Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Huntington's Disease
0

3 posts in this topic

I just found out that I have celiac-sprue. While waiting for the results I talked w/ some cousins and found out that two aunts and one cousin also suffer from horrendous gas, bloating, etc. w/o a clear cut cause. They think maybe lactose or perhaps it's their diabetes. Well, no one knows of this disease in my family but I do know that my relatives w/ similiar symptoms all have Huntington's disease which is a genetic neorological disorder. Just wondering if any one else knows of a connerction between these two diseases. <_<

Suzanne

0

Share this post


Link to post
Share on other sites


Ads by Google:

Suzanne,

I'm no expert, but I don't think that there is a connection between celiac disease and Huntington's disease. Both are genetic, but they have completely different transmission patterns--and if they were caused by the same gene, I have no doubt we would all know about it! celiac disease has a *predisposing* gene (actually two), but even if you carry one of these genes, there is no guarantee that you will ever develop the disease itself. Huntington's disease is a degenerative neurological disorder that usually shows up after the childbearing years. Unfortunately, the gene that causes it is dominant, which means that if you inherit it from *one* of your parents, you will *definitely* get the disease. (Most genetic diseases, like cystic fibrosis and sickle-cell anemia for instance, are transmitted by recessive genes--meaning that you have to inherit a copy of the defective gene from *each* parent to have the disease. If you inherit only a single gene, you will be a "carrier" and can possibly pass the disease to your offspring, but you will have minimal if any symptoms yourself. This is unfortunately NOT how Huntington's disease works!)

Your relatives with Huntington's disease may ALSO have celiac disease and should be checked out (and you may want to be checked for Huntington's disease, depending on your age and your parents' health--I hope Huntington's disease doesn't run in your branch of the family!).

Hope this helps!

0

Share this post


Link to post
Share on other sites

HAVE A LOOK AT THIS

It has long been accepted that neurological disease can result as a complication of celiac disease, due to malabsorption and subsequent VITAMIN DEFICIENCY.

What is NEW information is that the neurological and neuromuscular disease associated with gluten sensitivity may ALSO result from a direct immunological attack of brain, nerve, and muscle tissue. In addition, this can occur without any signs of intestinal damage, which is the cornerstone for a diagnosis of celiac disease. Sometimes, intestinal disease will follow several years later. It is possible that neurological disease is the sole manifestation of gluten sensitivity.

http://neuro-mancer.mgh.harvard.edu/ubb/Fo...TML/000019.html

PAUL

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,620
  • Topics

  • Posts

    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined