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Issues With Caffiene Since Going Gluten Free?
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Has anyone noticed a sensitivity to caffiene since going gluten free?

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I personally have not, but then again I don't drink a lot of coffee or soda.

Caffeine is a known irritant to the GI lining though so it's not surprising.

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Yes, I had to give it up years ago. I gave up tea then too, but have recently been able to reintroduce tea.

Varies a lot for people though.

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I used to have a cup of coffee everyday. Used <_<

Caffeine seems not to go well on me either, although I could have it in my first months gluten-free. Coffee, Coke, black tea, you name it.

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I only drank caffeinated drinks before going gluten-free. Coffee all morning and then sweet tea all day, followed by coffee in the evening after dinner, then tea until bedtime. When I went gluten-free I also eliminated coffee and tea. I was strictly drinking water, Lactaid milk and OJ. After 2 weeks or so I reintroduced caffeine, but I only allow myself one cup of coffee per day. I do not drink sweet tea (damaging to my teeth was the main reason I quit that one) so the only other caffeine I may get is from soda, but only then when I eat out.

Here's the interesting part. I do not know what was causing my headaches. I had them every single day for many years. I lived on ibuprofen. What I do not know is if the caffeine had me on the edge of dehydration all the time (was constantly thirsty) or if the celiac (or celiac/caffeine combo) was the cause. Whichever it is, I am not going back to full caffeine because I have had one migraine and zero regular headaches since going gluten-free. And the migraine was noise induced by the flooring guys installing hardwood flooring in my house. So I think I've really had zero headaches in 2 months. That's never happened in my entire life.

Long answer, but caffeine can cause bad stuff in some people, depending on how much is consumed, so trying elimination may answer any concerns you may have about whether it's having any effect on you.

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Wow SMDBill, that's fantastic.

I know some people are really sad (by which I probably mean resistant!) to dropping coffee. It is so long for me I dont really remember. I hope hearing your experience persuades some people to try it.

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Has anyone noticed a sensitivity to caffiene since going gluten free?

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
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