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New Thyroid Problems And Premature Ovarian Failure
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I was here a while back asking about celiac, my first/original post here.

I had blood tests done, they were negative. I had a scope done last May. I was told I had an ulcer that was likely due to NSAIDs and everything else was normal, including negative biopsy. I never saw lab or patho reports, never thought to ask.

My new problems are this: I thought noticed some swelling in my neck and mentioned it at my physical last month. I had a thyroid ultrasound done and the results were overall enlargement of the gland and there is also a small cyst. I had my dr do blood tests again, I've always felt my symptoms were hypothyroid-like, my TSH was normal, though I am now reading that's not unlikely? I also had her test my sex hormones because I am still on a quest to find out what the hell is wrong with me. My estrogen was very low, and FSH very high, indicating premature ovarian failure/menopause, but I am 28.

I have had somewhat irregular (for me) periods since they returned 9m ago. Shorter and lighter, one only lasting a day. My last period was normal. I had a miscarriage between my 4th and 5th baby, but overall have had no problems with fertility, have 5 children.

My "celiac" symptoms were worse at the end of my last pg and I wonder if that pregnancy is what threw my body into complete turmoil. I have an appt with an Endocrinologist on the 28th, to find out the next step and what all this means.

As soon as I found out my thyroid was messed up and potentially my fertility, my mind immediately went back to all I had read about celiac. Just curious if anyone else has dealt with POF and how possible it is that my negative tests were wrong or if NCGI can cause all of this too.

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Welcome Back Kendra!

I read your first post and the most important statement to me was this:

Everyone brushes all my symptoms into stress of having 4 kids and going to school, but I believe I handle it all quite well and feel like crap all the time. It's not stress. I don't care what anyone says. I know my body and I just don't feel good ever.

You are not imagining the correlation between all of these symptoms. I could have written this myself 20 years ago. Don't let the doctors dismiss you. Make a list of all your symptoms along with their progression to take along to all doctor appointments - this along with a written list of questions and the blood tests you think you need really helps to make sure you get the care you need.

Request written/electronic copies of ALL previous tests - blood, endoscopy/colonoscopy reports, pathology of all biopsies. Post them here if you are unsure what they all mean. Many of us can help interpret celiac, autoimmune and thyroid tests - I doubt there is a medical test that someone around here can't help with.

It is quite possible you did not have a full celiac panel, nutrients tests or enough biopsies of the small intestine to properly diagnose Celiac Disease. Regardless of previous results it would be wise to have both celiac and nutrient tests repeated now.

TSH is not a sufficient test for thyroid. Thyroid Stimulating Hormone is actually a pituitary hormone. You'll need to have Free T3, Free T4 along with thyroid antibody testing.

Autoimmune disorders like to play together - often we have more than one and you are not alone in having many "normal" tests that don't reveal the problem.

I am not saying you have Celiac Disease, but I do know without a doubt that the malabsorption caused by Celiac can cause ALL of your symptoms. There is not a system in the body that can function properly if the body does not obtain the nutrients it needs from food.

Hang in there...it can take a bit of work, but you will get this figured out :)

Oh...don't remove gluten until you are sure all celiac testing is complete.

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I don't know what the cause of my infertility was, but I know it has been 15 years from the last one. All of the while we desired some more. I hope you will return to good health.

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Hi,

The article linked below describes a study done in Italy on non-celiac wheat sensitivity. It confirms the existence of the condition. What we don't know right now is what all the effects of non-celiac wheat sensitivity are.

Non celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

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I'm sorry you've been feeling unwell.

I agree with what Lisa (Gottaski) said. Double check all your celiac tests (get copies) and finish testing if need be. As GFinDC said, it could be NCGI, which is just about as nasty (minus intestinal damage) but harder to diagnose.

Thyroid problems like Hashimotos causes symptoms similar to celiac disease. I have both, and went I went gluten-free, the main improvement was with my stomach aches and headaches; they were much less frequent. But I still felt so tired, achey, hair thinning and still had a slow gut; hashimotos causes that. And with an enlarged thyroid and cyst (nodule?) it sounds like your thyroid is under attack.

I had hypo symptoms and normal (but slightly high between a 2 and 7, a 1 is ideal) TSH tests for almost 15 years. If the doctors had tested my free T4's and T3's, and my TPO Ab levels, I'm pretty confident that I would have been diagnosed years earlier.

Best wishes.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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