Posted 12 November 2012 - 03:32 PM
Tears, frustration and paranoia are all part of the transition - I would question the sanity of anyone that has to learn the skill of removing all gluten from their world, re-learn the skills of grocery shopping, cooking and safely dining outside their own homes without being a stressed, frustrated and yes - a bit paranoid.
My first grocery missions took f o r e v e r - visiting several stores to find as many "gluten free" items as possible and necessitated bringing reading glasses along - never needed them before, but some labels are so teeny I was ready to throw the item at the shelves and stomp my feet in a monster of a temper tantrum I'm told I never even had as a child. Those missions were tough - I never caused harm, but more than a few tears were spilled -- soon enough the tears were gone and I was able to successfully navigate any grocery store once again.
It does get easier with time - the difficult learning curve passes relatively quickly out of necessity and before long you will find ways to replace your favorite recipes and your grocery bill will come back down as you purchase more whole foods and less processed foods.
Try to limit foods labeled "gluten free". These processed foods should be used as treats - not as primary diet during your early days. Meat, fish, veggies, fruit, rice, potatoes - dairy if you don't have an issue with it are the best bets to help you heal and reduce the grocery bill total. Udi's or Canyon Bakehouse bread along with gluten-free pastas are our families only regular "gluten free" purchases.
It does become second nature - but when those tears threaten to flow in the grocery aisles or you find some ingredient in your kitchen that you mistakenly thought gluten-free - please know that you have loads of company here. Finish the shopping mission, toss or clearly label the gluten and come here to vent a bit to us - we all have a time or two -- also helps to vent here as our family and friends generally try to help, but really can't understand the loss of eating without analyzing every morsel - especially in the early days.
Hang in there
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
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