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Coping With My Cancer

2nd Surgery

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10 replies to this topic

#1 GF Lover

 
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Posted 17 November 2012 - 04:21 AM

Hi all,

I had my 2nd surgery on the 14th of Nov. All went really good.

They removed the surface lymph nodes in the left groin area. My Oncologist said they take the surface ones as a mass (I pictured an ice cream scoop lol). Then they take the front hip muscle, she said it's the one you use when you cross your leg, slice it vertically, then fold the half so it's now horizontal and it lays where the mass was and reattached. And yup, staples again, around 5-6 inches of them. I'm beginning to hate staples.

They kept me overnight this time and it's a good thing too cuz I couldn't move my leg an inch and had a catheter and a surgical drain.

As of this morning I'm feeling pretty good. I still have the drain, it's just plain uck, but working well. I can get from bed to the kitchen. I'm using my cane and the wall and I can now get my foot about an inch off the floor to walk, with drain safety pinned to my pajamas. I've made about 15 round trips so far. Today I am going to attempt my first shower since coming home and I'm pretty excited about that.

Hubs is feeding me well. Fried Chicken and mashed taters last night, serious yums. My appetite is doing really good and I'm eating and having snacks.

I have my follow up appointment on the 30th and will find out if these other nodes have any cancer. Keep your fingers crossed. Still starting interferon in Dec. My mom's coming to stay a few weeks when I start that. She lives in Hawaii, yes I'm jealous, and it's been over a year since I've seen her so I'm super excited about that.

That's it for now. Wish me luck on my shower. Remember that you are all warriors and keep up the fight for great health.

Colleen
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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

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#2 ravenwoodglass

 
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Posted 17 November 2012 - 04:49 AM

So sorry you are having to go through so much. Can't believe how quickly they send people home after a surgery like yours! Your dinner last night sounds yummy and you are so lucky to have a loving DH to help you heal and cook you good for sure safe food.. I hope you will heal quickly and will keep you in my thoughts and prayers.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Celiac Mindwarp

 
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Posted 17 November 2012 - 05:11 AM

Wishing you luck for that shower, its gonna feel sooo good. Glad surgery went well for you. I had a drain once, sympathy. Uck is the word.

All the best for healthy healing and good follow up.
Mw
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#4 GFinDC

 
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Posted 17 November 2012 - 05:47 AM

Being able to get around so soon after the surgery is great! Even if it isn't dancing with the stars style getting around :)
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#5 nvsmom

 
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Posted 17 November 2012 - 08:13 AM

I'm glad your surgery went so well. :) I hope your recovery continues to go smoothly. Best wishes!
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Nicole Posted Image

"Acceptance is the key to happiness."

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Celiac - June, 2012
Hypothyroid - August, 2012

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#6 jerseyangel

 
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Posted 17 November 2012 - 09:01 AM

So glad to hear your surgery went well and you are up and around already. Many positive thoughts being sent your way. Take good care:)
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#7 love2travel

 
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Posted 17 November 2012 - 02:05 PM

That is quite the surgery! So sorry you have to go through this. Your good attitude and outlook will go a long way toward your healing. You must be looking forward to the reunion with your Mom. I'm glad you've got a great support system. Keep us posted, please.

I will be praying for you. :)
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#8 GF Lover

 
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Posted 20 November 2012 - 07:46 AM

Hi all,

Thanks for your thoughts, prayers and wishes. I sure do appreciate anyone who who can makes sense of my ramblings.

I've officially moved base camp to my living room chair, yay. Had a stumble in the shower this morning and knocked all the shampoo bottles over but no harm done. My drainage is getting better, from around 10 oz. In a 24 hour period to about 4-5 oz. Major progress. Pain is very manageable now, just a muscle relaxer every now and then. The best part is that I have REAL clothing on today, woohoo.

Otherwise, I've just been doing a ton of research on cancer therapies and clinical trials. Chemo is not effective with melanoma so choices are somewhat numbered and and have low rates of slowing down tumors. The organs of concern are the liver, lungs and brain, and spinal tumors. At this point it still looks like Interferon is next unless scans show distant mets. Then the choices are more difficult and complicated.

I heard somewhere that Thanksgiving is this week, I really need to be more informed on current events, lol.

Thankful to be alive, Colleen
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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

hairy-spider-smiley-emoticon.gif


#9 nvsmom

 
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Posted 21 November 2012 - 08:14 PM

(hugs)

Suzanne Somers has a couple of good books out on health and one on treating cancer is very well researched. I think it's called Knockout or Breakthrough. It had some good ideas that made sense. It could be worth looking at.

Take care.
  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#10 1desperateladysaved

 
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Posted 22 November 2012 - 03:18 AM

Get Well Soon. ***

Diana
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#11 GFinDC

 
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Posted 22 November 2012 - 07:24 AM

Congrats Colleen on the big living room move. And Happy Thanksgiving too! :)
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul




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