I Feel Like I Am Going To Die....:(
Posted 14 November 2012 - 06:33 AM
My husband also went in for a colonsocopy/endoscopy, him being 260lbs at 6', who would've even guessed gluten could possibly be at the root of his problems? We got a call saying that his biopsy was suspect for gluten sensitive enteropathy and went and had bloodwork done. We got the bloodwork done at the hospital where I work and decided to grab some breakfast when we were done (I get a discount on the food).
So he wonders around the cafeteria and throws his hands up "I can't eat anything!". Well he is a cereal, biscuits and gravy, waffle, pancake, toast, lets just say he loves his carbs in the morning. But he also loves meat. So I loaded up a plate with scrambled eggs, topped with cheese, bacon, and a fresh fruit cup. As I sat down to eat, he sat down with his water grumbling "I guess I'll just starve"... I start digging in to my food. He tentavly ate a grape from my fruit cup. I then offered him a slice of bacon and a bite of my eggs. He finished my plate.
So then the next day he was home from work and I was at work. (we work 12 hour shifts and alternate weekends so we have days off during the week) and he texted me "Screw this, gluten free is expensive, I'd rather suffer", only his language was much more colorful! lol. He wound up getting some $3.00 steak and eggs and sauteing it with onions and peppers. I just told him to focus on whole foods not substitutes in the beginning
Anyway, we started simple, with basic foods, meat and veggies and beans. I got pot roast buy one get one free and was able to make a delicous beef soup/stew that we ate for two days. Once I realized we could make a lot of food without any of the 'gluten free substitutes" that are expensive Chicken, rice, broccoli, etc. I usually buy meat buy one get one free.
And there are many NORMAL brands that are gluten free already. Chex makes some great cereals. I stocked up on those because my husband loves cereal. Honey nut, chocolate, and cinnamon. Also many mainstream brands are gluten free. I have heinz ketchup (that says gluten free), hellmans mayo. PUBLIX supermarket has gluten-free on many products that are gluten free, There is a big green circle with gluten-free on the price tas. so brands you already know, that aren't any more expensive, are already ok. In this way I bought some barbeque sauce and salad dressings.
Also I looked up brands like kraft and jif peanut butter and it seems like the kraft lite ranch dressing and the jif natural peanut butter I have are ok as well. And I found out my husbands favorite soda's are gluten free as well. Not a healthy choice but it means he doesn't have to feel totall deprived. ( However I did buy some delicous cream soda as a treat, it was 3.99 for four bottles but considering you can pay $1.50 for a 20oz in a store, this was really good with minimal ingredients and sugar instead of corn syrup. )
Now I have ventured into trying some of the gluten free substitutes food. Yes they are expensive and yes we are on a budget too. I have a 3 year old and a 5 year old. So I know it is expensive We just decided that pasta's and breads aren't going to be the basis of our meals anymore, they are going to be TREATS instead of staples. We got a gluten free pancake mix because my husband makes pancakes on sundays when he isn't working. The kids (very picky 3 and 5 year old), LOVED it.
I also tried the DIAMOND crackers, they were HORRIBLE, lol, So I put them in a food processor with some natural potatoe chips and made bread crumbs. My husband seasoned the crumbs and fried up some herb encrusted chicken tenders!
I bought a bread mix from bob's red mill and put it in the bread machine, and my husband loves it. Plus the bread can be frozen and he can get a slice when he wants it. So yes it is expensive but with only him and myself eating it on occasion, not daily.
So I can still keep a regular loaf of bread on hand for the kids and yes I did invest in a separate toaster.
I am slowly starting to experiment with the baking, but little by little because it is expensive. But my husbands health is worth it. I've removed all gluten free food from our home except for a loaf of bread for the kids and I think the chicken nuggest and fish sticks in the freezer, just because they are so picky and need to have something we can give them that's quickand easy . I will just have to be careful and clean whatever I cook them on. (however we are going to have the pediatrician check them as well just to be safe)
I am finding that even when I buy some of the more expensive things that making a homemade gluten free meal is cheaper than even eating fast food! My husband and I both work aprox 48 hours a week ( I worked 60 hours last week) and have two young kids and we still found time to prepare the meals. It wasn't easy but we did. Plus the whole family is fighting a cold right now so we are exhausted as well. We just have to force ourselves to do what needs to be done.
And just to put things in perspective, yesterday my husband ordered naked wings with sauce that he thought would be ok. As an afterthought he asked if he could see the ingredients on the sauce. Well the sauce contained wheat, and he decided since he already paid for the food, he would eat it anyway. He suffered with gas, abd pain, and loose stools the rest of the day. He confessed to me it wasn't worth it to feel that way.
He has lost 5 lbs and I have lost 3. We havn't changed much else except removing the gluten from our diets and I am sticking to the diet too because I FEEL so much better too!
YOU CAN DO IT!!!!!!!!
Posted 14 November 2012 - 07:01 AM
I find it hard very hard to believe that ordering out from restaurants is going cheaper than that 5$ loaf of bread.
Of course ordering hardly takes any effort, so I totally get why you're doing it.
And I get that many gluten-free products aren't good. Well, that's par for the course. Gluten is the ingredient in flour that makes breads and crakcers etc have a good texture. Bread flour for instance has higher gluten than regular flour because it adds that extra little fluffy factor. The majority of the gluten-free wheat replacement products you'll try won't meet the standards of regular wheat products. Although with that said, most rice crackers are, IMO, the worst type of food ever. They're pretty bad. All of them.
You need to be very, very careful in your own kitchen regarding cross contamination too. If you ever want toast again, you need to invest in a gluten-free toaster. You can't use old, marked cutting boards, mesh colanders, or scratched non-stick frying pans if you're going to be gluten-free.
I know there are many people here who have 'shared kitchens' but I'm not one of them, thankfully. I would go nuts with the amount of cleaniness and caution needed. I strongly suggest that any shared meals in your house are 100% gluten free. Not only will it make the CC in your own house less likely, leftovers are extremely low effort, can be very fulfilling and satisfying, are cheap, and are likely to be healthier or at least more balanced than 'regular' foods anyways. I don't know what I'd do without leftovers.
You mention things like shake'n bake being easy. Well baked chicken without the shake is even easier! Most traditional western food like meat, potatoes and veggies are already gluten-free or very easily made gluten-free.
I don't really know the surprise of being a celiac (I suppose I was a little surprised by it, but I was also desperately hoping I'd find a reason for why I felt so bad), so this probably won't help you much, but I will never go back to eating gluten because I just want to feel better. I've had 12 years of poor health that has over time gotten worse. I don't need any more incentive than good health to be gluten free. It's expensive. It's a hassle. But it's necessary for your health. The only way you will ever feel better is if you follow the diet. You will not ever get better if you don't. And that includes small amounts of gluten from crumbs. The way I see it, you can't afford NOT to be gluten free.
Just to re-hash, you're screwing up your body eating gluten. Mainly, your small intestines are disappearing. 'Flattening' of the villi is a poor term; it would be like saying if my fingers got chopped off that they were flattened. And without that surface area and all the enzymes they make, that's how malabsorption happens. Another thing, because of the immune reaction, the high levels of antibodies in your blood can cause problems with, well, pretty much anything that requires blood. Your kidneys mainly. They have to filter your blood and the excess of antibodies, over prolonged periods of time, is just too much for them to handle and you can start to lose your kidneys too. Then of course there's the increased risk for cancers. I dunno why, but I suspect is has to do with the fact that your intestines aren't being a barrier anymore, so large things that otherwise would never, ever get into your bloodstream are now in there too.
People do die from celiac disease. If you feel like you're dying, it's probably because you are.
I would also be careful about any brand that doesn't specifically say gluten free. For instance, Hellman's specifically told me they couldn't guarantee their mayonnaise was gluten-free when I emailed them.
June 2012 positive visual of celiac disease from gastroscopy
Posted 14 November 2012 - 08:11 AM
Posted 14 November 2012 - 09:05 AM
I was as bad off physically or worse. I couldn't make anything for myself and was too sick to go to the store. My wife, who was working at least 50 hours a week, had to almost everything for a while, including taking care of two kids.
Posted 14 November 2012 - 09:07 AM
Posted 14 November 2012 - 05:05 PM
Hellman's mayo is most definitely, without question gluten free. In fact, I've never heard of a mayo in the U.S. that isn't gluten-free.
Perfect example of expensive gluten free lables, i"ve seen it myself. I bet that jar of mayo cost 2 bucks more than all the rest, how many newbies you think have fell for that trick?
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12
Posted 14 November 2012 - 05:30 PM
Always look up stuff before you leave. It saves time and gives you an idea however be careful as companies can change the formula....
Allergic to red food coloring.
Posted 14 November 2012 - 06:21 PM
I may seem like a newbie and in many ways I am. However being a registered nurse when I was in nursing school 8 years ago I decided to try a gluten free diet and immersed myself into the information. I have also tried to limit the processed food we eat now that I have kids and I ALWAYS read labels.
I know there are issues with cross contamination but I have spoken with a dietician recently who said that it depends on the individuals sensitivity and that is why follow up endoscopy's and colonoscopy's every 5 years are so essential, to ensure that the diet is working and the inflammation is under control.
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