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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Should I Try Gluten Free?
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8 posts in this topic

Hi, I'm a 17 year old male, I've already posted a similar topic about symtoms, I just want advice to just try the gluten free diet. Basically my mums got celiac(as of 8 or 9 years) and I've been having syntoms for 9 months (constipation, lack of appetite, tummy rumbling after meals, bloating, bad gas, and I did have some weird rashes on my leg a long while back not sure if its connect) well I've been to the doctors time and time again, had blood tests and they came bacl negative. Been to a specialist and he just said take a fibre supplement for your constipation.. And that was it, and I've been to the doctors recently and he said try the gluten free diet. This is my third day now. Is it worth trying? Could I be celiac? Thanks!

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Hi Adam,

The gluten-free diet is not going to hurt you, so why not? Gluten-free is a very healthy diet if you stick with whole foods and not many processed foods. Your celiac test may not have shown anything if you are early in the damage process, plus younger people tend to heal faster. If you do gluten-free for 3 or so months, and then do a gluten challenge, it should cause some kind of symptoms if there is a poblem. That is using your own body as the test intstrument, vs the doctors tests. Keep in mind there are 300 symptoms of celiac spread around all parts of the body. So you may have headaches, rashes, GI symptoms, joint aches, brain fog, muscle aches etc as a symptoms and not always think they are gluten related. Allergies and gum problems tend to be worse too. People also sometimes report having worse GI symptoms after being off gluten for a while and then being re-exposed. There is also something claled NCGI that isa gluten reaction but there are no tests for it right now.

http://Non celiac wheat sensitivity article http://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

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Yeah, think ill stick to it, as when I ate rice (no gluten) my bloating was never as bad. Thanks for your feedback!:)

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My kids tested negative but have some symptoms, and since I'm celiac, we thought the same thing as you: why not try gluten-free... it can't hurt. :)

I hope you feel better gluten-free. With your family history, I think it's a wise choice you've made. :) Good luck.

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Did it decrease the symtoms of your kids? Hopefully it did!

Thanks a lot anyway!:)

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So far it has decreased some of my boys' symptoms: My 5 year old used to visit the bathroom up to 8 times a day, and often during a meal. He's down to a couple of times a day now. My 10 year has noticed a decrease in his stomach pains and headaches andI've noticed that he is able to concentrate better on his school work and he's gained a couple of pounds; we're hoping it will impact his growth in a positive way as his growth has really slowed down and his 8 year old brother is now taller than him.

Best wishes. :)

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You can be gluten intolerant and all the tests will be negative. The most important test is to try the diet yourself. Try to do it for 3 months and take it very, very seriously (no cheating). Sometimes it takes a while to notice that you are feeling better. I found that keeping a journal (just a calendar will do) and tracking your symptoms helps. Then, if you suddenly start having symptoms again, you can usually trace it back to a mistake you made (mine was my vitamins.) When I went gluten free (positive blood test but negative endoscopy) some of my symptoms went away right away, while others took several weeks.

My son had negative blood tests, but a positive biopsy. The tests are confusing and not accurate. You are making the right decision.

Stick with it, it is worth it.

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Thankyou:) ill definitely stick it out.

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      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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