Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hearing Loss And Celiac
1 1

11 posts in this topic

Anyone know if hearing loss is related to celiac? I have celiac disease, and hearing loss that began in my early 20s. First they told me it was noise induced and then they said it could be genetic. (I don't think anyone knows for sure.) But I just found out my 5 year old son has some hearing impairment. I'm devastated. I don't know if he has celiac or not. Should I get him tested based on the hearing loss? His doctor said they don't usually test kids until they're about 7, unless they are showing symptoms.

0

Share this post


Link to post
Share on other sites


Ads by Google:

As to whether you should get your son tested, yes, absolutely. That is because you have it, and

it is genetic- very straightforward. All your blood relatives should be tested, in fact, and I have

never heard any doctor say there is a certain age to wait for. But then, doctors can sometimes

say some very interesting things..... All I know, celiac can be active from birth, therefore, since he

is your son, your doctor should have told you to have him tested as soon as you tested positive,

as it can become active at any time, whether or not he has symptoms.

As to the hearing loss question, I have absolutely no knowledge regarding Celiac and hearing loss,

so perhaps someone else will chime in.

0

Share this post


Link to post
Share on other sites

Both my daughter and I had significant hearing loss. Mine was in my left ear only and started/was noticed at 6 or 7 - slowly but steadily worsened over the years, had surgery to replace a genetically missing inner ear bone that did not repair my problem - was about 75% deaf in my left ear at the time of celiac diagnosis - I could hear sounds, but could not understand language, etc with that ear. At about a year and a half gluten-free suddenly my hearing improved quite a bit. I only have very minor hearing loss in that ear now.

My daughter has significant hearing loss in both ears - she also had significant improvement in one ear since removing gluten. Her other ear remains deaf.

I cannot say your son's hearing will improve, but I do agree that you should not wait to have him tested. If you have Celiac Disease your children should be tested every three to five years regardless of symptoms and more frequently if symptoms arise. I suggest a full celiac panel along with nutrient testing as malabsorption is often the first measurable indicator of Celiac Disease.

0

Share this post


Link to post
Share on other sites

I don't know if it's applicable, but I'm certain my hearing improved once 100% gluten-free as an adult - it had been a slow decline.

The age 7 biz is nonsense, imho.

When I've seen age-related limitations, it's more like questioning how many months old is ok for an endoscopy - far different scale.

0

Share this post


Link to post
Share on other sites

Wow I'm surprised to hear people saying their hearing has improved. My audiologist basically said once it's gone, it's gone, and the damage is done and only gets worse. (Which it has.) Hmmm.... I guess I need to look into this further.

I don't know why they don't want to give my kids the celiac blood test. It's kind of pissing me off at this point.

0

Share this post


Link to post
Share on other sites




I'm 40+ yrs undiagnosed and have experienced hearing problems along with bad brain fog. I'm strict gluten free about 2 yrs and have slowly been getting better. No hearing problems now.

1

Share this post


Link to post
Share on other sites

My neighbor has a daughter that overcame ear problems after going gluten free. She had 3 ear surgeries to no avail. When she went gluten free she confounded the ear doctors. I don't have any guarantees, but it worked for my neighbor.

0

Share this post


Link to post
Share on other sites

... When she went gluten free she confounded the ear doctors.

...

I may never stop being amazed at how often situations of this nature occur. Some Drs even seem to flat out refuse to believe that the gluten-free correlation really is causation.

As long as those particular confounded ear Drs ended up accepting that gluten was the issue, it's hard to really blame them - being products of a system of specialized education. Sheesh even some who DID specialize in GI aren't up-to-speed w/ the totality of what body parts/areas/systems can be affected by celiac.

I don't think any of the body's systems get off scot-free for all celiacs, do they? :unsure:

2

Share this post


Link to post
Share on other sites

I don't think any of the body's systems get off scot-free for all celiacs, do they? :unsure:

nope :unsure:

0

Share this post


Link to post
Share on other sites

I definitely noticed an improvement in my hearing after going gluten free.

I would even say that ear aches were one of my earliest noticeable symptoms back in my early 20s. Repeated visits to various ear, nose, and throat specialists resulted in them telling me that there was nothing wrong with me and that I simply had wax build up in my ears (though clearing it out never helped ease the pain).

When I went gluten free, I noticed within two days that my hearing had improved by 10-20% and may have improved another 10% in the next few months. The first time after going gluten-free that a good song came on my car radio, I cranked it up to full volume as I normally would ... and had to quickly turn it back down again because it was just way too loud. 

For a month or two after going gluten free, I would occasionally hear a phantom noise, like a distant horn blowing, but that eventually went away as my ears healed, or perhaps as I got better at avoiding accidental glutenings. 

The only explanation I can figure from what I read online is that it is just like any other allergic histamine response - affecting the ears along with the sinuses. And overproducing wax is part of that as well as having some sort of swelling though I don't know enough about ears/hearing to know what all of the standard allergic symptoms may be nor how much hearing damage could result from them.

Now I just suffer from being annoyed by all of the background noise that I couldn't hear before. So many hums from heating, plumbing, and refrigeration! 

0

Share this post


Link to post
Share on other sites

I have only been gluten-free for 2 months. I don't know if it is hearing loss or just that I am talking louder.  I have been asked twice to quiet down when speaking, in the last 2 weeks; I have become very aware of how loud I am talking, before people always said they couldn't hear me.  I see the doc tomorrow and was going to address it with her.   I sure hope it clears!

 
Great topic! Thanks!

 

Both my father's child and I have celiac disease, but our child does not.  He was told it could skip a generation.  My child said, "docs will not do the testing unless the child has symptoms", pretty lame I think.  I think if it runs in the family, get them tested every 5 yrs.  Sometimes tests are very wrong.  

What I have found is most docs don't have a clue.  I am 55 and barely alive.  The longer it goes untreated, the more damage is done.  At least how I understand it.  

Push for the test;  I am sure I have had this from the time I was born by how my mother described me, i have a few autistic traits.  I didn't get diagnosed till I had lost 35 + pounds and had such bad malnutrition that i was having muscle spasms that looked like a grand mal seizures.  

It is better to be on the safe side with this painful and very misunderstood disease.  Do whatever it takes to get them tested.  I'd hate to see anyone feel like I do.

 

 

 

 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      103,630
    • Total Posts
      918,397
  • Topics

  • Posts

    • celiac disease is psychosomatic
      I received the amended records in the mail. I don' think the doctor even read my email with the amendment request since she only corrected one statement I never said...the statement I gave as example while briefly talking to her on the phone the other day. So, I called the office to inquire why the other statements I never said were not corrected. Fortunately, the other staff member answered the phone. I'm surprised she told me this, but it was the best therapy for me so maybe she was meant to say it! She told me she knows what I mean about that one worker because she has to deal with it, too! She said a new office manager starts next week and she gave me her direct emal address to complain about that worker. 
    • Received Results. Looks like not Celiac?
      You've all been so helpful in guiding me what to do.  I did just receive my blood work and have an appt. with my doctor next week.  I wanted her to check it because I have lived a life of being extremely exhausted, migraines/headaches, and anxiety.  My thyroid is balanced and I am healthy (other blood results that were off were low platelet, low protein, high A/G ratio).  I am not good at reading results, but it appears negative to celiac, maybe next steps are trying a gluten-free diet for sensitivity? Deamidated Gliadin Abs, IgA 2 units 0 - 19 units Negative 0 - 19
      Weak Positive 20 - 30
      Moderate to Strong Positive >30 Deamidated Gliadin Abs, IgG 2 units 0 - 19 units Negative 0 - 19
      Weak Positive 20 - 30
      Moderate to Strong Positive >30 t-Transglutaminase (tTG) IgA <2 U/mL 0 - 3 U/mL Negative 0 - 3
      Weak Positive 4 - 10
      Positive >10
      Tissue Transglutaminase (tTG) has been identified
      as the endomysial antigen. Studies have demonstr-
      ated that endomysial IgA antibodies have over 99%
      specificity for gluten sensitive enteropathy. t-Transglutaminase (tTG) IgG <2 U/mL 0 - 5 U/mL Negative 0 - 5
      Weak Positive 6 - 9
      Positive >9
    • healthy bread recipe?
      Hello, This is my first post. My 12yr old daughter was diagnosed with ?celiac disease. Her blood test was positive, genetic screen positive and her biopsy abnormal but they are not ready to say she is celiac because her villi are damaged but not gone. We are to adhere to a strict gluten-free diet for 6 months. So far (1 month) we have adjusted well. I am learning to bake again using many many many different flours lol. However I cannot find a good sandwich bread. There are good tasting breads with little or no fiber or heavy dense breads that don't make good sandwiches or toast. She has become very constipated on this gluten-free diet because of the low fiber content of the cereal,rice and breads. We were told no oats for the first year? and no or little dairy for the first month. She has been on a low histamine diet for 4 months now as well. My question is what is the best way to make gluten free bread, oven or bread maker? Does anyone have a good healthy recipe for sandwich bread that a kid would like? We normally eat a soft 5 grain bread before gluten-free. Thank you!
    • A good diet for avoiding type 2 diabetes
      Thanks so much, gluten-free,  in my hypchondriacal panic I saw that website!  It is good to have an endorsement from a celiac.   I remember seeing quite a few reassuring stories in it along the lines that you describe. Funny isn't as because I now feel far less inclined to eat large amounts of carbohydrate now I have cut back a bit.   It seems the more sugar I ate, the more I wanted to eat.  
    • Celiac.com: Gluten-free not always the way to go
      When people with Celiac Disease eat gluten, their body mounts an immune response that attacks the small intestine and leads to damage to the villi, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,718
    • Most Online
      1,763

    Newest Member
    Flora Simpson
    Joined