Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Advice Starting Gluten Free Diet.
0

5 posts in this topic

I've posted on other parts of the forum, as I've said my mum has celiac, I have no positive testing but have had symtoms for about 9 months. I have been gluten free for 5 days and the bad flatuence has reduced a lot and parts of the fullness in the abdomen after eating has reduced a little. Should I avoid dairy as well? As I noticed I had gluten free porridge (with milk) and had quite a bit of burping, also I had a activia and had a bit of gas. Is this normal or am I just over reacting?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It doesn't sound like overraction at all. I'm lactose intolerant (very!) and a glass of milk can cause nightmares, cramping, heavy D, etc. The gas is quite normal if you are indeed lactose intolerant. If you're not lactose intolerant I wouldn't think it would cause the changes if you happen to be celiac. One way to know for sure is to get some strong lactase enzymes and take them as directed when eating meals with milk. If the symptoms change then you will know you have some sort of intolerance to milk. Lactase enzymes are great for those like me who have issues but still want to have dairy in their lives. I take a pretty strong dose when I eat something with much dairy, but I ramped up to that level to know how much my body needs to prevent those symptoms. It's an easy test and you'll know after one or two meals of trying it. And the enzymes are inexpensive and available at pharmacies and department stores over the counter.

0

Share this post


Link to post
Share on other sites

Thanks a lot:) I've read stuff where it could just be cos the lactose is hard to digest in the villi where its been damaged by celiac, as I think my problEm is celiac mainly as some of my symtoms have decreased after 5 days.

0

Share this post


Link to post
Share on other sites

Milk gets to me too. I usually use coconut or almond milks now; they're not too bad. A serious milk sensitivity can actually cause villi damage too, but I think that's the casein that causes that... not sure though.

It could be the oats too. Many celiacs have issues with oats even if they are of they gluten-free variety. Be careful what oats you use as many are made in facilities with wheat and are often cc'ed.

0

Share this post


Link to post
Share on other sites

Thanks for the replies:) ill just keep my eye on things see how I feel

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,685
    • Total Posts
      921,747
  • Topics

  • Posts

    • Your body has been used to ingesting and has been coping with the gluten in its systems.  DON'T PANIC because your body is doing it for you.   Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine.  When that is either disrupted or changed, it could take a while for the body adjust to a different way of doing things.  Another factor in the increase in symptoms could possibly be that your body is starting to "clean house".  It's trying to get rid of the amounts of gluten hiding out in all its nooks and crannies.  It is going to be a long term process.  It's like cleaning out a vacuum hose or other household item that is just caked with gunk.  The first cleaning gets rid of a large portion of the gunk and ick.  The subsequent cleanings gets rid of more and more ick but in lesser amounts. I thought I was going to go crazy those first few months, but things are a lot better now. (I am about 10 months gluten free).  I still have moments of brain fog and even episodes, but my body is getting closer (and more used to)  to having a cleaner "household item".  I know it's tough at first with the increased onslaught of symptoms, but hang in there.   You may want to keep a journal of all that you ingest or come into contact with for a time to track anything that could exacerbate symptoms.  (For me, my episodes are chemically triggered as well.)  If for some reason a few months down the road, you still have large amounts of symptoms it would be a good idea to visit your GP again just in case there something else that is going on.  
    • I would love some help! After 20ish years of being misdiagnosed with IBS, I was diagnosed with celiac disease (positive blood test for tTG IgA and positive duodenal biopsy) ~ 6 weeks ago. Of course I've gone completely gluten free, and I've been crazy paranoid careful not to ingest any gluten. I've also completely avoided all oats (even certified gluten free) and cut out lactose (due to transient lactose intolerance... because I don't have villi) . But now I feel WAY WORSE. I've had abdominal pain every single day, which ranges from mild aching to severe 10/10 laying on the floor crying and vomiting pain. I understand that it takes a long time to get better, but why would I get so much worse? My best guess is SIBO, but I can't imagine that it could cause such extreme symptoms, can it?  So my question to you fine folks is: did this happen to anyone else? Have you gotten sicker after you changed your diet? Is this normal?  For arguments sake, lets assume that I did not ingest any gluten to cause these symptoms... Thank you for your help!
    • Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.
    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Sorry.  Something is wonky with either my connection or celiac.com! Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.   Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.   Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,687
    • Most Online
      3,093

    Newest Member
    Jessie.Cait
    Joined