8 replies to this topic

[Marie1976]

Anyone know if hearing loss is related to celiac? I have celiac disease, and hearing loss that began in my early 20s. First they told me it was noise induced and then they said it could be genetic. (I don't think anyone knows for sure.) But I just found out my 5 year old son has some hearing impairment. I'm devastated. I don't know if he has celiac or not. Should I get him tested based on the hearing loss? His doctor said they don't usually test kids until they're about 7, unless they are showing symptoms.

[JNBunnie1]

As to whether you should get your son tested, yes, absolutely. That is because you have it, and
it is genetic- very straightforward. All your blood relatives should be tested, in fact, and I have
never heard any doctor say there is a certain age to wait for. But then, doctors can sometimes
say some very interesting things..... All I know, celiac can be active from birth, therefore, since he
is your son, your doctor should have told you to have him tested as soon as you tested positive,
as it can become active at any time, whether or not he has symptoms.

As to the hearing loss question, I have absolutely no knowledge regarding Celiac and hearing loss,
so perhaps someone else will chime in.

[GottaSki]

Both my daughter and I had significant hearing loss. Mine was in my left ear only and started/was noticed at 6 or 7 - slowly but steadily worsened over the years, had surgery to replace a genetically missing inner ear bone that did not repair my problem - was about 75% deaf in my left ear at the time of celiac diagnosis - I could hear sounds, but could not understand language, etc with that ear. At about a year and a half gluten-free suddenly my hearing improved quite a bit. I only have very minor hearing loss in that ear now.

My daughter has significant hearing loss in both ears - she also had significant improvement in one ear since removing gluten. Her other ear remains deaf.

I cannot say your son's hearing will improve, but I do agree that you should not wait to have him tested. If you have Celiac Disease your children should be tested every three to five years regardless of symptoms and more frequently if symptoms arise. I suggest a full celiac panel along with nutrient testing as malabsorption is often the first measurable indicator of Celiac Disease.

[tom]

I don't know if it's applicable, but I'm certain my hearing improved once 100% gluten-free as an adult - it had been a slow decline.

The age 7 biz is nonsense, imho.
When I've seen age-related limitations, it's more like questioning how many months old is ok for an endoscopy - far different scale.

[Marie1976]

Wow I'm surprised to hear people saying their hearing has improved. My audiologist basically said once it's gone, it's gone, and the damage is done and only gets worse. (Which it has.) Hmmm.... I guess I need to look into this further.

I don't know why they don't want to give my kids the celiac blood test. It's kind of pissing me off at this point.

[obesiac]

I'm 40+ yrs undiagnosed and have experienced hearing problems along with bad brain fog. I'm strict gluten free about 2 yrs and have slowly been getting better. No hearing problems now.

[1desperateladysaved]

My neighbor has a daughter that overcame ear problems after going gluten free. She had 3 ear surgeries to no avail. When she went gluten free she confounded the ear doctors. I don't have any guarantees, but it worked for my neighbor.

[tom]

... When she went gluten free she confounded the ear doctors.
...

I may never stop being amazed at how often situations of this nature occur. Some Drs even seem to flat out refuse to believe that the gluten-free correlation really is causation.

As long as those particular confounded ear Drs ended up accepting that gluten was the issue, it's hard to really blame them - being products of a system of specialized education. Sheesh even some who DID specialize in GI aren't up-to-speed w/ the totality of what body parts/areas/systems can be affected by celiac.
I don't think any of the body's systems get off scot-free for all celiacs, do they?

[a1956chill]

I don't think any of the body's systems get off scot-free for all celiacs, do they?

nope