Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Babies With Celiac, What Did You First Notice?
0

9 posts in this topic

Hi guys,

I'm Celiac and wondered what symptoms did you first notice with your Celiac child or baby? I want to keep an eye out for my grandson. Thanks everyone!

0

Share this post


Link to post
Share on other sites


Ads by Google:

My grandson was 18 months when I was finally diagnosed. They had already removed several foods thinking an intolerance was causing severe loose stools and frequently sore tummy from birth.

When I was diagnosed, his Mom removed gluten - within days he had his first solid movement and his stomach aches disappeared within a few weeks. Thankfully, young children heal very quickly.

0

Share this post


Link to post
Share on other sites

Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

0

Share this post


Link to post
Share on other sites

OMGoodness...the connections to celiac are continually amazing. I believe I was undiagnosed my entire life for many reasons...but I had never heard the pigeon-toed symptom -- I had to wear corrective shoes for at least eight years because my toes turned in -- boy were they ugly!

0

Share this post


Link to post
Share on other sites

Hello,

My daughter was 3.5 years when I got the confirmed diagnosis.The symptoms that led to me asking for the testing were as previously mentioned,

irritability, moodiness, clinginess, inability to settle and very restless sleeper, dark bags under the eyes (some sort of defficiency?), and always suffering

from some sort of abdominal upset. At 2 years nearly every day without fail she would tell me"mummy,sore tummy" repeadetly. Then, she started getting

these intense muscle cramps in her legs- like little rocks in there! As well as severe joint pain in her hips, knees and ankles.

When I did my research and asked around I realized these could all be direct or indirect symptoms, as you're probably aware, of the flow-on effects on the body.

The joint pain and leg cramp thing is rarely listed as a common complaint- but her paternal aunt has it too- (the reason I was looking out for it like you) and she recollects getting horrible cramps around time of diagnosis too (which was 18 years for her).

Hope this helps :)

0

Share this post


Link to post
Share on other sites




Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

These are all the symptoms my daughter had! I didn't know about the walking, my daughter does that too. She was very constipated, we had to give her miralax and then she would have awful blowouts. I thought she might be autistic because of the behavior. I wonder about the vitamin d deficiency though...now I'm worried!

0

Share this post


Link to post
Share on other sites

My dd didn't get diagnosed until 11. But she had food issues from birth. I had to avoid all dairy while she nursed. She always had trouble with gas. We had to delay all food until 6 mo. because she just didn't handle it well. She had never had an antibiotic, but had yeast infections from just a few months of age. By age 3 had huge cavities in all her molars despite all our brushing. Stomach aches were a normal part of life. By age 10-11, she was the most miserable, cranky child. I thought my sweet little girl was gone. Turned out she was still hiding inside! At 15, she is a joy!

0

Share this post


Link to post
Share on other sites

Vomiting, dark rings under the eyes, severly dissented stomach, refusal to eat even her "favorite" foods (pasta, pizza, bagels...), failure to thrive are all symptoms we saw intensify up until diagnosis.

0

Share this post


Link to post
Share on other sites

Thank you all so much!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,684
    • Total Posts
      921,744
  • Topics

  • Posts

    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Sorry.  Something is wonky with either my connection or celiac.com! Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.   Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.   Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.    
    • Hello, I have frequent canker sores (roughly comes back every couple of months). Some blood test results are as following. Component Your Value Standard Range TISSUE TRANSGLUTAMINASE IgG 0.31 Index <=0.90 Index Tissue transglutaminase IgA 0.96 Index <=0.90 Index My doctor said that result is unspecific, and I unlikely have celiac disease, since I do not have other abdominal symptoms. For reference, I do have frequent constipation, excessive gas, frequent canker sore, etc. Do you think an upper endoscopy is recommended? I am a little hesitate considering the risk of this procedure and the fact that my symptoms are not that bad. I appreciate all suggestions.  
    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,685
    • Most Online
      3,093

    Newest Member
    jhc
    Joined