • Yes, I only eat one meal a day. Sometimes salad or fries or whatever I can find. And thanks for the replies again.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,680
    • Most Online
      3,093

    Newest Member
    Misalina
    Joined