12 replies to this topic

[TiaMichi2]

This is the generic for Neurontin, and I have just been prescribed it for FM. Wondering if it is gluten-free, on the Alpha Drug List it is listed, but it does not reference this manufacturer.

Any help will be greatly appreciated, thanks

Miriam

[mushroom]

Hi Miriam: I would suggest firing off an email to them: nfous@actavis.com and asking them.

[TiaMichi2]

Hi Miriam: I would suggest firing off an email to them: nfous@actavis.com and asking them.

Thanks Mushroom, I will send them an email, I have their phone number also but I was hoping of being able to take one tonight. No choice but to wait until tomorrow, It's unfortunate that we have to go through all this hassle over medications.

Miriam

[love2travel]

I used to take it and it was gluten free. However, you must contact the manufacturer for every batch just to be sure. Hope it works for you. Unfortunately it did absolutely nothing for me. Let us know how it goes - I am always curious about others who are prescribed it.

[TiaMichi2]

Thanks for the update Kuhar, I am still waiting for a response from Activis. If it is gluten-free and it works, I'll post about it.

[love2travel]

Thanks for the update Kuhar, I am still waiting for a response from Activis. If it is gluten-free and it works, I'll post about it.

Yes - please do! I wish you great success with it.

[GF Lover]

I took up to 2000 mg a day. No help after 9 months. I still have a bunch I try every so often when I'm in more pain then usual.

[love2travel]

I took up to 2000 mg a day. No help after 9 months. I still have a bunch I try every so often when I'm in more pain then usual.

Same here. The 2000 mg did nothing but make me feel like a stumbling dork, bumping into walls and such. I tried another again two nights ago (I am always hopeful!) and it did not help.

[TiaMichi2]

2000mg wow.....that's quite a bit, I get relief from Flexeril, I am thinking of sticking with it.

[love2travel]

Really? Flexeril did absolutely zero for me, either. Happy it works for you! Hopefully some day I can find something that helps - I've tried over 20 meds.

[TiaMichi2]

Really? Flexeril did absolutely zero for me, either. Happy it works for you! Hopefully some day I can find something that helps - I've tried over 20 meds.

Yes, guess I am lucky in that sense, I can not take any narcotics. I also have a very high tolerance for pain, as long as the medications takes some of the edge off, I have learned relaxation/meditation techniques that help me manage the rest. It took a long time to learn how to truly relax, but so far so good.

I have Osteoarthritis, Bursitis, FM and a lot of other issues, it all started about 7 years ago, at the same time that my body rejected "the evil Wheat", I always had some symptoms of Celiac, but never to the degree that it presented itself then.......Perimenoupase, and Celiac came at the same time

Have you ever tried relaxation/meditation?

[GF Lover]

Really? Flexeril did absolutely zero for me, either. Happy it works for you! Hopefully some day I can find something that helps - I've tried over 20 meds.

Hi Love2Travel

Have you tried Tizanidine? It's an alternative to Flexeril (muscle relaxer ). It works some for me. Along with some tramadol it takes the edge off.

Colleen

[love2travel]

Hi Love2Travel

Have you tried Tizanidine? It's an alternative to Flexeril (muscle relaxer ). It works some for me. Along with some tramadol it takes the edge off.

Colleen

Hi, Colleen. I've used both Tizanidine and Tramadol together and it did nothing. I could not even tell I was taking anything!

But my pain goes well beyond FMS. I have chronic back pain from herniated disks, IT band syndrome, chostocondritis (chest), arthritis, etc. And I am still young (relatively). I go for weekly massages, have seen the chiro when necessary, done pilates, swim, had laser therapy, physiotherapy, acupuncture and so on. I was hoping that once I was gluten free things would improve but they have become worse the last few months.