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Newly Diagnosed And Completely Lost!
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I have been dealing with stomach pains for years. I had my gallbladder out in 2007 and it didn't help so I figured I would just deal with the pain. I finally got tired of it and saw a gastroenterologist a few weeks ago and had a scope done last Wednesday. I got the call yesterday (Friday) that my biopsy came back positive for Celiac. I am unable to see my doctor until January 25th and I just want answers now. I don't know what I am looking for or what exactly I can and can't eat. I know I am unable to eat gluten but what contains gluten?? I am a young adult and am extremely lost on where to go. Is there a website or a book that I can look at or buy? Any information would be greatly appreciated!!

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Hello, and welcome.

There are a couple of places I would recommend you start: First, Dr. Peter Green's book - Celiac Disease: A Hidden Epidemic. Secondly, the Newbie 101 thread here on this forum.

After reading these you will probably have lots of related questions, so come back here and ask them :)

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I am hoping you get well. Meal by meal figure it out.'

Here's some flowers ***

Diana

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Congratulations on finally finding out what is wrong! You're going to start feeling better, and I'm so happy for you!!! Just remember--natural, whole foods don't contain gluten. If you're ever feeling lost about what to eat, grab some fruit, a vegetable, a diary product (except some yogurts), nuts, or meats, and you'll be safe. At first, you'll want to buy substitutes for all of your "usual" food, but it's usually best to eat whole, natural foods for a while to let your body heal. Also, sometimes the gums or grains in the gluten-free substitutes can cause stomach upsets--and you don't need that!

Good luck with the diet--and welcome to the Forum!

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Hello, and welcome.

There are a couple of places I would recommend you start: First, Dr. Peter Green's book - Celiac Disease: A Hidden Epidemic. Secondly, the Newbie 101 thread here on this forum.

After reading these you will probably have lots of related questions, so come back here and ask them :)

The Newbie 101 thread definitely helped! It also made me realize how many things contain gluten, I didn't realize there were so many! I'll have to look into finding the book since I live in a small town and know that I'll have to order it online. Thanks for the help!

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Congratulations on finally finding out what is wrong! You're going to start feeling better, and I'm so happy for you!!! Just remember--natural, whole foods don't contain gluten. If you're ever feeling lost about what to eat, grab some fruit, a vegetable, a diary product (except some yogurts), nuts, or meats, and you'll be safe. At first, you'll want to buy substitutes for all of your "usual" food, but it's usually best to eat whole, natural foods for a while to let your body heal. Also, sometimes the gums or grains in the gluten-free substitutes can cause stomach upsets--and you don't need that!

Good luck with the diet--and welcome to the Forum!

Thank you! I didn't realize how many things contain gluten! Honestly before I got my results I was thinking this whole gluten free thing wouldn't be too difficult. However after I got the actual diagnosis I realize that this is going to be a lot more difficult than I thought. I love baking and hope to go to Culinary school and open my own bakery one day but that seems like it is going to be complicated now. /:

Once again thank you for your help!

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Complicated? Only in the beginning! Gluten-free bakeries are extremely popular these days--you could end up with a very successful enterprise!

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I know how overwhelming the gluten free diet can be in the beginning. All of us here had a beginning. I have been gluten free for almost six years, and I promise, it gets much easier.

All I want to do right now is encourage you because I remember the frustration and, yes, fright, that I would never be able to enjoy food, eat with my friends, cook for family... and a host of other things.

You are in the right place at Celiac.com. These people helped me soooo much. Ask away. Someone here will be able to answer you. One word of caution... look at the dates on the threads. Some are years old and totally out of date.

Use common sense. Read all labels. Eat a lot of fresh foods (they taste better, anyway). Rye and barley are not such a problem as they are very limited in their uses. Wheat, however, turns up in the darndest places. Stay vigilant. You have friends here who will cyberly (new word) hold your hand all the way.

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Complicated? Only in the beginning! Gluten-free bakeries are extremely popular these days--you could end up with a very successful enterprise!

Yes, please!!! :) :)

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Stick with whole foods, not only are they cheaper, but they are better for you.

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    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
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