Hi guys,
I'm new to the site and forum. My sister has Celiac Disease (tested positive) and her numbers have been slowly and steadily decreasing over the past year as she has been on the gluten-free diet.
My other immediate family members have all been tested negative, but I think all they got was the tTG one. I want the full panel but it costs $299 through one of the sites where you can order your own blood tests without going through a doctor.
My local community health clinic does not offer Celiac testing.
Where can I go if I'm poor and uninsured to pay for Celiac testing and also Gliadin Antibodies (AGA-IgA and AGA-IgG), which are NOT included anymore in standard Celiac tests?
Thanks guys!!
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18 replies to this topic
#1
Seeking2012
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Posted 09 November 2012 - 04:20 PM
- Sister has been diagnosed with Celiac, autism, schizophrenia and depression
- Mom has been diagnosed with type 2 diabetes
- I have chronic fatigue and decreased cognitive and memory function. I have as yet had no diagnoses but have ruled out diabetes and pre-diabetes via A1C and home blood glucose testing. Next to test: celiac and thyroid.
- Mom has been diagnosed with type 2 diabetes
- I have chronic fatigue and decreased cognitive and memory function. I have as yet had no diagnoses but have ruled out diabetes and pre-diabetes via A1C and home blood glucose testing. Next to test: celiac and thyroid.
#2
kareng
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Let them eat gluten-free cake!
Posted 09 November 2012 - 04:46 PM
There are free screenings in some areas. Chicago does one in October. I sawone on the Calender on this site for florida. MIght see if your local Celiac support group has any info.
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#3
GottaSki
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"Migratory flight complete."
Posted 09 November 2012 - 04:47 PM
http://www.healthche...ehensive/63473/
This panel is $200 - it includes Deamidated Gliadin Peptide (DGP), but not AGA. I did contact them for a price on an individual test for one of my kids at one point - so perhaps you can contact them and check if they offer AGAs.
Good Luck
This panel is $200 - it includes Deamidated Gliadin Peptide (DGP), but not AGA. I did contact them for a price on an individual test for one of my kids at one point - so perhaps you can contact them and check if they offer AGAs.
Good Luck
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#4
jwblue
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Posted 09 November 2012 - 06:16 PM
http://www.healthche...ehensive/63473/
This panel is $200 - it includes Deamidated Gliadin Peptide (DGP), but not AGA. I did contact them for a price on an individual test for one of my kids at one point - so perhaps you can contact them and check if they offer AGAs.
Good Luck
I was going to do this test. How important is AGA?
Where can I get a complete test?
Can I get an AGA test at another lab? Do they need to be compared to other blood tests?
#5
GottaSki
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"Migratory flight complete."
Posted 09 November 2012 - 06:24 PM
I was going to do this test. How important is AGA?
Where can I get a complete test?
The DGP is the newer Gliadin based test.
Of all the Celiac antibody tests, the AGA is the least important. I would feel confident having my kids tested with DGP rather than AGA.
The only place I know to have all possible tests ordered is from your doctor - perhaps someone else knows of another a source.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#6
jwblue
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Posted 09 November 2012 - 06:45 PM
The DGP is the newer Gliadin based test.
Of all the Celiac antibody tests, the AGA is the least important. I would feel confident having my kids tested with DGP rather than AGA.
The only place I know to have all possible tests ordered is from your doctor - perhaps someone else knows of another a source.
Is this it?
http://www.walkinlab.com/gliadin_antibody_profile_iga_igg_eia_serum_test.html?category_id=1&search_string=celiac&search_category_id=1
#7
tom
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Posted 09 November 2012 - 07:44 PM
Jwblue, that one's just the 2 older tests.
>>>>>>> tom <<<<<<<
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
#8
jwblue
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Posted 09 November 2012 - 08:10 PM
Jwblue, that one's just the 2 older tests.
GS mentioned
but not AGA.
Is that the AGA?
http://www.walkinlab.com/gliadin_antibody_profile_iga_igg_eia_serum_test.html?category_id=1&search_string=celiac&search_category_id=1
#9
tom
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Posted 09 November 2012 - 08:17 PM
Yes, JW - it's not always written the same, but "Gliadin Antibodies (AGA-IgA and AGA-IgG)" seems to cover/combine all the names.
>>>>>>> tom <<<<<<<
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
#10
GottaSki
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"Migratory flight complete."
Posted 09 November 2012 - 08:25 PM
Yes, JW - it's not always written the same, but "Gliadin Antibodies (AGA-IgA and AGA-IgG)" seems to cover/combine all the names.
That's right:
AGA = Anti-Gliadin Antibodies or Gliadin Antibodies
DGP = Deamidated Gliadin Peptide Antibodies
Both can be tested based on either IgA or IgG
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#11
nvsmom
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Posted 10 November 2012 - 10:12 AM
There is a Biocard home test too. It only tests ttg IgA and will indicate if your total serum IgA is at adequate levels to test. It was $50 in Canada.
You could always go gluten-free and look for improvements and then when you have insurance you could do a gluten challenge for a few months and retest then. Not ideal but it's an option if you can't get tested now.
Good luck and best wishes.
You could always go gluten-free and look for improvements and then when you have insurance you could do a gluten challenge for a few months and retest then. Not ideal but it's an option if you can't get tested now.
Good luck and best wishes.
Nicole 
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
#12
Seeking2012
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Posted 11 November 2012 - 04:54 PM
I was going to do this test. How important is AGA?
Where can I get a complete test?
Can I get an AGA test at another lab? Do they need to be compared to other blood tests?
The AGA-IgG and AGA-IgA are mostly used to test for non-Celiac gluten sensitivity, as these are the antibodies that go after gliadin. There was a recent paper done that showed that there is a separate, distinct condition which exists separate from Celiac Disease (but involves many of the same symptoms as Celiac Disease) and is called gluten sensitivity.
Gluten Sensitivity: The body produces an immune response, but not an autoimmune response, to gliadin. Autoimmune response means the body is attacking itself (thereby destroying the intestinal tissue/villi/etc), whereas an immune response just means that the body is attacking the "foreign invader."
Gluten sensitivity would mean your body is producing antibodies against gliadin but that it's not sending antibodies after your own tissues or tearing up your gut.
Whereas the full Celiac panel would most likely not include this aspect of the test.
The Gluten Sensitivity blood test costs $109 at https://directlabs.c...US/Default.aspx, just type "gliadin" in the search bar and it comes up.
- Sister has been diagnosed with Celiac, autism, schizophrenia and depression
- Mom has been diagnosed with type 2 diabetes
- I have chronic fatigue and decreased cognitive and memory function. I have as yet had no diagnoses but have ruled out diabetes and pre-diabetes via A1C and home blood glucose testing. Next to test: celiac and thyroid.
- Mom has been diagnosed with type 2 diabetes
- I have chronic fatigue and decreased cognitive and memory function. I have as yet had no diagnoses but have ruled out diabetes and pre-diabetes via A1C and home blood glucose testing. Next to test: celiac and thyroid.
#13
GottaSki
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"Migratory flight complete."
Posted 11 November 2012 - 05:28 PM
The AGA-IgG and AGA-IgA are mostly used to test for non-Celiac gluten sensitivity, as these are the antibodies that go after gliadin. There was a recent paper done that showed that there is a separate, distinct condition which exists separate from Celiac Disease (but involves many of the same symptoms as Celiac Disease) and is called gluten sensitivity.
Gluten Sensitivity: The body produces an immune response, but not an autoimmune response, to gliadin. Autoimmune response means the body is attacking itself (thereby destroying the intestinal tissue/villi/etc), whereas an immune response just means that the body is attacking the "foreign invader."
Gluten sensitivity would mean your body is producing antibodies against gliadin but that it's not sending antibodies after your own tissues or tearing up your gut.
Whereas the full Celiac panel would most likely not include this aspect of the test.
The Gluten Sensitivity blood test costs $109 at https://directlabs.c...US/Default.aspx, just type "gliadin" in the search bar and it comes up.
Yes, the Deamidated Gliadin Peptide is the newer version of testing for the production of antibodies against the peptides of one of the proteins found in gluten - Gliadin. The DGP is preferable to AGA - IMO.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#14
jwblue
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Posted 11 November 2012 - 09:31 PM
The AGA-IgG and AGA-IgA are mostly used to test for non-Celiac gluten sensitivity, as these are the antibodies that go after gliadin. There was a recent paper done that showed that there is a separate, distinct condition which exists separate from Celiac Disease (but involves many of the same symptoms as Celiac Disease) and is called gluten sensitivity.
Gluten Sensitivity: The body produces an immune response, but not an autoimmune response, to gliadin. Autoimmune response means the body is attacking itself (thereby destroying the intestinal tissue/villi/etc), whereas an immune response just means that the body is attacking the "foreign invader."
Gluten sensitivity would mean your body is producing antibodies against gliadin but that it's not sending antibodies after your own tissues or tearing up your gut.
Whereas the full Celiac panel would most likely not include this aspect of the test.
The Gluten Sensitivity blood test costs $109 at https://directlabs.c...US/Default.aspx, just type "gliadin" in the search bar and it comes up.
Thank you. I don't care about gluten sensitivity. Just Celiac.
#15
Seeking2012
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Posted 13 November 2012 - 10:22 AM
There are free screenings in some areas. Chicago does one in October. I sawone on the Calender on this site for florida. MIght see if your local Celiac support group has any info.
thank you; I will do that today
- Sister has been diagnosed with Celiac, autism, schizophrenia and depression
- Mom has been diagnosed with type 2 diabetes
- I have chronic fatigue and decreased cognitive and memory function. I have as yet had no diagnoses but have ruled out diabetes and pre-diabetes via A1C and home blood glucose testing. Next to test: celiac and thyroid.
- Mom has been diagnosed with type 2 diabetes
- I have chronic fatigue and decreased cognitive and memory function. I have as yet had no diagnoses but have ruled out diabetes and pre-diabetes via A1C and home blood glucose testing. Next to test: celiac and thyroid.
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