Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Babies With Celiac, What Did You First Notice?
0

9 posts in this topic

Hi guys,

I'm Celiac and wondered what symptoms did you first notice with your Celiac child or baby? I want to keep an eye out for my grandson. Thanks everyone!

0

Share this post


Link to post
Share on other sites


Ads by Google:

My grandson was 18 months when I was finally diagnosed. They had already removed several foods thinking an intolerance was causing severe loose stools and frequently sore tummy from birth.

When I was diagnosed, his Mom removed gluten - within days he had his first solid movement and his stomach aches disappeared within a few weeks. Thankfully, young children heal very quickly.

0

Share this post


Link to post
Share on other sites

Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

0

Share this post


Link to post
Share on other sites

OMGoodness...the connections to celiac are continually amazing. I believe I was undiagnosed my entire life for many reasons...but I had never heard the pigeon-toed symptom -- I had to wear corrective shoes for at least eight years because my toes turned in -- boy were they ugly!

0

Share this post


Link to post
Share on other sites

Hello,

My daughter was 3.5 years when I got the confirmed diagnosis.The symptoms that led to me asking for the testing were as previously mentioned,

irritability, moodiness, clinginess, inability to settle and very restless sleeper, dark bags under the eyes (some sort of defficiency?), and always suffering

from some sort of abdominal upset. At 2 years nearly every day without fail she would tell me"mummy,sore tummy" repeadetly. Then, she started getting

these intense muscle cramps in her legs- like little rocks in there! As well as severe joint pain in her hips, knees and ankles.

When I did my research and asked around I realized these could all be direct or indirect symptoms, as you're probably aware, of the flow-on effects on the body.

The joint pain and leg cramp thing is rarely listed as a common complaint- but her paternal aunt has it too- (the reason I was looking out for it like you) and she recollects getting horrible cramps around time of diagnosis too (which was 18 years for her).

Hope this helps :)

0

Share this post


Link to post
Share on other sites




Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

These are all the symptoms my daughter had! I didn't know about the walking, my daughter does that too. She was very constipated, we had to give her miralax and then she would have awful blowouts. I thought she might be autistic because of the behavior. I wonder about the vitamin d deficiency though...now I'm worried!

0

Share this post


Link to post
Share on other sites

My dd didn't get diagnosed until 11. But she had food issues from birth. I had to avoid all dairy while she nursed. She always had trouble with gas. We had to delay all food until 6 mo. because she just didn't handle it well. She had never had an antibiotic, but had yeast infections from just a few months of age. By age 3 had huge cavities in all her molars despite all our brushing. Stomach aches were a normal part of life. By age 10-11, she was the most miserable, cranky child. I thought my sweet little girl was gone. Turned out she was still hiding inside! At 15, she is a joy!

0

Share this post


Link to post
Share on other sites

Vomiting, dark rings under the eyes, severly dissented stomach, refusal to eat even her "favorite" foods (pasta, pizza, bagels...), failure to thrive are all symptoms we saw intensify up until diagnosis.

0

Share this post


Link to post
Share on other sites

Thank you all so much!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,375
    • Total Posts
      920,572
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a disc with records to me, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten. He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • Celiacs got better gluten-free. Post-war, grains became available again and the same patients got sick again. 1952 the Gluten-Free Diet is officially ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,451
    • Most Online
      1,763

    Newest Member
    Chelsealarita
    Joined