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Rash That Looks Like Bites? Due To Gluten? (Photos)
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3 posts in this topic

Hello!

After a year of constant sickness and stumping 4 gastroenterolists, I was finally diagnosed with a rare parasite. Needless to say, my GI is all messed up and I am slowly healing. I also think I may be gluten intolerant (was tested for celiac and gluten allergy, but came back negative).

One symptom I noticed when I wasn't yet strict on my gluten-free diet were these random welts that I would discover every other week. It seemed like only one would form and then dissolve, then maybe I'd get another one two weeks later. They were incredibly itchy, and honestly I had always thought it was just a spider bite. I went back on a gluten-free diet and they seemed to go away. I thought maybe it was due to gluten, but i'd eat it occasionally (a slice of pizza maybe once or twice a week) and it wouldn't always happen.

I've been totally gluten-free for 2-3 months now. Now on Tuesday, I broke out on the left side of my neck, left forearm and left finger in a whole bunch together -- probably 12 total (most I've had at once was 2). I went to the doctor and he diagnosed it as shingles (because they are all just on one side of my body). He said he was "95% sure", despite the fact that I have no pain at all, no sick feelings, and absolutely no blistering which are all symptoms of shingles. The only thing I can think of was I had toasted some bread in a toaster oven the day before the bumps broke out. There is the possibility of cross contamination, but just a few days earlier than that I had done the exact same thing and had no problems at all.

I was wondering if anyone has experienced these symptoms. I added photos, I'm sorry that they are so gross. I was hoping someone would recognize the same type of rash. I honestly don't think it's shingles. Could this be gluten? If so, why does it only happen sometimes, and why would it happen so badly this time if it was just a little cross contamination?

Thank You!

http://i3.photobucket.com/albums/y90/jasonstangelo/photo.jpg

http://i3.photobucket.com/albums/y90/jasonstangelo/photo-2.jpg

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Hello!

After a year of constant sickness and stumping 4 gastroenterolists, I was finally diagnosed with a rare parasite. Needless to say, my GI is all messed up and I am slowly healing. I also think I may be gluten intolerant (was tested for celiac and gluten allergy, but came back negative).

One symptom I noticed when I wasn't yet strict on my gluten-free diet were these random welts that I would discover every other week. It seemed like only one would form and then dissolve, then maybe I'd get another one two weeks later. They were incredibly itchy, and honestly I had always thought it was just a spider bite. I went back on a gluten-free diet and they seemed to go away. I thought maybe it was due to gluten, but i'd eat it occasionally (a slice of pizza maybe once or twice a week) and it wouldn't always happen.

I've been totally gluten-free for 2-3 months now. Now on Tuesday, I broke out on the left side of my neck, left forearm and left finger in a whole bunch together -- probably 12 total (most I've had at once was 2). I went to the doctor and he diagnosed it as shingles (because they are all just on one side of my body). He said he was "95% sure", despite the fact that I have no pain at all, no sick feelings, and absolutely no blistering which are all symptoms of shingles. The only thing I can think of was I had toasted some bread in a toaster oven the day before the bumps broke out. There is the possibility of cross contamination, but just a few days earlier than that I had done the exact same thing and had no problems at all.

I was wondering if anyone has experienced these symptoms. I added photos, I'm sorry that they are so gross. I was hoping someone would recognize the same type of rash. I honestly don't think it's shingles. Could this be gluten? If so, why does it only happen sometimes, and why would it happen so badly this time if it was just a little cross contamination?

Thank You!

http://i3.photobucke...ngelo/photo.jpg

http://i3.photobucke...elo/photo-2.jpg

Hi, it may be you are reacting to the wheat - more so as an allergy, rather than just to the gluten. I found after doing an elimination diet to determine exactly what I was reacting to, that it was a reaction to wheat. I did not have reactions or skin lesions/red spots with any other grain - only with wheat. I have removed wheat completely from my diet. I follow very "clean eating" now. I thought I was eating "healthy" all along - I was always very careful - but I was unaware of my wheat/gluten allergies/intolerance. Occasionally I have had a slice of pizza etc. - but pay the price. I found that since removing wheat from my diet, all my symptoms have been erased; but I am also that much more sensitive to the wheat when I do consume it (as my tolerance is no longer built up to it). And also notable, I react differently to different wheat. My research has shown those with wheat allergies are more reactive to GMO (genetically modified) wheat vs. organic wheat. And i believe I read that re: GMO wheat - there are something like 25,000 different forms of it. I react to both, but much more severely when the wheat is not organic. And the reaction comes from consuming merely a piece of cake, a cookie, a piece of pizza. So you may need to determine if it is not just the gluten you're intolerant to, but possibly maintain an additional wheat allergy. (when I did the testing I was extremely thorough - I did not react to barley or rye at all to the degree that i did with wheat ... wheat even induces "allergy" symptoms such as sinus headache, stuffy nose, watery eyes, itchy lesions - since eliminating wheat I no longer require Claritin or antihistamines; all these years I thought I suffered from seasonal allergies to the outdoors!) Best of luck to you ; try to identify the culprit & you'll banish the skin lesions ... mine are completely gone.

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Gotta say it doesn't sound like shingles to me either. The hallmark of shingles is severe pain before the appearance of blisters, of which you have neither. Looks a lot like hives, but I couldn't say if it's from gluten or not. You are obviously reacting to something.

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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