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Issues With Caffiene Since Going Gluten Free?
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Has anyone noticed a sensitivity to caffiene since going gluten free?

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I personally have not, but then again I don't drink a lot of coffee or soda.

Caffeine is a known irritant to the GI lining though so it's not surprising.

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Yes, I had to give it up years ago. I gave up tea then too, but have recently been able to reintroduce tea.

Varies a lot for people though.

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I used to have a cup of coffee everyday. Used <_<

Caffeine seems not to go well on me either, although I could have it in my first months gluten-free. Coffee, Coke, black tea, you name it.

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I only drank caffeinated drinks before going gluten-free. Coffee all morning and then sweet tea all day, followed by coffee in the evening after dinner, then tea until bedtime. When I went gluten-free I also eliminated coffee and tea. I was strictly drinking water, Lactaid milk and OJ. After 2 weeks or so I reintroduced caffeine, but I only allow myself one cup of coffee per day. I do not drink sweet tea (damaging to my teeth was the main reason I quit that one) so the only other caffeine I may get is from soda, but only then when I eat out.

Here's the interesting part. I do not know what was causing my headaches. I had them every single day for many years. I lived on ibuprofen. What I do not know is if the caffeine had me on the edge of dehydration all the time (was constantly thirsty) or if the celiac (or celiac/caffeine combo) was the cause. Whichever it is, I am not going back to full caffeine because I have had one migraine and zero regular headaches since going gluten-free. And the migraine was noise induced by the flooring guys installing hardwood flooring in my house. So I think I've really had zero headaches in 2 months. That's never happened in my entire life.

Long answer, but caffeine can cause bad stuff in some people, depending on how much is consumed, so trying elimination may answer any concerns you may have about whether it's having any effect on you.

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Wow SMDBill, that's fantastic.

I know some people are really sad (by which I probably mean resistant!) to dropping coffee. It is so long for me I dont really remember. I hope hearing your experience persuades some people to try it.

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Has anyone noticed a sensitivity to caffiene since going gluten free?

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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