Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Worried About Toddler Daughter
0

5 posts in this topic

My almost 33 month old daughter's doctor told her father today that he is concerned that she is malnourished. She hasn't gown at all in a year and she was only 25% to begin with - now 3%. Like any mother I am really scared.

The doc said the likely cause is malnourishment but she eats - and not just junk food. She gets lots of fruits and eggs, beans, meats etc. She eats a full breakfast before daycare, eats another breakfast at daycare and then has 2nds and 3rds of meals the rest of the day. At school she's known as an eater.

Gluten problems are my first instinct because I have them. I have never tested possitive for celiac but I had a laundry list of symptoms before diagnosis and her issues remind me of my childhood. She also has chronic ear and sinus infections, bread cravings and soft diapers.

My biggest concern is that because I am not technically celiac that this issue won't be taken seriously. I am going to need some sort of doctors note to get the daycare (and my ex husband) to follow any special diet and am scared I wont be able to get it for intollerance. I was gene tested years ago and had 2 copies of an intollerance gene and have always responded great to the gluten free diet.

Any parents in similar place? What did you do? Are there tests I should be asking for?

Thanks so much for any support!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Could you explain this to your x? Would he be willing to try the gluten-free diet for her sake? If you get along at all, I'd try to talk with him. That sounds like your bigger challenge than the school. Good luck. It probably is celiac.

0

Share this post


Link to post
Share on other sites

I can totally relate! I put my daughter through genetic testing and an endoscopie. She came back negative and only has one celiac gene. However, we noticed she had issues. We found a forward thinking doctor and had her food sensitivities done and she came back intolerant to gluten, dairy, eggs, beef, mustard, soy, ginger and certain beans. If you can take her to a naturopathic doctor and get a food sensitivities test done you'll finally be able to really put your mind at rest and start her on the right path.

Best of luck.

0

Share this post


Link to post
Share on other sites

You indicated some definate signs for a young Celiac child - an inheritable Gene, slow growth and digestive issues.

A child has enough challenges besides dealing with a Celiac Mental, Physical and growth issues. This also includes a higher Temperment, irratability and the uncomfortableness that comes with ingesting gluten. This was a big part of the socialability issues our pre-school child had before his diagnosis.

Being a father of 5 celiac diagnosed children and a celiac wife we have experienced the a widerange of child and adult lifestyle, physical and sensitivity issues.

Get the diagnosis done early!

  • Physical damage and diseases - Most important this prevents the that can occur down the road for a undiagnosed Celiac or Gluten Intolerant as they grow older!

  • Mental, Physcological, and Temperment issues - Removal of gluten from a Celiac or Gluten Intolerant youngster, lessen and or prevents these known gluten intolerant issues from occuring!

  • Saves more money in the long run on misdiagnosed health and or gluten caused health issues!

Having the diagnosis in hand when you need it (always keep a copy!) helps to:

  • Get support from educational systems,Care takers, emergency responders, medical personal\facilites and started early.

  • Is needed to get a 504 plan in place if you need more assistance and support from these entities.

  • Prevents a great deal of headaches, frustration and anguish by not having to go through the last minute process to get the support and or meet a deadline (that everybody fails to because of lack of time)

Yes, if Gluten intolerance or Celaic, it is something your ex and you should be involved in and understand for your childs sake. It will take advocating, dillegence and teaching skills from both of you to help get the support your child needs, to educate others, and to teach your child the lifestyle skills he\she will need to fend for themselves as a Celiac or Gluten Intolerant.

Learn more about this Gluten Intolerance from forums like this, other websites and become a member of a local support group\s.

Good Luck!

0

Share this post


Link to post
Share on other sites

Thanks everyone, I really appreciate your thoughts! I know a great MD who is also naturpathic in the area - I'm hopeful that if I can get my ex onboard with taking her their for testing that he will start to understand the issues. The biggest hurdle will definitely be getting him on board so he doesn't undermine any diet we put her on.

I dread the idea of my daughter growing up with the pain and discomfort I did when we could pretty easily change it for her. Thanks again!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,104
    • Total Posts
      920,371
  • Topics

  • Posts

    • You already have an autoimmune condition which does put you at a higher likelihood of developing other conditions in the future, not necessarily celiac.  At any rate, I've been reading reports-- both research articles and anecdotal experiences from AI patients-- linking a gluten free diet with relief of symptoms, particularly a lessening of joint and muscle pain in those with RA, FMS, Lupus, and Chronic Fatigue.  So my point is, even if you don't have celiac disease, if being on a gluten free diet helps you, then stay on it.  As for the digestive issues, it may be worth seeing a GI for.  Lots of things can cause tummy troubles, not just celiac disease.
    • It is absolutely possible for non-Celiac gluten intolerance and/or gluten sensitivity to cause extreme symptoms. The difference between those and Celiac is that Celiac will cause actual small intestinal damage to the villi, while NCGI/gluten sensitivity can have extreme symptoms, there is no damage to the small intestine.  Other causes of bloating can be SIBO or small intestinal bacterial overgrowth.  The title pretty much says it all and you need antibiotics to help combat that. Basically, your small intestine's bacteria is out of whack and you have more bad bacteria than good. I know there is a test but have no experience with this. You may want to google it and read up on it and maybe ask a specialist about it too?  This is something they should be testing for anyway to figure out what is going on.  You could also have food allergies, as opposed to an intolerance like Celiac.  You can see why this is so hard to figure out sometimes! Are you sure you are completely gluten free?  This diet has a big learning curve and cross contamination is important.  Please take a look, if you already have not, at this link.  It was written by a previous member of the forum and although it is a bit lengthy, it is what you need to know about following the diet and living gluten free successfully. She did a very good job on it!  Even tiny amounts in your diet can still cause symptoms. http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ Have you been tested for vitamin deficiencies or anemia?  These could offer a clue to see whether you are malnourished or not. Many people with celiac have both deficiencies and anemia.  Between testing for these and genetic testing to see if you carry a Celiac gene might help you to rule it out if you cannot have a scope done.  But you do remember that you need to be eating gluten for the scope? 
    • Celiac disease is a tricky rascal. Just when you think you've got it under control, it sneaks up and manifests into new and often unexpected problems. At least, this is what we have found over the last decade. From contacts with others who have Celiac disease, we know we're not alone. I'm in my early thirties and find that sometimes my body acts more like that of an old man's. View the full article
    • Thank you, Gemini.   Is it possible for non-celiac gluten sensitivity or intolerance to have this severe symptoms?
      I'm on gluten free diet two weeks now and no change... What are other causes of these symptoms beside food?
    • I am trying to decipher the test and it looks to me like the Total IgA is fine.  Your number appears to be in the middle of the reference range, which would be sufficient IgA for testing.  I am in America so your country's testing is a bit different from here....I really hope I got that right!  If you have severe enough symptoms of a GI problem, some doctors here would move onto a biopsy even with negative blood results.  I think if you cannot get a full Celiac panel done, then a scope with biopsy should come next. Severe bloating has a cause and they need to rule out a food problem. There can be other causes but food is usually a big trigger. Yes, keep us updated!  We are here to help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,141
    • Most Online
      1,763

    Newest Member
    Sandyblake1711
    Joined