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Iron
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I am newly diagnosed (1 month). I am iron deficient, as well as all the regular deficiencies Celiacs have. My dilemma is iron supplements cause constipation and that is what I am trying to get rid of. I just want to be "regular." My doctor advised me to wait to take iron until I am "regular" and take a multi vitamin, vitamin D, and Calcium. But I am worried about the iron. I am so tired and borderline anemic. I think iron would help, right? Any suggestions?

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I have that issue with iron pills, too. Didn't hurt me when I had diarrhea. as you heal, you will absorb the iron & B12 better. Make sure you take some sublingual ( put it under your tongue) B12. That helps your body use the iron you have. You might be able to just add iron rich foods to your diet. remember not to eat dairy with the iron food ( about 2 hours before and after eating the iron food).

Here's a list of iron rich foods

http://www.webmd.com/diet/iron-rich-foods

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If your physician is amenable, you can receive intravenous infusions to bring your iron/ferritin level up. This will help you feel better immediately, and once your gut heals, you should be able to absorb iron naturally. If not, you can receive the infusions on a regular basis. Some of us here on the Forum have done this. Your physician, however, may be unaware of this possibility (many are not), so you may need to educate him on its availability. If you have insurance, he can arrange for the infusion clinic at a local hospital to give you the iron infusions you need.

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Thanks for the suggestions. I am trying to be patient with feeling better. It is taking longer than I hoped (it has been a month - but lots of stuff I read said you could feel better in just 2 days of eliminating gluten). I just want to make sure I am doing everything right.

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In two days??! Wow, believe me, that would be extremely rare. It usually takes 6-24 months for most folks. My ability to absorb iron didn't return for four years.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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