Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

A Thank You To Dieticians


mushroom

Recommended Posts

mushroom Proficient

Many of us on the forum have in the past, myself included, been somewhat scathing about the help rendered to celiacs by dieticians, and their lack of knowledge of the celiac diet in general.

Now, while I know there are many out there who are pretty useless, I wanted to single out for praise a couple of hospital dieticians who who were able to cater to my needs (with my husband's help) when I was not able to do so myself (being intubated and in an induced coma.) With my multiple food intolerances I had to be one of the toughest challenges they had faced. They managed to come up with a tube feeding formula (from reading the labels) that did not make me sick, and then when I was finally able to resume eating orally, the dietician worked out meal plans for every meal with me for every day I was in the hospital (all 21 of them) from what was on offer in the kitchen that day -- with a few additions and substitutions tossed in here and there, and she worked with the kitchen staff to make sure they understood how to prepare my food.

I later made a special trip back to the hospital to thank her, and she had a student trainee with her so I am sure that that young lady also got special training in gluten free (and other free).

This was in a hospital that has special diets for practically every condition you can imagine, EXCEPT gluten free. :blink:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

waaaait coma what when where :blink:

I hope you are doing better :)

At any rate, it can be a pain. I haven't had to stay in a hospital since i was a toddler (had flu really really bad).

I'm glad to see this :)

Link to comment
Share on other sites
Celiac Mindwarp Community Regular

Wow, that's amazing, so glad they were there for you at the right time.

I agree we need to mention good healthcare as well as bad.

Extra glad they managed to sort you out. This disease is unbelievable.

Link to comment
Share on other sites
GF Lover Rising Star

Wow Mushroom, I hope you have recovered well. I agree with the kudos. Some are caring and knowledgeable. Just this last Wednesday, I was in the Hospital, the gal was bringing the tray cart in the room, another gal came right behind her her saying wait, wait. she grabbed the cart and apologized saying it wasn't double checked and was not gluten free. I had a new tray in 15 minutes from her personally. I was so impressed, I wanted to cry. She obviously took her job seriously and cared enough to run after my tray.

There are "Celiac heroes" as I call them and always thank them profusely. I'm so glad you went back to thank her. I'm sure you made her feel very good and feeling good is the goal.

Thank you for sharing that with us.

Colleen

Link to comment
Share on other sites
GFinDC Veteran

Thanks for the positive story Shroomie! It's neat when people can make things work out for us. I hope you are recovering well.

Link to comment
Share on other sites
simon-n Newbie

Nice story! Hope you'll feel better soon!

My girlfriend is dietician and believe me, they focus on celiac disease, and other food intolerances, more than ever before. It will only get better :)

Nice you went to her again just to say thanks :) They love it and it makes them work even harder :D

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,508
    • Most Online (within 30 mins)
      7,748

    Penny Lowery
    Newest Member
    Penny Lowery
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • McNish
      If you're ever in the Peoria IL area - Queen of Squash is 100% gluten-free.   Pekin (just outside Peoria) Whiskey Taco is 90% gluten-free.  The owner's mom is Celiac so they get it!   Just let your server know.   https://thequeenofsquash.com/ https://whiskey-taco.com/
    • trents
      Do you have online access to your celiac panel test results such that you could post them? tTG-IGG is kind of a secondary test. A weak positive in that one could indicate celiac disease but since it isn't as specific a marker as the tTG-IGA it is not real convincing. You could also have NCGS (Non Celiac Gluten Sensitivity) for which there is no test. Celiac disease must first be ruled out. It is 10x more common than celiac disease and shares many of the same symptoms. Some experts believe it can be a precursor to celiac disease. The antidote for both is the same: total avoidance of gluten.
    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
×
×
  • Create New...