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Anxiety Symptoms
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6 posts in this topic

Hi everyone!

I was just diagnosed with celiac last week, but I've been off gluten for a month - since right after the biopsy. I've been dealing with some pretty bad anxiety for the last year, which is about the same time I've been going through the motions to get diagnosed with celiac (blood test positive, first biopsy negative, second biopsy finally positive!). I was just wondering how many of you have suffered from anxiety and whether or not it went away when you went gluten-free, and if it did, how long did it take?

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I still sort of deal with it, but i'm not having panic attacks, hyperventalating, etc anymore. It has improved majorly.

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I have always been described as an anxious person, even when I was a kid. It seems to be improving now, but I still have some bad days. I have only been gluten free since August.

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I am going throught the process of being diagnosed at the moment, just had a positive blood test a month ago. I have anxiety on and off as well for a while now, I have started my gluten free diet two weeks ago and have yet to see a change in my anxiety. I am hoping that change will come but I am worried it will stick even after the diet change. Its the symptom I have the hardest time with, the stomach pain and digestive issues are easy to deal with when the anxiety and fatigue arent present.

Im sure it will improve, and I like reading that others are in the same boat.

Thanks

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thanks for your replies...

I am holding out hope! I find it hard to tell what's going to end up a celiac symptom and what's not. I am tired all the time, but I don't keep a very strict sleep schedule either. The anxiety is the worst though. It did seem to get bad at the same as my gasto issues did so hopefully they'll both die down together!

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thanks for your replies...

I am holding out hope! I find it hard to tell what's going to end up a celiac symptom and what's not. I am tired all the time, but I don't keep a very strict sleep schedule either. The anxiety is the worst though. It did seem to get bad at the same as my gasto issues did so hopefully they'll both die down together!

Try easing off on caffeine, Im finding some relief with that.

I switched to green tea from thick coffee and i am seeing a little improvement.

I was never one to scrutinize what I put into my body before this, but it seems to hold a lot of answers

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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